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    Old 07-20-2005, 10:34 AM   #1
    krismomof3boys
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    Unhappy Help for my 2year old son who isnt growing

    When my son was born he was ok for the first 3months after that I couldnt
    remember what sleep was he screamed in pain for hours on end I would massage his hard swollen tummy. He has had aprox 5 normal bowl movements in his short life otherwise it is diarhea What fun, you probubly won't belive he turns 2next month with his 20pounds and 30inches stature
    people ask all the time if he just had his first birthday he is so tiny I dont know what to do. The doctors keep running tests on him. I have taken him to 4 different pediatritions now becouse it gets more and more stressful to take him have them say all the test are ok and look at me like I am doing somthing wrong. He eats constantly 1 eggo or bowl of cereal for breakfast by 10am he wants a snack usually 3 slices of cheese for lunch he eats 1 whole sandwich a handfull of cheese its and a package of fruit snacks and even more at dinner. He is spilling protien in his urine and they dont know why but so far thats all they can find. He also had very bad projectile vomiting as an infant and at 10 months I stoped breastfeeding on doctors orders and put him on nutramagin, it did no good. Please help !!!!!!!!!!!!!!
    He is so little!!!!!! its not a milk allergie or wheat!!!!!!!!!!!!1

     
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    Old 07-20-2005, 11:37 AM   #2
    Ratatosk
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    Re: Help for my 2year old son who isnt growing

    Has your child been tested for cystic fibrosis? DS was diagnosed at birth due to a bowel obstruction; however a number of people aren't diagnosed until they are older due to failure to thrive. Without digestive enzymes, my child would have lots of loose, somewhat greasy stools.

     
    Old 07-26-2005, 08:56 PM   #3
    catndon
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    Question Re: Help for my 2year old son who isnt growing

    My son is almost 10 years and he has never hit a growing spurt. He only stands 4 foot 1 when his 9 year old brother stands 4 foot 4. I asked the doctor but he said that he is just going to be little. I dont know how to even help him when the other kids make fun of him when all the other 4th grades tower over him. If anyone has anything please help

     
    Old 07-27-2005, 09:38 AM   #4
    valleygurl
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    Re: Help for my 2year old son who isnt growing

    Quote:
    Originally Posted by krismomof3boys
    When my son was born he was ok for the first 3months after that I couldnt
    remember what sleep was he screamed in pain for hours on end I would massage his hard swollen tummy. He has had aprox 5 normal bowl movements in his short life otherwise it is diarhea What fun, you probubly won't belive he turns 2next month with his 20pounds and 30inches stature
    people ask all the time if he just had his first birthday he is so tiny I dont know what to do. The doctors keep running tests on him. I have taken him to 4 different pediatritions now becouse it gets more and more stressful to take him have them say all the test are ok and look at me like I am doing somthing wrong. He eats constantly 1 eggo or bowl of cereal for breakfast by 10am he wants a snack usually 3 slices of cheese for lunch he eats 1 whole sandwich a handfull of cheese its and a package of fruit snacks and even more at dinner. He is spilling protien in his urine and they dont know why but so far thats all they can find. He also had very bad projectile vomiting as an infant and at 10 months I stoped breastfeeding on doctors orders and put him on nutramagin, it did no good. Please help !!!!!!!!!!!!!!
    He is so little!!!!!! its not a milk allergie or wheat!!!!!!!!!!!!1
    Hi There, I dont think there is anything more frustrating when we are so concerned for our childrens health and to just be dismissed by their pediatricians! Has the projectile vomiting disipated? Most generally with young children who have the projectile vomiting it is gastroesophageal reflux. Thankfully most of the time (but not always) this can be helped with medications.

    My other question for you is has your pediatrician referred your child to a
    GI doctor? If not, i would definately demand a referral for your child. With the constant diahrea and the failure to thrive you have described, it sounds as if even though your child has an good appetite and eats healthy, he is not able to absorb the vitamins and nutrients needed for him to grow adequately.

    When we eat and the food passes into the intestines it is there where all the vitamins and nutrients are absorbed in to the body. If your sons GI tract is not working efficiently this would (or could) cause all the diahrea as well as his failure to thrive. I would most definately have him evaluated by a GI physician as soon as you can. I would have thought that your Pediatrician would have referred your child to a GI Physician long ago.

    I wish you and your child luck,
    ValleyGurl

     
    Old 08-20-2005, 10:16 PM   #5
    ASDGRMama
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    Re: Help for my 2year old son who isnt growing

    Hello! I know you posted this sometime ago but I wanted to reply since your situation sounds very similar to mine .

    My daughter has had chronic diarrhea since she was 2 months old and was diagnosed as failure to thrive.

    She had a lot of tests done but nothing significant came back.

    She does have food allergies and sensitivities so we knew that may have been playing a role. She was also diagnosed with asthma but seems to have outgrown it and is no longer on meds.

