It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Cerebral Palsy Message Board

Spastic Diaplegia CP options, thoughts and advice.

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 10-03-2011, 10:03 PM   #1
Join Date: Oct 2011
Location: Granite Falls
Posts: 2
ashleyns HB User
Spastic Diaplegia CP options, thoughts and advice.

I have been looking into options for surgeries that can help with Spastic Diaplegia. I am 22 years old and have started having some problems and other things that have made me want to try to see if there are any options for help. I have been reading about SDR and seen some pretty amazing things come out of it. I had a experimental surgery when I was 12, but I honestly think it made things worse for me. I am pretty sure it was the tendon lengthening surgery, but I don't know for sure because the only person that would know for sure can't remember. All I know is I have 3 scars on each leg to remind me about it.

I really just want to know if anyone my age or around my age has had SDR or any other surgeries and their honest opinion about it. I also would like to know of some good doctors in NC are because that is where I am from. I seen Dr. Koman at Wake Forest Baptist Hospital when I was younger but I do believe I am too old to see him now.

Any thoughts, opinions, or advice is welcome!! I am just really wanting some information from people who experience this!

Sponsors Lightbulb
Old 11-07-2011, 05:14 PM   #2
Senior Member
Join Date: Oct 2006
Location: Winston-Salem
Posts: 175
nwmom HB User
Re: Spastic Diaplegia CP options, thoughts and advice.

Hi there--they have a new Dr. at Wake Forest Baptisst Health where Dr. Komen is who does SDR. He trained with Dr. Park in St. Louis (who does a minimally invasive, highly successful SDR technique). I asked Dr. Park on ******** about the Dr. here, and he said he highly recommends him. Good luck!

Old 02-15-2012, 02:14 AM   #3
Junior Member
Aviaja's Avatar
Join Date: Oct 2010
Location: Europe
Posts: 20
Aviaja HB User
Re: Spastic Diaplegia CP options, thoughts and advice.


I'm really sorry to hear that your CP is getting worse, also because of your young age, it also makes me think - when looking back at your medical history - that perhaps surgery should be a last resort for you. My advice for you, would be to try excercise yourself, go to the gym, lift weights, start jogging and get a physio therapist.

I have CP diplegia myself and 6 years ago, i was in the same situation as you. My cp was getting a lot worse, i was really sore, when i tilted my head forward when sitting down, i could feel it all the way down my spine and i would get so nausious, because i was so tight in my body. i could barely tie my own shoelaces, even when sitting down, because my muscles was getting so weak, that i could barely lean forward, and staying there long enough to tie my shoe, was a serious struggle. I couldn't sit up for very long, because of a weak back, and i could barely take a step up for example on the bus or subway. It was bad...

Then i started jogging, lifting weights, during physiotherapy. I lost 16 kgs, i run 5 km faster than average, faster than my friends, and i can compete with other "normal" people who are also in great shape. My life in general is so much easier, i am no longer chasing my next nap, now i'm chasing goals, setting new ones, living life.

My advice to anyone, would be to always try something natural...first.
Let me know what you think.

Take care

The Following User Says Thank You to Aviaja For This Useful Post:
lovingit (05-24-2012)
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
15 month old baby girl diagnosed with spastic quadriplegia! shannon48183 Cerebral Palsy 2 11-07-2010 03:25 PM
what type of mri do you have done when you have spastic diplegia miguel67 Cerebral Palsy 2 10-06-2010 02:01 AM
Adult Diagnosis of Spastic Diplegia ArtChick Cerebral Palsy 10 09-14-2008 06:45 PM
Spastic Quadriplegia - high tone, seizures VivG23 Cerebral Palsy 8 08-21-2007 04:31 PM
spastic quadriplegia levi'smum Cerebral Palsy 11 03-21-2007 04:37 PM
Our little boy - Mild Spastic Diplegia Evans_Dad Cerebral Palsy 8 04-30-2006 04:00 AM
my little boy has mild spastic diplegia connersmummy Cerebral Palsy 23 11-21-2005 09:54 AM
My son is 2 and has spastic quadriplegia spngbobsmom Cerebral Palsy 12 01-06-2005 10:55 AM
Ortho surgeries/spastic clubfoot in adulthood prisc1125 Cerebral Palsy 0 03-27-2003 06:55 PM
Spastic Diplegia - Botox for Adults? Rafael R. S. Silva Cerebral Palsy 2 12-31-2000 04:10 AM

adult, cerebral palsy, north carolina, selective dorsal rhizotomy, spastic diplegia

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 09:49 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!