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  • someone who has it...could this possibly be chronic fatigue?

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    Old 05-18-2005, 02:18 AM   #1
    DarkChange
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    someone who has it...could this possibly be chronic fatigue?

    Hi, I posted this on the brain and nervous system board long ago but no one responded then I found out that there was acctualy a board for this so im just going to paste it here.

    Hi, I've been to the ER a day ago and i've had a spinal tap, cat scan, blood test and urine test done (I had a few short seizures but I could somewhat remember them.) Now everything came back normal so the doc told my parents that we should just see a neurologist for further results. It will take some time till we make an appointment so I was just wondering if this would be fatigue related? im going to explain my symtoms as good as i can...

    Im constantly in this confused state...sometimes it wears off for about an hour but then it returns. What happens when im in that state is that my eyes cant focus on anything, it feels like wherever I look that its a big picture in my mind. You know when you focus on an object and you pretty much dont see alot of your surroundings since you are focusing on that object? well by me it seems like my eye is focused on EVERYTHING which leads to my weird sudden rapid eyemovements...(guessing that my eyes are trying to focus on something but just cant. ) I feel disconnected and I think thats the best description for what I have, I know im there but I dont feel it. I also have shortness of breath and I guess I have sleep apnea since i barely every sleep due to waking up with jolts and forgeting to breathe and I also keep waking up with headaches!

    please respond if you think this would be chronic fatigue or if you have similar symptoms.

     
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    Old 05-18-2005, 02:48 AM   #2
    kiya
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    Re: someone who has it...could this possibly be chronic fatigue?

    To be honest, if I were you I would see the neurologist. I can't say that I have any of those symptoms with my CFS, but then all of us are different. But with your confusion/disorientation it would be a good idea to see a neurologist, I'm sure.

    kiya

     
    Old 05-18-2005, 02:54 AM   #3
    DarkChange
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    Re: someone who has it...could this possibly be chronic fatigue?

    Thanks alot for the quick response. I guess I can scratch chronic fatigue off of my list then...

     
    Old 05-25-2005, 02:01 PM   #4
    eccentric
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    Re: someone who has it...could this possibly be chronic fatigue?

    no don't scratch it off your list. Theese can all be syptoms of cfs. I have had the disyness and headahces see a cfs/me specialist.

     
    Old 05-27-2005, 08:43 AM   #5
    kiya
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    Re: someone who has it...could this possibly be chronic fatigue?

    Just don't jump straight for the CFS diagnosis - it's NOT worth it. That's what a doctor did with me and it's taken me months to get to see a thyroid specialist now that I've started getting goitre. Once you're diagnosed with CFS doctors stop considering other problems. It's not a good position to be in unless you've absolutely had everything else ruled out.

    I still think that neurology would be the best first option.

     
    Old 07-31-2005, 06:19 PM   #6
    joanne uk
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    Re: someone who has it...could this possibly be chronic fatigue?

    Quote:
    Originally Posted by DarkChange
    Hi, I posted this on the brain and nervous system board long ago but no one responded then I found out that there was acctualy a board for this so im just going to paste it here.

    Hi, I've been to the ER a day ago and i've had a spinal tap, cat scan, blood test and urine test done (I had a few short seizures but I could somewhat remember them.) Now everything came back normal so the doc told my parents that we should just see a neurologist for further results. It will take some time till we make an appointment so I was just wondering if this would be fatigue related? im going to explain my symtoms as good as i can...

    Im constantly in this confused state...sometimes it wears off for about an hour but then it returns. What happens when im in that state is that my eyes cant focus on anything, it feels like wherever I look that its a big picture in my mind. You know when you focus on an object and you pretty much dont see alot of your surroundings since you are focusing on that object? well by me it seems like my eye is focused on EVERYTHING which leads to my weird sudden rapid eyemovements...(guessing that my eyes are trying to focus on something but just cant. ) I feel disconnected and I think thats the best description for what I have, I know im there but I dont feel it. I also have shortness of breath and I guess I have sleep apnea since i barely every sleep due to waking up with jolts and forgeting to breathe and I also keep waking up with headaches!

    please respond if you think this would be chronic fatigue or if you have similar symptoms.

     
    Old 07-31-2005, 06:40 PM   #7
    joanne uk
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    Re: someone who has it...could this possibly be chronic fatigue?

    hello i am a cfs/me sufferer of 16yrs i have had problems wiyh my eyes especially the lsft eye it is more dilated than the other eye i had to see a neuro in which i had a mri scan which was normal so they sent me for visual revokes test as i can only describe as having minor seizures the results came back normal you said about having these fits can you describe them do you go very cold to the point you feel you are going in shock and shake uncontrolly to the point where you feel you are burning and become pale/clamy i have been rushed to hospital loads of times with this but when i get there i must start to comme around and my obs return fairly normal there was one occasion when this happened that they checked my oxygen levels and it was in my boots they put me in acute medical unit in which i was put on a iv for 20 hours i dont know anyother ny people with my eye condition has any one have the same would love to here from you i hope this might help you but you definately need to see a neuro as they are the experts try not to worry hopefully it will soon get sorted i know how frightening it is bye for now joanne uk

     
    Old 08-01-2005, 07:11 PM   #8
    Kali M
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    Re: someone who has it...could this possibly be chronic fatigue?

    Hi DarkChange, and welcome.

    My symptoms progressed very gradually, but I believe that some of mine were hypothyroid, and honestly, I don't know which came first - the hypothyroid or the CFIDS. My main symptoms have been as follows:

    memory problems/brain "fog"
    hair falling out (alopecia)
    skin drying
    multiple sinus infections w/some vertigo
    muscle fatigue/weakness
    muscle/limb tremors or shakiness
    loss of muscle mass
    shortness of breath (sometimes even asthma with exposure to dust)
    chronic cough x 1 year (finally gone since last month!)
    chronic hip pain
    weight gain
    chronic constipation
    very very cold feet (painfully cold) and hands
    muscle injuries (can't even walk now without pulling them)
    eye pressure, aching/sometimes blurriness
    overwhelming fatigue (so that even just breathing seemed like chore) - comes and goes
    pain in knee and elbow joints

    More lately (over past 6 months):
    sore throat
    swollen nodes
    bad headaches (NEVER been a HA type of person)
    pain in my wrists
    TMJ in left side
    earaches

    There are actually more symptoms, but I won't bore you. Your condition doesn't sound like a typical CFS, but, like Joanne has said above, things can present differently.

    You definitely should get that neuro appt (and sounds like you are doing that), but like several folks said earlier, I wouldn't seek CFIDS as a diagnosis immediately. Would let the neuro doc come to his/her own conclusions.

    Good luck. And feel free to hang out here regardless.

    Kali
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