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Thyroid confusion! Please advise!


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Old 09-11-2018, 07:50 PM   #1
erb0225
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Unhappy Thyroid confusion! Please advise!

I am going to make this as short and to the point as possible in hopes of getting some advice or maybe clarity on my current thyroid issues, I can't get this off of my mind and am hoping for some encouragement and support to help get me through these next couple of weeks. I am a 25 year old female that was diagnosed with a multi nodular goiter at the age of 16 (my primary care doctor first felt this in my neck upon a routine check up and referred me to a pediatric endocrinologist). I was treatment by a pediatric endocrinologist until I was 18 and then had to be transferred to an adult endo as she could no longer treat me as an adult. Upon my treatment with the pediatric endocrinbologist, she watched the growth and sent me for one FNA biopsy which came back benign. At the time, I had several different sized cysts on the right lobe of my thyroid which were biopsied, all of which came back benign. I had NO nodules on the left lobe of my thryoid. This is in 2012.

Fast forward to 2014, the right side of my thyroid and neck had started severly causing me pain, so me endocrinologist opted to remove the right side ONLY as I had no nodules on the left side of my thyroid. I had a partial lobectomy which removed the right side of my thryoid and all of the cysts which were on it, The final pathology after surgery came back benign. Low and behold, just a few short months after having the partial thyroidectomy, a solid nodule appeared during a routine ultrasound check up on the left side of my thyroid. For years my new Endocrinologist has not seemed or acted concerned about this at all and did not even continue ultrasounds or biopsies on this nodule to ensure this wasn't malignant. She took the "wait and see" approach, which several times I complained to her or severe neck pain and tenderness and she brushed it off as it was scar tissue from my partial thyroidectomy. The last ultrasound I had showed a 1cm nodule on the left side of my thyroid in April 2016. My doctor once again wanted to wait and see if the size increased.

Here, we are September 2018, I switched doctors because I did not feel confident in her "wait and see" approach. I had an ultrasound completed on the left side of my neck last week which I have attached the results below, it now shows my nodule has grew to 2 cm. They mentioned that they compared it to previous CT Scans I had completed at the hospital for two automobile accidents and it has grew in size slightly. For a year now I have been having these weird pains in my neck which almost feel like someone is taking a balloon and blowing it up, a feeling of fullness and just a tenderness throughtout my neck. I am now a nervous wreck and severely depressed from researching as it appears you wouldn't have pain until it has spread into your lymph nodes and surrounding bones.

I am literally scared to death, I don't think I've ever been this scared in my life. I know google is your own worst enemy when going through this, but from googling this, the report of "MIXED ECHOGENICITY" almost always signifies Cancer, as does it having blood flow within the nodule!! I do also know the tiny mass they found at the bottom has not been there in previous scans. I am so confused by this thyroid ultrasound and my doctor was not very informative when he called to give the results. They are referring me back to have a FNA Biopsy soon, I just have the worst feeling about this and am mostly scared to death "what if" this nodule has been cancer for years and my doctor just blowed it off?

From anyones prior experience, have you had any of these symptoms with cancer and IF it would have been cancer years ago, would it have grew more rapidly that just 1cm to 2cm? IF this were to turn out to be malignant, would it be too late if it has indeed been cancer all of these years since 2015? I will take any experiences/words of advice/encouragement I can get at this point as my family is not supportive at all and acts as is this is nothing when to me this is EVERYTHING. I am a single mother to a 5 year old little girl and am scared to death of this being the worst imaginable. I am having severe anxiety just waiting on a biopsy appointment and cannot eat, sleep or stop these raging thoughts. Thank you all so much in advance and bless you all!!

FINDINGS:

US THYROID

The right lobe is absent. The left lobe measures 5.8 x 1.7 x 1.7
cm. There is a 2.0 x 1.0 x 1.0 cm nodule in the left lobe. It is
mixed echogenicity. Color Doppler shows blood flow within it.
There is a tiny 3 mm finding at the lower pole of the left lobe

Conclusion

Dominant solid nodule left thyroid. It may be very slightly
larger than on prior CT neck with contrast from 02/24/2014 and it is
about the same as on the CT cervical spine from 08/30/2016.

Status post right lobectomy.

Last edited by Administrator; 09-11-2018 at 08:14 PM.

 
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Old 09-12-2018, 07:47 AM   #2
YaYagirl
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Re: Thyroid confusion! Please advise!

Dear erb0225,

You really must stop thinking of 'what if" as it can make us feel so out of control and even kind of crazy.
Even if you find sleep difficult you can slow your breathing, and you must eat. Remember you are an example to your child. It would be nice if family explained things rather than to jump to judging, but evidently they don't know how to help.

Thyroid cancer is one of the easiest conditions to resolve, and would have to never be treated for it to become fatal. I'm sure this has been detected in absolutely plenty of time. The cancer word is scary in itself, but that doesn't mean you need to be terrified. The thyroid is easily removed and thyroid hormone can be replaced.

It is imperative that you read up on what is happening and that you make yourself relax.
A small contained cancer was found on my leg. I have had it for probably 30 years. It was contained in a small sac, and was completely removed. My uncle had little skin cancers on his nose that regularly were removed. He lived a full life and died at a very old age. There is no reason these days to let the "C" word ruin our lives.

Hon, keep breathing, relax and be there for your child, and keep your doctor appointments. If your doctor doesn't suggest it, ask for a referral to a surgeon for a second opinion. Tell her you want to get this problem resolved. Feel free to get opinions from other doctors if you need it.

Sometimes a more difficult issue is in getting prescribed enough thyroid hormone. So you will need to read up about thyroid hormone replacement and educate yourself. Always we need to educate our own selves about our bodies. It helps us make decisions.

But most certainly, hon, take a bath in warm water with two cups of Epsom salts dissolved in it, because it will help your body relax so you can think clearly.

Love,
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~ YaYa ~

Last edited by YaYagirl; 09-12-2018 at 08:01 AM.

 
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Old 09-12-2018, 12:13 PM   #3
JohnR41
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Re: Thyroid confusion! Please advise!

Quote:
erb0225,

.....If this were to turn out to be malignant, would it be too late if it has indeed been cancer all of these years since 2015?
No, not at all, because thyroid cancer is one of the slowest growing cancers in the body. In fact when it is discovered in elderly people it's often best to just leave it alone because hardly anyone ever dies from thyroid cancer. And, remember, that is due to it being extremely slow growing. For younger people like yourself, that's the reason there is a high survival rate.

When I went for a checkup a couple of months ago, my doctor said my thyroid felt hard and I didn't know what to think. She didn't recommend any further testing, so I just left. After I got home I started to worry about it so I called the office and talked to the nurse. I asked her why there wouldn't be any testing like ultra sound. So she went to ask the doctor about it and when she came back she said, "The doctor said it's not cancer." So, for the time being, I'm choosing to believe her and not worry.
Somehow she knows by the questions she asked me during the exam and by the results of my blood test.

Last edited by JohnR41; 09-12-2018 at 01:00 PM.

 
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