It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Celiac Disease Message Board

My daughter's story -- she has celiac

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 03-25-2010, 12:21 PM   #1
Join Date: Feb 2009
Location: Columbia,SC,USA
Posts: 8
victimsdad HB User
My daughter's story -- she has celiac

Hey all

I just decided to reconnect with these message boards. My daughter had a constant 24/7 headache for 18 months. She never quit college, graduated top of her class. she is determined to live her life without burdening others. My point in writing...her cause is treatable!

My daughter has CELIAC DISEASE. It is an autoimmune disease where your body attacks the small intestine whenever you eat ANYTHING containing wheat barley or rye. Even in the smallest amounts.

She is recovering slowly, average is 18 - 24 months. Her headache only returns to full strength when she is exposed to gluten.

Many of you may be suffering from the same thing. The only treatment is to avoid eating, washing, cooking, exposing yourself to anything containing gluten! We spent 25k+ looking for a cause and cure. I was convinced it was lyme disease. Mayo Clinic diagnosed her. Our family doctor, whom we have a great relationship with, has 2 other celiac patients and did not recognize the problem. The test to tell your doctor to use is a TTG, Trans-Titer-Glutenase. Cost, less than $100.00. If positive, then it is followed by an endoscopy to confirm it.

If your headache was not caused by an accident, PLEASE refer to Celiac sites and check the symptoms against yours. You may be able to escape the headache pain after all.

Hope this helps someone out there.

Last edited by mod-anon; 03-26-2010 at 07:49 PM. Reason: starting a new thread with this post.

Sponsors Lightbulb
Old 03-27-2010, 04:15 PM   #2
Join Date: Jul 2008
Location: palmer, alaska, usa
Posts: 73
alaskawild HB User
Re: My daughter's story -- she has celiac

I also have celiacs. I spent about $10,000 trying to figure out what was wrong. Doctors never figured it out. I asked for the celiac test after doing research. A few of my relatives also have celiac symptoms and their doctors literally laughed at them when they asked for the test and didn't give it to them. One of them went off gluten without a positive diagnosis and is doing better. My niece continues to let her daughter eat gluten even though a skin test showed an allergy. So frustrating that she doesn't listen to me. I worry about her future. Glad you figured out what was wrong with your daughter.

If the 3 million americans walking around with celiacs knew they had the disease and even more people being gluten sensitive, we would probably be a healthier nation.


Last edited by Administrator; 03-27-2010 at 08:36 PM. Reason: removed political comments

Old 03-28-2010, 11:40 PM   #3
Join Date: Mar 2010
Posts: 3
kjfisher HB User
Re: My daughter's story -- she has celiac

Thanks for this information, I am going to check it out. I have migraines daily, I rarely go a day without one. It is worth trying to avoid gluten to see if it helps.

Old 04-02-2010, 05:16 AM   #4
Junior Member
Join Date: Mar 2010
Posts: 11
hunnybunn54 HB User
Re: My daughter's story -- she has celiac

Thank you for this post. I haave been suffering from severe headaches since I was really little and I get them a cuople of times o week. I have been to a neurologist but they can't figure out what is triggering them. this gives me something to talk about.

Old 04-02-2010, 05:50 AM   #5
Join Date: Mar 2010
Location: ca
Posts: 64
model1979 HB User
Re: My daughter's story -- she has celiac

i am sorry for ur daughter. i have severe IBS with gluten issues as well. the only i was able to rid the symptoms was to really really cut down on all carbs and sugars. i too used to suffer from headaches and found this really helped me. i also added more protein and healthy fats to my diet. give it a try. it took about 4 weeks to kick in.

again, sometimes docs think they know everything. until they realize we are all NOT textbook cases. good luck

Old 04-02-2010, 06:32 AM   #6
Junior Member
Join Date: Mar 2010
Posts: 11
hunnybunn54 HB User
Re: My daughter's story -- she has celiac

I just found out today of family history of celiac diesease so I am going to demand she is tested for it at her appointment today. Thank you so much.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Looking for someone with a similar story Babs659 Sjögren's Syndrome 13 07-14-2009 05:35 PM
Diagnose my daughter btr6243 Digestive Disorders 13 04-21-2009 07:09 PM
Hypoglycemia question about my 4yr old daughter Please claflamme Hypoglycemia 20 07-02-2008 08:13 PM
This mom needs help with teen daughter! needaplan Family & Friends of the Mentally Ill 4 03-31-2007 01:00 PM
Have to share this story - Nexium hambo_12 Acid Reflux / GERD 10 01-05-2007 07:29 PM
Encopresis my daughter "HELP" (LUKA and others) tnmom03 Children's Health 3 08-30-2006 10:11 AM
Regarding Celiac and Bowel Healing gsmom Bowel Disorders 8 07-21-2006 08:56 AM
Newly diagnosed with Autoimmune inflammation of the bowel disease(daughter) armymommy4 Immune Disorders 3 11-03-2004 01:34 PM
IBS success story! Todd593 Irritable Bowel Syndrome (IBS) 0 06-15-2003 08:37 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 11:08 AM.

Site owned and operated by™
© 1998-2018™ All rights reserved.
Do not copy or redistribute in any form!