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  • Is it possible that cerebral palsy gets worse with aging?

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    Old 01-06-2017, 07:51 PM   #1
    GoblinJr's Avatar
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    Is it possible that cerebral palsy gets worse with aging?

    I am in my late 40's diagnosed with spastic cerebral palsy with triplegia and paraparesia and now a form of arthritis, and I have been having an increased incidence in falling inside and outside. I can get around better in the house, using furniture to aid myself in getting up, but walking long distances outside in the elements (cold or wind, in particular) or on uneven surfaces is difficult without the aid of a cane. I am experiencing fatigue and a need to sit down and rest completing simple tasks that used to come more easily in the past. I have increased back, neck, knee pain, and bunions due to an altered gait which was somewhat corrected with surgery via a PM&R physician/surgeon as a youngster.

    My family physician is not much help, albeit prescribing baclofen and pain medications in varying dosages. Is anyone else experiencing this problem?

    Getting to my second question, "Has anyone else experienced what I would term as "lightening bolt" sensations when relaxing in a chair, bed, or couch?" I had this sensation when I was younger, but not as frequently it would seem, or perhaps I'm more aware of it because of the above mentioned problems.

    Any comments or suggestions appreciated.

    Last edited by GoblinJr; 02-04-2017 at 03:38 PM.

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    Old 02-23-2017, 07:21 PM   #2
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    Re: Is it possible that cerebral palsy gets worse with aging?

    I am in my mid 40's with cerebral palsy, hemiplegia and ataxia. Around the age of 40 I started having increasing difficulties. I used to walk independently but now need assistance. I read that CP does not get worse. If one was to go with the flow of that thought, my opinion is that we see increased difficulties because our bodies have been fighting and struggling all these years against CP and are declining as a result.

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    Old 05-20-2017, 08:31 AM   #3
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    Re: Is it possible that cerebral palsy gets worse with aging?

    Yes, I'm now 44 and had the same issues -I say had, because I got a virus and ended up losing 30 pds -I wasn't very big to begin with 132 pds but I was 5'0 -now at 100 pds I am walking like I did in my 20's. Nobody ever thought to mention my weight because I didn't look that bad but I had almost stopped walking and was using my wheelchair way too much.

    That said, I still have bad days and I have arthritis in my hip that I use magnetic bracelets/anklets for -I am a firm believer in magnets and have used them for pain for 20 plus years.

    Our organs work 3 times harder than "normal" with every step -I don't care what doctors say, that is brutal on your body -I wanted to do botox to loosen things up, but regulations won't let me get enough to do anything. Don't count on doctors to know much about what you go through, find your own path even if it's unconventional

    Last edited by Moderator1; 05-20-2017 at 10:20 AM.

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    aging, balance, cerebral palsy, legs, neurological symptoms

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