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    Old 02-08-2005, 06:14 PM   #1
    indo007
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    Exclamation Diagnosed with thyroid cancer half an hour ago

    after getting my biopsy results from last week. Never thought i could have cancer at the age of 24 and didnt predict my life would take a u-turn. I still have to see the specialist later on this week but am only wondering what my life is going to turn out to be with this cancer.

    i dont have much details about it aside form the fact its a thyroid cancer and should know everything in detail later on when i have the appointment with the specialist. Any young thyroid cancer patients?? how is life and is it close to normal??

    All of a sudden i have to rethink my life long goals, what a shock

     
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    Old 02-08-2005, 07:45 PM   #2
    syndyhall
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    Re: Diagnosed with thyroid cancer half an hour ago

    HI, I am 25 and I had a brain tumor. it was not cancer but I had radiation on it, due to it growing again. They didnt get all of it, but I knolw what you mean. I am sure you will be just fine. I had to quit a very good job and all. The operation was last april and they have been seeing me every 3 months. I will be thinking of you and praying everything goes well. Cindy

     
    Old 02-08-2005, 07:57 PM   #3
    SamQKitty
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    Re: Diagnosed with thyroid cancer half an hour ago

    Indo,
    Of course this is a shock, especially at your age, but don't start rethinking your lifetime goals just yet...you may not have to make any changes at all!

    The majority of thyroid cancers are highly curable. Yes, you will have to go through some stuff...a period of treatment, possible surgery, possible radiation, etc., but the cure rate for the two most common types of thyroid cancer (papillary and follicular) is nearly 95%.

    So, first thing you need to do is get all the info you can...what type is it? Is it confined to the thyroid gland or has it spread? What is the suggested course of treatment, etc. Then, armed with that knowledge, you can do a search and get some more information.

    And, even if it turns out to be a kind that doesn't have quite so high a cure rate, just remember that when they give percentage cure rates, it means that SOME people do survive, and why shouldn't it be you?!

    Do post when you have more info, and do believe that you can get through this!

    ((((hugs))))

    Ruth

     
    Old 02-10-2005, 01:54 PM   #4
    hilery79
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    Re: Diagnosed with thyroid cancer half an hour ago

    Hi Indo,
    I was diagnosed with follicular thyroid cancer about a year and a half ago at age 23. My Dr. just happened to feel around on my neck during a physical and felt a nodule on my thyroid. I went in for a scan...found out it was a cold nodule and then had a fna biopsy which turned out "suspicious". I didn't find out it was malignant until they removed half of my thyroid. I then went in for a 2nd surgery to have the rest of my thyroid removed. I've had 2 Radioactive Iodine treatments since then(to kill residual thyroid tissue in my neck) and I'm now doing well. I have to have annual scans and blood work done every 3 months or so, but I'm back to my "normal" life again. Honestly, the hardest part was adjusting to not having a thyroid. I've had a difficult time finding the right dose of synthroid(thyroid hormone replacement), but I'm thankful that thyroid cancer is so treatable.

    Like Ruth said, thyroid cancer is HIGHLY curable. I know how scary it is to hear you have cancer - no matter what type of cancer it is. It will get easier once it sinks in that this type of cancer is so treatable. Once your thyroid is removed, they will probably give you a Radioactive Iodine treatment. This treatment is highly effective and has little to no side effects. Even if your cancer has spread...this treatment will "kill" it no matter where it is in your body.

    I would be happy to answer any questions you have. I would also recommend posting over on the "thyroid" board. There are a few others on there who have gone through this, too.

    (((hugs)))
    Hilery

     
    Old 02-11-2005, 07:34 PM   #5
    indo007
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    Re: Diagnosed with thyroid cancer half an hour ago

    thanks everyone for their kind words, really appreciate them.

    Hillery and anyone else who had the thyroid removed thanks again for posting but what i wonder is:

    I've already had my lymph node removed but now will get the whole thyroid removed soon (waiting to make an appointment with a surgeon). The lymph node healed relatively quickly and was only a 30 minute surgery under a local anesthetic. However, what i wonder is how long will the surgery to remove the thyroid be and will i be under local or general anesthetic? furthermore how many days if any will i need to be at the hospital??
    finally, how was your surgery and also how is life under the thyroid hormone you'll be taking for the rest of your lives?

     
    Old 02-11-2005, 08:48 PM   #6
    hilery79
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    Re: Diagnosed with thyroid cancer half an hour ago

    Indo,
    Do you know what type of thyroid cancer it is? I'm assuming it is probably papillary since it was in your lymph node. More than 80% of all thyroid cancers are either papillary, follicular or a mixture of both. Both of these types are almost 100% curable.

