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    Old 02-25-2009, 04:09 PM   #1
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    Radiation pneumonitis

    Hello, I'm looking for advice, support, experience with radiation pneumonitis.

    My story: 52yr old undergoing treatment for reoccurrance of breast cancer originally treated in Jan 07.
    I went to ER on 8-3-08 with severe SOB and CT of revealed large (7x5 cm) mass to mediastinum. Underwent 35 IMRT rads and noticed I started coughing midway thru txt plan but no other symptoms and dr not concerned. Rads finished in Oct 08, coughing off and on still. Chemo started in Nov 08 and in Jan 09 I go to ER with SOB, heart rate 136 and low grade fever. They were thinking I had an embolism and did all sorts of testing including heart echo, chest ct, scope of lungs, regular chest rays, EKG, blood work, IV steriods. It took 4 liters of oxygen to bring my sats up to 93%.
    Long story short, everthing "normal" except for changes to lining of lungs consistent with radiation pneumonitis, and double upper and lower lobe pneumonia. After a 6 day hosp stay they sent me home with oxygen and home steroids packet which I have since finished.

    Although I feel better, I can't get my breathing to progress very much. I can do without the oxygen when I'm just in the house but that' about it. Taking the trash to the curb is a VERY slow walk to keep the SOB at bay.
    I keep running low grade (99.3-99.7) temperatures. I'm still on chemo and both my onc and lung drs say this can go on for weeks or months before it resolves, or turn into pulm. fibrosis which is not good. Everything I've read says the same so I know they're on the up and up with me about it and both drs are great. So I keep doing deep breathing exercises, drinking plenty water, taking tylenol when needed and praying I can get over this.

    Anyone else go thru this rads pneumonits?? any advice would be appreciated. Thanks,

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    Old 03-17-2009, 11:47 AM   #2
    Join Date: Feb 2009
    Location: canada
    Posts: 419
    fufu HB Userfufu HB User
    Re: Radiation pneumonitis

    what meds are being used for you treatment?
    it is important that you check out eace medication that is used in your chemo.
    please make sure one of those don't cause pulmonary fibrosis.
    are you or have you been on bleomycin in the past?

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