Recently diagnosed with Uterine Serous Carcinoma

MSNik

You dont want to mix supplements with chemo...and supplements and natural meds are not going to guarantee that the cancer wont spread.

Have her listen to her doctor. If you are that unsure, get a second opinion from another oncologist ...but dont get advice on the net about treating cancer. There is a "snake oil salesman" on every corner promising you results..the results should only be offered from a medical professional.

__________________
RRMS- dx 05

quincy

I have a friend who went through the same process...while chemo was uncomfortable at times, it was successful for her. The treatment wasn't bad. Plus there are meds to help with nausea. She did not lose any hair or have any extreme side effects.

I would skip the naturopathic in lieu of chemo as first-line treatment. Then what if it doesn't work?

Rogue cells are why they do the chemo treatment. In truth, it would scare me as well.

q

sheila3

Hi Thank you for your reply. Unfortunately there's conflicting reports in the medical community. I've read that amifostine is given during chemo and or during radiation and that it's a very powerful anti-oxidant, yet some recommend against regular anti-oxidants during chemo. She's seen 2 oncologists and 1 was don't take them during and the other was more neutral about them. I've read on some cancer forums that there are people who have done the standard protocol and they ended up with recurrences and others that haven't and others that have passed away. I've also read about those that have done integrative and have had positive results and others that have had recurrences or passed away. The decision would be much easier if we knew that cancer was still present in her but we don't and unfortunately it appears that there's no definitive test on whether they got it all or not with the surgery. Thank you again for your help.

sheila3

Thank you for your reply. Some people do have less serious side effects and are able to handle it and have better outcomes. Unfortunately we don't know until we're in it. Thank you so much for your help.

Maddy424

Hello, White female 62 diagnosed with UPSC in 2018. It was stage1. Had a full Laparoscopic hysterectomy, 3 rounds of chemo and 4 brachytherapy radiation treatments. All doctors seem to feel everything was OK, my ca-125 fell to 6. When the covid nonsense started in 4/2019 Penn Medicine called and cancelled my follow-up apt due to covid issues. Why a covid patient would see a gynecologist is beyond me, but that's what happened. About 4 months later I ordered my own ca-125 test through another clinic (thought, oh well, might as well check) and got result ca-50. Called Penn Medicine and it was agreed my cancer had returned. Once I started another round of chemo ca went up to around 230. Had six rounds of chemo including Avastin, Taxol and cisplatin. The result was c-125 went up to 600 and eventually down but up again nearly exactly when I started at ca-230. Am now on Avastin maintenance which I'm starting to hate. At the end the chemo wasn't working.

I'm arranging for a 2nd opinion at Dana Farber in Boston which specializes in rare cancers. Interesting, have discovered vitamins and been taking high dosages of D3, zinc, C, and believe they are helping. But, it's hard to tell. Trying to keep my stress level down, but am another one who had an abusive childhood and excessive stress through life. I've read UPSC posts mentioning the stress "issue" as well. Studies have not shown any conclusive reason why UPSC suddenly appears. I was a coffee addict but never smoked, rarely drank alcohol, exercise addict and vegetarian. My sister who has done all of these: cigar smoking, alcohol, red meat, etc. no cancer. My recurrence came back fairly quickly, have no idea why and neither do my doctors. At this point, my instincts are pointing to the vitamins, especially D3. Anyway, that's my UPSC story.