It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Cerebral Palsy Message Board

Lost the ability to walk. Not getting any better...

Post New Thread   Reply Reply
LinkBack Thread Tools Search this Thread
Old 07-13-2017, 12:37 PM   #1
Join Date: Jul 2017
Posts: 2
lnaj447 HB User
Lost the ability to walk. Not getting any better...

I'm gonna start by explaining when exactly I lost the ability to walk.

I started walking when I was two, and I had to wear braces to do that much. I suffer from left hemiplegia CP, so my right leg and arm are effected. I've always thought that my case was mild. I was also born with both of my feet being clubbed, but they did manage to correct the left one. The right one, not so much. It kept turning back inward despite multiple attempts made to correct it, which I guess is because of the CP.

What happened, is that I would always either walk on my toes, or on the side of my foot. (practically on my pinkie toe.)When I was about 9 years old, it started hurting to walk on that foot. My family doctor suggested using a wheelchair for long distances.

My parents weren't satisfied with this alone, and went on a massive search to find a solution to stop the pain. It eventually landed us seeing this doctor who specialized in fixators when I was 11. He proposed that I go through limb lengthening surgery, and we decided to try it.

I went through with the surgery, and wore the fixator for I think 3-6 months. I was told to go through therapy to regain muscle tone, which I did do...but I only improved to a certain degree. I still had a terrible limp and could only walk shorter distances than before, which was kind of worse than where I'd started.

I stayed in a wheelchair most of the time after that, because it still hurt to walk and my balance was absolutely awful. (And even worse, my leg wouldn't straighten out all the way anymore. )

So fast forward to last year, when I was 24. We decided to get a second opinion from a different doctor, because my toe had turned in so much that it was practically sitting underneath the toe next to it. It was difficult to find shoes that fit and didn't cause me pain. What he ended up doing was releasing a tendon and fusing my big toe, and felt that maybe I'd even be able to walk again.

Where I am now, I have good days and bad days. Sometimes I can walk short distances, but my balance is still very bad and I risk falling by even standing up. It's about the same as it was before, and now I'm pretty worried that I'll never be able to walk like I used to as a kid. I don't know what to do. It just seems like I won't improve past what I've accomplished. I feel like maybe I didn't do enough, sometimes, but I read that a percentage of people with CP just lose the ability to walk as they get older. I just really want to know why I can't improve.

I was also diagnosed with Lupus a few years ago, and it's going to go to my joints as I get older. I may lose the ability to walk altogether in that case, so it makes me wonder if I should stop trying to walk at all.

Last edited by Administrator; 07-13-2017 at 01:40 PM.

Reply With Quote
Sponsors Lightbulb
Reply Reply

Similar Threads
Thread Thread Starter Board Replies Last Post
Scared I'll never walk again spv2008 Foot & Ankle Problems 15 08-14-2017 12:14 PM
Cortisone Shot for plantar fasciitis and now I can't walk nizmoz Foot & Ankle Problems 1 07-27-2017 01:32 AM
Elevated Enzymes & Fatty Liver on US. Lost My Mind & Ended Up in the Hospital Heather8035 Liver & Pancreas Disorders 6 07-10-2017 06:52 PM
have Arachnoiditis & can't walk on my foot! gmak Arachnoiditis 4 10-20-2013 06:50 AM
Does your back problem affect your ability to walk? Kaji Back Problems 5 12-22-2012 10:41 AM

cerebral palsy

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 02:55 AM.

Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2017 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!