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TXRed02 08-08-2008 08:31 PM

New Member--Question for Adults with CP about Botox
 
Hello All,

I am 34 years old and I was born 2 months premature and as a result have spastic diplegia CP, however I only received this diagnosis 3 months ago.

Growing up none of my specialist would ever put a name to my disability, they would only say that my mobility from the waist down did not develop and as a result I had difficulty walking. My treatment considsted of hamstring lenghtening and a lot of PT. Due to my frustrating experiences with specialist and lack of answers, I refused to see any more specialist as a teen.

Over the past couple of years I have experienced an increasing level of pain, fatigue, and reduction of mobility. I finally saw a specialist 3 months ago and received a diagnosis and found out that Botox could be used to help lessen the spactisity in my legs.

Since my diagnosis I have done a ton of reading about CP. After all of these years so many things finally make sense!

I have not found much information about Botox therapy in adults. Could any of you point me to any web sources on the subject. Or prehaps share your experiences?

I have been on a low dose of Baclofen over the past 2 months and it has helped. I have not seen any discussion of treatment using a combination of Botox and Baclofen. Is this done?

Thanks so much!

open_the_door 08-08-2008 09:22 PM

Re: New Member--Question for Adults with CP about Botox
 
[QUOTE=TXRed02;3682011]Hello All,

I am 34 years old and I was born 2 months premature and as a result have spastic diplegia CP, however I only received this diagnosis 3 months ago.

Growing up none of my specialist would ever put a name to my disability, they would only say that my mobility from the waist down did not develop and as a result I had difficulty walking. My treatment considsted of hamstring lenghtening and a lot of PT. Due to my frustrating experiences with specialist and lack of answers, I refused to see any more specialist as a teen.

Over the past couple of years I have experienced an increasing level of pain, fatigue, and reduction of mobility. I finally saw a specialist 3 months ago and received a diagnosis and found out that Botox could be used to help lessen the spactisity in my legs.

Since my diagnosis I have done a ton of reading about CP. After all of these years so many things finally make sense!

I have not found much information about Botox therapy in adults. Could any of you point me to any web sources on the subject. Or prehaps share your experiences?

I have been on a low dose of Baclofen over the past 2 months and it has helped. I have not seen any discussion of treatment using a combination of Botox and Baclofen. Is this done?

Thanks so much![/QUOTE]

I can't believe that you have just now been diagnosed with CP. My son has CP Spastic Diplegia, and he gets Baclofen (10 mg. a day). He also gets botox injections every 3 months. It is helping him, but he has alot of high muscle tone in his legs, and spasticity. We will try to go 4 months now without the botox, and the neurologist will this time put some botox in his adductors. I'm really nots sure about botox in adults. Since you have never had it done, it may work. I have heard that over time, the body no longer responds to it, that is why it is good to have 3-6 month intervals.


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