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Radical Prostatectomy/regular post issues

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Old 03-29-2009, 01:00 PM   #1
Join Date: Oct 2007
Location: Micky Mouse lives here
Posts: 4
jimtumor HB User
Talking Radical Prostatectomy/regular post issues

Hi All,
(Radical Prostatectomy January 12,2009
Here's the back story –
OK, now Grab some coffee…..

Back in early 2006, for the longest time, I was DX as having IBS (irritable bowel syndrome)which was NOT the case at all!
Actually, it was a rare type of Carcinoid Neuroendocrine Tumor Cancer (NET) that was reported to have affected only about one out of every 100,000 people. It was most often, and still in some cases today, misdiagnosed as a form of IBS, Crohn's,or celiac, as it was in my case. This correct diagnose took about a year and a half!
Since I was "properly" diagnosed back in January of 2006, I underwent a General Surgery for a bowel obstruction; I had a Right Hemi-Colectomy, which they found three NET cancerous tumors out of the 23 Lymph nodes in a 18” section.

Last year, 2007, I underwent a Robotic Surgery to remove a NET tumor between the outside of my rectum and my seminal vesicles. This year, January 12, 2009, I underwent another robotic surgery, but this time is was for a low-grade prostate cancer, in which the doctor stated that at my age of 54 years, it’s best to have a radical prostatectomy now, than to wait 20 or 30 years when surgery will not be a viable option, and cancer would have spread..
I'm Still recuperating after surgery, After two cistograms, the leakage from the backside of the bladder is slowly healing, week to week, but I still have the JP (Jackson-Pratt) collection bulb on my left side, and I still have my catheter in. When having a BM, I also noticed a little pinkish, or small amount of blood come out from my catheter, the doctor said that was normal.


My Diagnosis after the prostate biopsy was a low-grade cancer. My PSA was only 4.8, compared to one person in this forum who had a PSA of 19.8 Pre-surgery!!! The doctor thought that with my father having prostate cancer, that I should have the surgery now, because in 20 or 30 years, I may not be a candidate for such surgery.

I'm 54 years old. I had the radical surgery on January 12th, 2009. I was supposed to be kept overnight, but because of the urethra sutured to the bladder leakage problem, they kept me over for nine days, I went home with my two new buddies, the Jackson-Pratt (JP) bag and the foley catheter, for about seven weeks, until they removed it, thinking the leaks were mostly not a problem and it would heal on it's own.

Adenocarcinoma of Prostate, Acinar Type-
Gleason's Score: 3+4 / Bilateral / Approx. 10% of gland Involvement / Perineural Invasion:Present / Lymphatic Invasion:Absent / Extraprostatic Extension: Absent / margins: negative for Malignancy / Then it goes on about the Seminal Vesicles,Bladder neck, and Vasa Deferentia, being negative for malignancy.

This was a nerve-sparing surgery, so he told me. Most of what he removed was on the right side. Does that mean I can get a half of an erection?

I haven't been on here but a few times since my surgery, dealing with the "Diaper" issues, (Down to 2 per day) None at bedtime. I'm also doing the Kegles, but not so much worrying about the erection issues, even though I tried it once, ok maybe twice, (FOR MEDICAL REASONS ONLY) lol I had bleeding in the urine problems, and wanted to know if it would bleed, No it didn't) and the doc was right, no erection, but intense orgasm...dry, and very weird. I hope I get some of this back. he has me on 25MG Viagra daily, he told me this should help kick-start the blood flow (if anything left) He also said I can do injections or use a pump. I have previously posted more on the prostate thing in this forum under my username, jimtumor.

If anyone has similarly gone through the same thing, please post....please. Especially the viagra thing....Does this really help us with our kind of surgeries?

Has anyone have any luck in having half the nerve bundles removed, if you still attain a full erection??? How long after surgery?
Insurance does not cover this and these little blue pills are very expensive...CVS Drugs-$16.00 each 100mg pill. And Costco is $13.00 ea.

Last edited by jimtumor; 04-05-2009 at 01:44 PM.

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