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  • diagnosed with CFS. Dont believe.

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    Old 11-18-2016, 07:28 AM   #1
    noanswer
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    Question diagnosed with CFS. Dont believe.

    hello everyone,
    I became unwell 3 years ago. Im 20 in Jan. Woke feeling dizzy/fuzzy and tired. I had a lot of stress at the time.

    I over sleep all the time (12 hours a night), yet still feel drained. my concentration is very bad as my eyes feel like they cant stay still on a spot. its also my hearing that has changed, I cant hear clear and I have similar pressure as to when you go up in a plane. I have twitching in my body also. The tiredness feels like it comes from my heart, as if it struggles. reality around me also looks different now, dream like. I have severe anxiety and depression. doctors feel this is a symptom not a cause. I have discomfort in my right lower abdomen that started as numbness.

    any ideas? is this CFS? Tests I should have?

     
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    Old 11-18-2016, 12:55 PM   #2
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    Re: diagnosed with CFS. Dont believe.

    Hello

    Have you been to the doctor at all? I would suggest that first with a full blood screen including cortisol/adrenals and thyroid panel.

    I had very similar symptoms and am currently undergoing further tests to confirm whether I have an issue with my adrenals or my pituitary.

    Best of luck!
    Kirsty

     
    Old 11-20-2016, 07:35 AM   #3
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    Re: diagnosed with CFS. Dont believe.

    test results:• 24/10/16: dsDNA binding autoantibody lev - 7.4 IU/ml. 0.00-20.00IU/ML
    • 24/10/16: ENA antibody screening test - satisfactory - no action required
    • 23/9/16: Serum cortisol - 509 nmol/L - satisfactory
    •23/9/16: HbA1C levl - IFCC standardised - 33 mmol/mol <48.00 mmol/mol- satisfactory
    • 23/9/16: serum folate - 10.9 ug/L >2.40ug/L - satisfactory
    • 23/9/16: serum vitamin B12 - 383 ng/L 180.00 - 900.00 ng/L - satisfactory
    • 23/9/16: erythrocyte sedimentation rate - 2 mm/h 0.00 -15.00 mm/h - satisfactory
    • 23/9/16: film - satisfactory
    • 23/9/16: full blood count - satisfactory
    • 23/9/16: Serum ferritin - satisfactory - 67 ug/L 15.00 - 300.00 ug/L
    • 23/9/16: Thyroid function test - satisfactory
    Serum TSH level 0.47 mU/L 0.30 - 4.40mU/L
    Serum free T4 level 12 pmol/L 9.00 -19.10pmol/l
    •23/9/16: serum lipids - satisfactory
    •23/9/16: serum creatine kinase level - satisfactory - 83 u/L 40.00-320.00u/L
    •23/9/16: serum magnesium level - satisfactory - 0.95 mmol/L 0.70-1.00mmol/L
    •23/9/16: Bone profile -satisfactory
    • ! Liver function test - satisfactory
    ! Serum bilirubin level - 18 umol/L 2.00-14.00umol/L
    •23/9/16: serum C reactive protein level - satisfactory
    •23/9/16: serum electrolytes - satisfactory
    •28/7/16: O/E pulse rate - 74 beats/min
    •28/7/16: O/E tympanic temperature - 36.3 degrees C
    •28/7/16: O/E blood pressure reading - 124/64 mmHg
    •07/4/16: O/E Weight - 124/64 mmHg
    •22/04/16: serum iron tests - satisfactory
    •21/09/15: borrelia serology - satisfactory
    •02/6/15: plasma glucose level - satisfactory
    Glucose random. 5.3 mmol/L 3.00-7.70mmol/L
    •02/6/15: corected serum calcium level - 2.3 mmol/L 2.20-2.60mmol/L
    •02/6/15: body mass index - 20.52 kg/m2
    •02/6/15: O/E - Height 171 cm
    •26/5/15: ANTI-NMDA RECEPTOR ANTIBODIES - Negative
    •26/5/15: Thyroid peroxidase antibod lev- <5 U/ml <6.00 U/ml
    •17/5/15: serum testosterone - 29.2 nmol/L 9.70 -6.00 mmol/L
    •03/3/15: standard ECG - 19.2 nmol/L 9.70-38.20nmol/L
    •24/02/15: Plasma fasting glucose level - satisfactory
    •24/02/15: Fasting status: 4.9 mmol/L 3.00-6.00mmol/L
    •24/02/15:Urine dipstick test
    •14/01/15: Urinalysis = no abnormality
    •24/12/14: XR chest - satisfactory
    •23/12/14: Tissu transglumanise lgA lev - satisfactory - <1.0 U/ml 0.00 10.00/ml
    • 23/12/14: Glucose (random) 6.9 mmol/L 3.00-7.70mmol/L

     
    Old 11-20-2016, 11:34 AM   #4
    noanswer
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    Re: diagnosed with CFS. Dont believe.

    I also used to have a heart murmur and a leaky valve.

     
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