It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Celiac Disease Message Board

Biopsy positive, Blood negative


Post New Thread   Reply Reply
LinkBack Thread Tools Search this Thread
Old 11-14-2015, 05:11 AM   #1
Allbregra
Newbie
(female)
 
Join Date: Nov 2015
Posts: 5
Allbregra HB User
Biopsy positive, Blood negative

Hello,
I hope this is not a repeat question, but I have not seen a thread with my specific results. 15 years ago my bloodwork was positive for Celiac, but biopsy was negative. Over the years I have not been strictly gluten free but obviously do better on a gluten free diet. Fast forward to now, I just recently had another biopsy which is now positive for Celiac. Because I am on a gluten free (not strict, but I rarely eat it) my bloodwork is negative. My doctor said he can't officially diagnose me without bloodwork, but I thought the biopsy was the gold standard?? He did say to start a strict gluten free diet for a month and he may be able to justify the diagnosis medically if all of my other problems clear up. Does this make sense?? I admit I'm a tough one, and really prefer a diagnosis before I completely alter my life; however I do know the difference between sensitivity and Celiac are different. I guess my worries are that I eat a strict gluten free diet for a year and end up finding my stomach is still tore up and then we go back to looking for another culprit. (I have pre-cancer cells in esophagus and small intestine). Anyone else have this?

 
Reply With Quote
Sponsors Lightbulb
   
Old 11-15-2015, 09:44 PM   #2
SOE
Facilitator
(female)
 
Join Date: Aug 2004
Posts: 2,358
SOE HB UserSOE HB UserSOE HB UserSOE HB UserSOE HB UserSOE HB UserSOE HB User
Re: Biopsy positive,Blood negative

I'm sorry I didn't see this sooner. He really should go by the biopsy which is much more certain than blood tests. Since he said trying going completely gluten free and maybe he could diagnose you that way, I'd say go for it. He's asking for a month? Even if you did it for a year, that's not so long if you look at the big picture. I think you should go ahead and "change your life" and try it because what's the harm? If that's not the answer, then you get to go back to eating those things again.

Welcome to the boards!

Last edited by SOE; 11-15-2015 at 09:49 PM. Reason: Welcome

 
Reply With Quote
Old 11-16-2015, 07:39 AM   #3
Allbregra
Newbie
(female)
 
Join Date: Nov 2015
Posts: 5
Allbregra HB User
Re: Biopsy positive,Blood negative

Thank you! I have gone gluten free and do feel much better. I still have some unresolved issues, but hoping they clear up with time.

 
Reply With Quote
The following user gives a hug of support to Allbregra:
SOE (11-18-2015)
Reply Reply

Similar Threads
Thread Thread Starter Board Replies Last Post
Possible Genital Herpes Outbreak, Negative Blood Test HELP SheJee Herpes 0 08-26-2013 03:21 PM
Blood test is negative modartgraphics Celiac Disease 2 08-03-2013 10:52 PM
Mild dry mouth, negative blood, help! Jocy511 Sjögren's Syndrome 1 11-06-2012 09:52 PM
VEP Positive MRI Negative raden Multiple Sclerosis 13 09-11-2012 09:20 AM
Can there be false negative for pylori for both stool test and biopsy? gangrelia Digestive Disorders 1 03-08-2012 06:29 AM

Tags
biopsy, celiac disease



Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 08:26 PM.



Site owned and operated by HealthBoards.com™
Terms of Use © 1998-2017 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!