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  • Lupron Shot

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    Old 01-09-2021, 01:17 PM   #16
    JWPMP
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    Re: Lupron Shot

    Quote:
    Originally Posted by IADT3since2000 View Post
    And thank you Paula for reminding me about that. Looking back, I realize that I probably had orthostatic hypotension for much of my ADT treatment, though it was a minor problem as I just would take a few seconds while rising from a seated position, which prevented "seeing stars." I now recognize that I have not had that issue at all for years. It's probably an ADT thing, though minor, and easily countered.

    .Jim

    - - - - - - - - - - - - - - - - - - - - - - - -
    21 years as a survivor. Doing well. Diagnosis Dec 1999 PSA 113.6 (first ever), age 56
    Gleason 4+3=7 (J. Epstein, JHU), all cores +, most 100%; "rock hard" prostate with ECE - stage 3, PNI, PSADT determined later 3-4 months; technetium bone scan and CT scan negative; prognosis 5 years.
    Later ProstaScint scan negative except for one suspicious small area in an unlikely location. ADT Lupron as first therapy, in Dec 1999, then + Casodex in March 2000, then + Proscar and Fosamax in Sep 2000. Rejected for surgery January 2000; offered radiation but told success odds were low; switched to ADT only vice radiation in May 2000, betting on holding the fort for improved technology; PSA gradual decline to <0.01 May 2002. Commenced intermittent ADT3 (IADT3) with first vacation from Lupron & Casodex. Negative advanced scans in 2011 (NaF18 PET/CT for bone) and 2012 (Feraheme USPIO for nodes and soft tissue). With improved technology, tried TomoTherapy RT, 39 sessions, in early 2013, plus ADT 3 in support for 18 months (fourth round of IADT3), ended April 2014. Continuing with Avodart as anti-recurrence shield. Current PSA remarkably low and stable at <0.01; apparently cured (Current PSA as of 12/2/2020). (Current T 93 12/2/2020.) Supportive diet/nutrition, exercise, supportive medications during this journey, as well as switches in antiandrogen, 5-ARI, and bone drugs. Barely noticeable side effects from radiation; continuing low T, likely do to long use of ADT, but good energy and adequate strength. I have a lot of School of Hard Knocks knowledge, and have followed research, which has made me an empowered and savvy patient, but I have had no enrolled medical education. What I experienced is not a guarantee for all but shows what is possible.
    Thank you Jim for sharing that you did experience that and not too bothersome. Jim leaned over to get biscuits out of the oven this morning and woosh of dizziness. went away quickly. he's out trimming trees and fixing fence for 2 hours now, no complaints. So hopefully not going to be an issue. Still need to check his blood pressure though. I'm thinking they'll do that Monday
    Really appreciate all the input, truly.
    Paula

     
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    Old 01-11-2021, 03:24 PM   #17
    JWPMP
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    Re: Lupron Shot

    Quote:
    Originally Posted by Prostatefree View Post
    Check his blood pressure.
    130 / 68 at the Infusion Center
    Betting at home with no stress its lower.

    Paula

     
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