    She is now 26 months old and the diarrhea is gone, she has grown out of her allergies and now weighs 23 pounds (she's actually made it onto the growth chart for the first time in 2 years ). She weighed 8lbs. 8oz at birth, 13 pounds at a year and 17 pounds at 2 years (her height has always been in the 10th-25th percentile).

    I have no idea what changed but I'm grateful that it did. More than anything though I wanted to share with you some of the things I came across while researching causes for failure to thrive in toddlers.

    Chronic toddler diarrhea (can begin in infancy; no known cause)

    Dairy intolerance (if mom is breastfeeding and eating dairy it can cause a reaction in the baby; shouldn't stop breastfeeding but should consume less or no dairy)

    Celiac disease (gluten intolerance)

    Cystic Fibrosis

    Asthma

    I hope your son is doing better! My daughter complained of belly aches all the time; it was the saddest thing to hear her tiny little voice say: belly hurts mama...belly hurts.

    She also seems to be prone to staph infections and pneumonia but we still have no answers for that. All we can do is treat them.

    Please let us know how you and your son are doing.

    Love and Prayers, Kelly

    P.S. People still comment on how tiny our daughter is but it's funny because to us she looks really big now .

     
    Old 08-23-2005, 06:03 AM   #6
    thomas3000
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    Re: Help for my 2year old son who isnt growing

    Are you english, dutch, irish, swedish, etc??? If so your kids are gluten intolerant as is 50 percent of the population. If your ancestors are for northeastern europe you're gluten intolerant period. I would encourage you to have a gluten free household, and if your husband disagrees kick him out. It's that serious!! Gluten sets people up for many illnesses including cancer, cardiovascular disease, depression, and so on. You're son probably has Celiac disease, so please stop feeding him gluten...

     
    Old 08-23-2005, 08:22 AM   #7
    cfmommy
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    Re: Help for my 2year old son who isnt growing

    People of northern european heritage also can carry the gene for cystic fibrosis. I would recommend seeing a pediatric gastro person and have some genetic testing done. DS has failure to thrive and requires digestive enzymes 'cuz of CF.

     
    Old 08-23-2005, 10:05 AM   #8
    Shababy
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    Exclamation My daughter was very tiny when she was little too

    Take heed! As my got older, I said, heck with the pediatricians and hit the specialists and this is what I found(she is almost 16 now)

    -POS Specked ANA(for years doctor's have said she may have said
    she may have a connective tissue disorder, even before she came up w/the pos speckled ANA)
    -hypermobility of hands
    -cavas feet, drags feet, use to walk on tippy toes
    -Hyperandrogen Syndrome(25% too many male hormones, can't have children, only a couple periods a yr, etc)
    -Polycystic Ovarian Disease,
    diag. with skeletal dysplasia at one point
    -joint problems(a few times a bleeding breast
    -heart murmur(massive organs found by cardiologist probably caused by
    her hormone disorders)
    -skeletal dysphasia
    -tight heal cords and hamstrings
    -dry painful eyes
    -joints and muscles she hurts easy
    -she has gone to sleep early every since was born, still at 16 yrs old now
    -she has mild spina bifida OCCULTA(not spina bifida)
    -spondyliothentisis(slip disk)
    -mild scoliosis
    -one side of body quit growing(before 5th grade)
    at some point her one side quit growing. One jaw, one rib, one arm, one leg, smaller than the other side. Had abnormally large soft spot on head and cradle cap for a long time. Her ticks have changed to tremors all over her body and she
    -feels liquid running out of her joints and spine
    -knees use to go backwards
    -knees use to get stuck and canít straighten out
    -calves have horrible cramps(new problem)
    -skin hot and red to the touch
    -she has been diagnosed once with all trigger point pain
    -TMJ
    -pigeon toed
    -short stature(she got to 4' 11 1/2" or a little less, done growing)
    -knees rotated in slightly

    -goes to:
    -phys therapy at St. LukeĎs - strength issues, etc.
    -occupational therapy at St. Lukeís(almost done with)
    -social classes

    -Non-verbal learning disorder(Autism) causes her many neurological problems, ADD, problems with writing, auditory processing disorder, sensory disorder,
    problems w/common sense and judgement, etc.
    -Had tubes put in her ears at 1 yr
    -tonsils and adnoise removed 5th grade

    Have used:
    Dr. Schleshinger, Rhemotologist
    Dr. Heick, Rhemotologist
    Dr. Cathcart, Endochronologists
    Shriners
    Feet and hand specialists
    Three Neurologists(2 at Rockwood one for testing nerves)
    ENT, Dr. Bonneau & newer doctor at ENT Clinic
    Optomologists

    Cardiologist,

    -no diagnosis of fibromylasia, lupus, arthritis, MS, etc at this point.
    They are testing her now for Mosaic Tumor Syndrome(rare) At some
    point the ANA test could turn positive for a disease.

