13 yr old daughter vomiting and pain for 6 weeks

SAHIndiana

I need help...Im really concerned. My 13 yr old daughter has been vomiting with pain for six weeks. Six weeks ago my daughter started vomiting the day after she spent an entire day at an amusement park riding rollercoasters. We thought she was either coming down with the flu or was nauseated after riding so much. One week later she was no better, vomiting constantly after eating and drinking and was admitted to the hospital by her pediatrician to give her IV fluids and to check for other problems. Blood tests, urine test, and abdominal CT showed normal. Something was said about dialated bile ducts, but further tests showed no problems. My daughter's symptoms seem to become more intense, vomiting after eating or drinking, constant hiccups where vomit or bile come up into her mouth, upper abdominal pain that started on the right side, but seem to be across the entire upper area at this time with pain going into the lower back and in the tops of her legs. She also started having severe headaches with this as well as terrible constipation and sometimes a rash across her cheeks that feel very hot. She has had no fever and no diarreah. Her doctor referred her to Riley Childrens Hospital/IU for GI specialists to check her out. She was given IV fluids and had numerous test ran, Head CT, Abdominal Xray, EKG, Upper GI, Liquid Gastric Emptying, Ultrasound on Liver, Pancreas, and Gall bladder, more blood tests and urine tests. Once again nothing was found. We left Riley Hospital and came back home where she continues to feel bad (having vomiting, nausea and pain 24 hours a day) and goes into what seems like attacks....severe pain in upper abdomen, lower back, migraine headache and pain in the upperlegs. The pain is so intense you cant even touch her of help her. No medications seem to help with pain and the dr's dont want to use narcotics. So now we are seeing the GI specialist that is part time in our area....she ran a couple more tests, blood, hida scan, upper endoscopy and found very little....biopsy showed epstein barr (but they cannot say how long ago this could have occurred), some but very little gastritis and esophagitis (sorry for the misspellings). But basically no real answers to the problem. This doctor started my daughter on some new meds to hopefully help. This was no help either, my daughter was still sick, no better. I had been monitoring everything my daughter was vomiting and I noticed that food she had eaten hours before or even the day before was still being vomited hours later. However sometimes she would feel like she needed to vomit right after eating and would empty her entire stomach. She also has terrible constipation, very small, hard, dark pebble like stools and needs enimas frequently just to be able to go at all. I shared this with her doctor who feels like vomiting "old food" is a clue and feels like she does have delayed gastric emptying (oddly enough, even with all the tests that were performed, no one ordered a solid gastric emptying test). She now feels like my daughter has post viral gastro paresis with visceral hypersensitivity (once again sorry for the misspellings) and started meds to treat this and removed all solids from my daughters diet.....well 2 weeks later no change....i just dont know what to do....she said she could be like this for a while. Are we on the right track or are they missing something? I keep feeling like it is something else. My daughter has always been very healthy and very active and now she is nearly home bound. Anyone have anything to share???? Please help!!!