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Celiac Disease Message Board

retesting... freaking out


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Old 09-25-2015, 01:02 AM   #1
amanville
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retesting... freaking out

a year ago i finally got fed up with severe health issues and went to my family physician to discuss some options. i told her i thought i could have a gluten issue and she told me that due to my symptoms and family history, she didn't recommend a test because it was almost a guarantee that i had celiac disease and to just not eat gluten. well now I'm in college and need to get proper documentation for my illness and it just so happens i switched to University of Chicago's celiac disease center. issue is, i was never officially tested and so i may need to be tested. because i have been gluten free for almost a year, the test will come back negative unless i go on a gluten challenge. I'm scared because gluten in even the smallest amounts makes me so sick i can't do anything for days. i get violently ill even when someone uses the same colander for gluten free pasta as they did for regular pasta. i can't do the challenge for one cause id be so sick and two i would have to miss classes, but i can't afford not to because of the disability paperwork i need in case i do get sick and have to miss a class. what do i do? I'm scared and far away from my family. I'm in an impossible position and kinda hating my family physician now.

 
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Old 09-25-2015, 11:32 AM   #2
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Re: retesting... freaking out

Welcome to the boards. I'm sorry you are going through this difficulty!

Can you ask your previous physician to just "officially" diagnose you? Put it in a report or something so that it is "properly" documented?

Since she told you that you probably had Celiac, if you explain your situation, perhaps she will accommodate you?

 
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