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malignant neurofibroma

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Old 03-21-2003, 08:04 PM   #1
Join Date: Mar 2003
Location: Knoxville, Tn USA
Posts: 3
Chriztina HB User
Post malignant neurofibroma

Need info!! I am 27 yrs old & recently had a tumor removed from the paraspinal area (T-10,T-11) The margins were fine-the inside was yucky. The pathology report reads like this: malignant peripheral nerve sheath tumor, high grade. the tumor measured 6.5x5.5x4.0 cm -can you say ouch!! I am looking for any info-I start chemo in 2 weeks..MAID I have been told is what I will get-don't have a clue!!! Any insight would be greatly appreciated!!! I can't find any cases like mine anywhere. Looked on sarcoma websites & Neurofibroma websites. Please let me know if there is some where else I can look.
Thanks!!! :-)


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