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  • Firmagon side effects

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    Old 06-17-2021, 01:48 PM   #1
    Junior Member
    Join Date: Mar 2021
    Posts: 34
    39cancer HB User
    Firmagon side effects

    I had my first Firmagon injection yesterday. Other than some super painful injection sites, I feel totally normal. For those of you on ADT, how long did it take before the zero testosterone bus ran you over?
    40 years old
    09/20: Nodule found but not considered a problem. PSA 1.5.
    03/21: MRI: PIRADS 5, SV+, LN1. Biopsy: Gleason 9 (5+4). PSA still 1.5.
    05/21: RP performed. Final staging pT3a, LN1, M0. Negative margins. Gleason 9 (4+5). 4 positive nodes
    06/16/21: Started ADT - first Firmagon injection
    07/21/21: PSA 0.08. 2nd Firmagon injection. Started Zytiga.
    08/25/21: PSA 0.08

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    Old 06-18-2021, 05:24 AM   #2
    Senior Member
    Join Date: Dec 2019
    Location: NJ
    Posts: 136
    Steve135 HB UserSteve135 HB UserSteve135 HB User
    Re: Firmagon side effects

    Testosterone will come down pretty quickly, but as long as your active and working you will not feel the affects for some time. You may get the side affects of hot flashes and some weekness at night. You will begin to see loss of muscle mass. But while I worked this had little affect on my daily activities as it will take longer to happen. It was only after I retired did the bus run over me and does daily. But its because I stopped being active and is my fault! If I do very little and can do even less the next day. If I become active for a few days than I am not affected as much the following days. But that's not to say I have lots of muscle loss. I am 62 and have been on ADT for more that 2 years straight.
    But I am alive and have shown no signs of PCa for more than two years.

    RP 10/15 Path 54g 5x4.2x2.8cm 4+3=7 Tumor location quadrants Bilateral
    Extra-capsular extensions present,SV no invasion
    Vascular invasion none, PNI yes, Multicentricity multifocal
    Margins Not Present inked margins 5 neg.LN stage pT3a N0
    PSA 10/16 <0.1 02/7/17 1st BCR 0.4 02/15/17 0.5
    Pet Scan 2/17 Neg PSA 03/17 0.6 Axumin trial 17.4mm tumor rt.semi vessel bed
    ADT Casodex + Trelstar 04/17 SRT (42)
    08/17 PSA 0.1 Last 6 uPSA 0.006 uPSA 2/19 0.030 2nd BCR 5/19 0.235 5/30 0.32 6/19 0.34
    7/19 0.06 8/19 0.08 9/19 0.056 10/190 0.08 11/19 0.07 12/19 0.07
    7/19 Continue Trelstar, Add Xtandi, Zoledronic Acid
    12/19 (3) SBRT Iliac bone liasion post SBRT 1/20 0.06 2/20 0.04 3/20 0.02 4/20 <0.02 5/20 <0.02 6/20 <0.02
    7/20 <0.014 8/20 <0.014 9/20 <0.014 10/20 <0.014 Nov.No test 12/20 0.014
    1/21 <0.014 2/21 <0.014 3/21 <0.014 4/21 <0.014 5/21 <0.014

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