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-   -   diagnosed with CFS. Dont believe. (https://www.healthboards.com/boards/chronic-fatigue/1027799-diagnosed-cfs-dont-believe.html)

noanswer 11-18-2016 08:28 AM

diagnosed with CFS. Dont believe.
 
hello everyone,
I became unwell 3 years ago. Im 20 in Jan. Woke feeling dizzy/fuzzy and tired. I had a lot of stress at the time.

I over sleep all the time (12 hours a night), yet still feel drained. my concentration is very bad as my eyes feel like they cant stay still on a spot. its also my hearing that has changed, I cant hear clear and I have similar pressure as to when you go up in a plane. I have twitching in my body also. The tiredness feels like it comes from my heart, as if it struggles. reality around me also looks different now, dream like. I have severe anxiety and depression. doctors feel this is a symptom not a cause. I have discomfort in my right lower abdomen that started as numbness.

any ideas? is this CFS? Tests I should have?

Dragonfly Wings 11-18-2016 01:55 PM

Re: diagnosed with CFS. Dont believe.
 
Hello :)

Have you been to the doctor at all? I would suggest that first with a full blood screen including cortisol/adrenals and thyroid panel.

I had very similar symptoms and am currently undergoing further tests to confirm whether I have an issue with my adrenals or my pituitary.

Best of luck!
Kirsty

noanswer 11-20-2016 08:35 AM

Re: diagnosed with CFS. Dont believe.
 
test results:• 24/10/16: dsDNA binding autoantibody lev - 7.4 IU/ml. 0.00-20.00IU/ML
• 24/10/16: ENA antibody screening test - satisfactory - no action required
• 23/9/16: Serum cortisol - 509 nmol/L - satisfactory
•23/9/16: HbA1C levl - IFCC standardised - 33 mmol/mol <48.00 mmol/mol- satisfactory
• 23/9/16: serum folate - 10.9 ug/L >2.40ug/L - satisfactory
• 23/9/16: serum vitamin B12 - 383 ng/L 180.00 - 900.00 ng/L - satisfactory
• 23/9/16: erythrocyte sedimentation rate - 2 mm/h 0.00 -15.00 mm/h - satisfactory
• 23/9/16: film - satisfactory
• 23/9/16: full blood count - satisfactory
• 23/9/16: Serum ferritin - satisfactory - 67 ug/L 15.00 - 300.00 ug/L
• 23/9/16: Thyroid function test - satisfactory
Serum TSH level 0.47 mU/L 0.30 - 4.40mU/L
Serum free T4 level 12 pmol/L 9.00 -19.10pmol/l
•23/9/16: serum lipids - satisfactory
•23/9/16: serum creatine kinase level - satisfactory - 83 u/L 40.00-320.00u/L
•23/9/16: serum magnesium level - satisfactory - 0.95 mmol/L 0.70-1.00mmol/L
•23/9/16: Bone profile -satisfactory
• ! Liver function test - satisfactory
! Serum bilirubin level - 18 umol/L 2.00-14.00umol/L
•23/9/16: serum C reactive protein level - satisfactory
•23/9/16: serum electrolytes - satisfactory
•28/7/16: O/E pulse rate - 74 beats/min
•28/7/16: O/E tympanic temperature - 36.3 degrees C
•28/7/16: O/E blood pressure reading - 124/64 mmHg
•07/4/16: O/E Weight - 124/64 mmHg
•22/04/16: serum iron tests - satisfactory
•21/09/15: borrelia serology - satisfactory
•02/6/15: plasma glucose level - satisfactory
Glucose random. 5.3 mmol/L 3.00-7.70mmol/L
•02/6/15: corected serum calcium level - 2.3 mmol/L 2.20-2.60mmol/L
•02/6/15: body mass index - 20.52 kg/m2
•02/6/15: O/E - Height 171 cm
•26/5/15: ANTI-NMDA RECEPTOR ANTIBODIES - Negative
•26/5/15: Thyroid peroxidase antibod lev- <5 U/ml <6.00 U/ml
•17/5/15: serum testosterone - 29.2 nmol/L 9.70 -6.00 mmol/L
•03/3/15: standard ECG - 19.2 nmol/L 9.70-38.20nmol/L
•24/02/15: Plasma fasting glucose level - satisfactory
•24/02/15: Fasting status: 4.9 mmol/L 3.00-6.00mmol/L
•24/02/15:Urine dipstick test
•14/01/15: Urinalysis = no abnormality
•24/12/14: XR chest - satisfactory
•23/12/14: Tissu transglumanise lgA lev - satisfactory - <1.0 U/ml 0.00 10.00/ml
• 23/12/14: Glucose (random) 6.9 mmol/L 3.00-7.70mmol/L

noanswer 11-20-2016 12:34 PM

Re: diagnosed with CFS. Dont believe.
 
I also used to have a heart murmur and a leaky valve.


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