    You'll most likely be under general anesthesia. I had 2 surgeries because they didn't know if my tumor was malignant or not before my first surgery. I went back 2 weeks later to have the rest of my thyroid removed(once the path report came back saying it was malignant). My first surgery went really well. I didn't even have to stay overnight in the hospital. My surgery was at 8am and I was able to go home around 5pm. The surgery itself doesn't take long at all...I spent most of the day in recovery. I did experience some nausua and breathing problems post-surgery due to the anesthesia. I was pretty sore for 3 or 4 days and it was hard to cough, swallow and turn my neck. My 2nd surgery was a little bit worse since I was still recovering from the 1st one. I had to stay in the hospital for 2 days the 2nd time. Again, I was sore for a few days, but I was given pain medication which helped a lot. Overall, neither surgery was as bad as I expected. I think most people have to stay 2-3 days in the hospital following a total thyroidectomy. It depends on your surgeon. Do you know if they are going to do a neck dissection(removal of the lymph nodes) as well? I didn't have to have this done, but it isn't uncommon for them to do this, too.

    As for life with Synthroid...
    I've had a difficult time adjusting to it. I've been on several different doses so far and I'm still having a lot of hyper symptoms(fast heart rate, feeling anxious, weight loss, etc.). The goal of treatment with synthroid(for thyroid CA patients) is to suppress your TSH, so most post thyroid cancer patients have to be a little hyperthyroid. From what I've read, most people don't have as much trouble as I am adjusting to this med. My Rad. Onc. told me most of his patients feel well again within 6-8 weeks after starting synthroid.

    I wish you the best of luck. I know you'll be just fine. Make sure your surgeon is experienced...ask lots of questions.
    I'll keep you in my prayers
    Hilery

    Last edited by hilery79; 02-11-2005 at 08:49 PM.

     
    Old 02-23-2005, 12:09 PM   #7
    Benzi
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    Re: Diagnosed with thyroid cancer half an hour ago

    I had thyroid cancer at age 31 and am now 47. It was a easy surgery for me, in the hospital 2 nights and back to work in less than a week. My scar is now invisable so don't let that worry you too much. I felt sooooo much better after the surgery than I did before it it was like a miracle. I think you are lucky to get a TT instead of a partial I see alot of people having to go back to have the rest removed anyway. Be sure to get copies of all labs, path reports ect...You will need them later, there are several of us over on the thyroid boards. Come on over!

     
    Old 02-23-2005, 11:39 PM   #8
    xxbrowns
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    Re: Diagnosed with thyroid cancer half an hour ago

    Indo,

    I consider myself young at the age of 39. In May of '04, I went to see my ob for my initial visit to her due to being pregnant. She felt my neck, thought it was swollen a bit, sent me for an US. Long story short....I was diagnosed with papillary cancer. I had the surgery when I was 18 weeks pregnant and now have a 3 month old healthy baby boy (my 4th child). I have a lot to live for and this cancer is not going to stop me. Since I couldn't be treated at that time due to being pregnant, I am now off my synthroid in preparation for the RAI (radioactive iodine) treatment. The surgery, for me, went better than expected. Looking back, I don't know how I didn't see how swollen my thyroid (neck region) on the left side was. My tumor was growing up towards my ear, so my scar runs along across my throat and up towards my left ear. I had a neck dissection and about 12 or so lymph nodes were positive for the cancer. My surgeon said that if it does spread to the lymph nodes, the prognosis wasn't any worse, just recurrence is at a higher percentage. My surgery was to last 7 hours, it only lasted 5. I had to stay in the hospital as long as my drainage tubes were still in, which was 2 nights. The surgery wasn't bad for me, just the fact that I was there, dealing with something I just found out and missing my kids were the hardest thing to me.

    Like a poster said earlier, don't start changing your goals/plans/dreams in life. You must go on and don't let the cancer change anything!! I remember shortly after being diagnosed, I was watching a newscast where I forget who it was they were interviewing, but he was diagnosed with some type of incurable disease and the interviewer asked how do you go on with your daily life..and the man with the disease replied that it's not what you do at the time of your diagnosis, it's what you do after you've been diagnosed is what matters most. I know it takes time for everything to sink in. Also, for me, I was at a healing mass where a woman stood up and she had a testimony for the person who was praying over people..(unfortunaley rules prohibit me to share the man's name). She was diagnosed with some type of stage IV cancer that originated in her stomach and had spread...the last thing she said is that you have to be proactive in your treatment. You just can't sit there and let it take over you. Of course, she is completely healed of her cancer. My endo said it's more of a bother than a threat.

    Let us know what your plan of treatment is and your diagnosis. My prayers are with you and God will sustain you through it all. Believe me, I look back and can't believe how I've made it through so far. You have to keep on going and don't let it get you!!! Take care and God Bless You!

     
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