     
    Old 08-23-2005, 02:30 PM   #9
    thomas3000
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    Re: Help for my 2year old son who isnt growing

    Your daughter has not been correctly diagnosed. CF is another correctable illness, providing the underlying cause is found. Failure to thrive is a major symptoms of Celiac.. Why do people insist on arguing with me on this? Grains are not healthy guys!!Let's stop feeding our kids junk and stop all this illness. When I bring this up to people they argue with me all the time. We don't want to give up are favorite foods yet want a drug treatment to cure us. Drugs don't work unless they are treating specific underlying causes. I'm done trying to convince..

    Last edited by thomas3000; 08-23-2005 at 08:14 PM.

     
    Old 08-23-2005, 02:39 PM   #10
    cfmommy
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    Re: Help for my 2year old son who isnt growing

    My child does have CF based on genetic blood testing. CF is NOT a correctable disease. Yes it's a treatable disease, but it's a progressive disease and eventually my child's lungs will fail. Most CFers have what's called pancreatic insufficiency, which means the pancrease doesn't produce enough enzymes to break down food.

     
    Old 08-23-2005, 07:56 PM   #11
    Shababy
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    Question Re: Help for my 2year old son who isnt growing

    Thomas3000, you said, "Your daughter has CF". Did you mean "Your son has CF"?

    Second, I'd like to tell you my daughter's ancestors. Her father was 100%
    English and I am English, Irish, Penn Dutch, Welch, Canadian French and maybe more. But I don't think she would have CF. Did you see all her diagnosis so far?

     
    Old 08-23-2005, 08:29 PM   #12
    thomas3000
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    Re: Help for my 2year old son who isnt growing

    CF has been linked to infections(parasites). Do some research on finding reputable labs that test for these. You're docs say there is no cure because they don't have a drug that cures it. I mention this docs name time and time again(Dr. William Timmins). He specializes in functional medicine and finds underlying causes to any illness.

    Shababy, your daughter sounds like she might have a problem with gluten judging by your heritage. This stuff causes many, many diseases and conditions. There are people with MS, ALS, and many other disorders who are now cured because they cut this out of there diet. It wasn't meant to be consumed. When you're gluten intolerant you will have infections that compromise digestion, and having poor digestion will set you up for disease. If you can optimize digestion by getting off of gluten containing grains and clearing these infections, reversal of chronic health problems regardless of what they are is inevitable, I'm living proof. I HAD thyroidits/adrenal insuffiency causing severe anxiety/depression/headaches.. All gone now and the lab work says so also...

     
    Old 09-09-2005, 09:52 PM   #13
    m02ro3mommy
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    Re: Help for my 2year old son who isnt growing

    OP - I agree with Thomas that gluten could be a significant factor and if your doctor's have not tested for it you should demand it. Check on line though because there are 2 tests and one can come back as a false negative. You need both to be sure.

    I also agree that from what I have read and heard that Cystic Fibrosis can also be a cause. You might want to ask for this test also if it hasn't been done; however, if you had an amnio done while you were pregnant they would have already ruled this out. Unfortunately, I did not have an amnio test done and we are not sure about DS#2. There is a "poor man's" CF test that you can do at home. Get your tongue really wet with saliva and lick the back of your hand, wet your tongue again and lick your son's forhead. If your son's forehead tastes EXTREMELY salty (doctor described it as a salt lick) than CF could very well be an issue.

    Thomas - I know that you believe strongly that gluten is extremely bad for you; however, there are way too many conflicting school's-of-thought to say that gluten is the cause of all our problems. For one thing a lot of CF patients are diagnosed before they even EAT gluten (as in newborn infants), #2 there is a growing belief that medical science and the government has hidden from us that ALL complex carbohydrates (rice, corn, potatoes, etc.) are bad for us and Celiac's Disease and gluten was a compromise to save the agricultural industry. There are also people who say that all those health issues that you mentioned are caused by vacinations and some that say they are from mercury in our fillings. So to say that as parents we should disregard all medical advice in exchange for a recent but still largely unproven theory is not wise. Gluten is not healthy for some people and it is becoming more obvious that intolerance to it is more common than originally thought; however, it is not unhealthy for all people.

    Last edited by m02ro3mommy; 09-09-2005 at 09:54 PM.

     
    Old 09-10-2005, 01:19 PM   #14
    thomas3000
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    Re: Help for my 2year old son who isnt growing

    It's unhealthy for 50 percent of us mainly if your heritage is northeastern european. I'm not saying it's unhealthy for everybody, but the Standard American Diet is causing most of our ailments..I agree that mercury can't be good for you either. If a filling fell out of your mouth, and team dressed in biochemical suites would have to collect it. HMMM...Makes you think a little..I'm getting mine removed soon..

    Last edited by thomas3000; 09-10-2005 at 01:21 PM.

     
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