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10 yr old son with desmoid fibromatosis

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Old 06-20-2013, 10:17 AM   #1
Join Date: Jun 2013
Posts: 1
cmefino85 HB User
10 yr old son with desmoid fibromatosis

Hello everyone,

I'm new to these types of forums but looking for a little bit of support from others that have been in the same situation.

I just got the biopsy results last night for my ten year old son. It is confirmed that he has a desmoid fibromatosis on the right posterior lateral chest wall surrounding the 9th, 10th, and 11th ribs. We are being seen at Johns Hopkins Pediatric Oncology in Baltimore. The next step is to meet with the pediatric surgeon to discuss removal of the tumor and set up the surgery date. I've done as much research on this thing as I can and keep getting discouraged when I read others stories. What's recovery like from the removal of something like this? Are they going to have to remove ribs? Do they replace the ribs with anything else? I'm so confused.

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Old 06-23-2013, 04:53 PM   #2
Join Date: Jan 2011
Location: Syracuse
Posts: 2
syrlisa HB User
Re: 10 yr old son with desmoid fibromatosis

Just want to let you know my mom had a Desmoid tumor the size of a large grapefruit removed from her chest 7 years ago. She is completely healthy now. She goes for scans every year and it is completely gone. Please find comfort in this.

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