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Sounds like CFS

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Old 05-11-2007, 06:49 AM   #1
Join Date: Apr 2007
Location: FL USA
Posts: 419
maggie0704 HB User
Unhappy Sounds like CFS

Hi All,
I have been going into numerous threads on numerous topics bcuz i suffer from a few different things. But in reality, the main issue i have is fatigue. I have dealt with fatigue since i was in highschool (15), i am now 31yrs old.
I have been to tons of drs. through the yrs. & they either blame it on my depression, or my chronic pain. I suffer from chronic headaches/migraines & they say that bcuz i am always in pain, or coming out of pain, that my body is exhausted from the constant stress on it. And i have had depression since that age so they are quick to say it is that.
I have always accepted that it was just due to depression, but after 16yrs. of dealing with this, it is getting very very old!
I have never experienced what it feels like when people say "I woke up so refreshed & rested". I have NO IDEA what that feels like. Even if i've slept for 7hrs, 10hrs, or even 14hrs.!!! It is a hinderance on my life now more than ever bcuz i am married & going to try for a baby again. I had 2 miscarriages last yr. & it is about time to try again & i am so scared that my every day fatigue will be unbearable with the pregnancy fatigue added to it.
I never really feel "good". Even if i am free of a headache (which i only experience for maybe 1-2 hrs. a day), i still feel exhausted all the time.
I feel like a horrible friend, spouse, bcuz i can't get myself to want to do anything. I am taking some diet pill my sister got & that helped for about 1 month, now i see myself taking it and feeling nothing at all.
On the weekends, my husband is a hyper butt & wants to do all sorts of things. Well i feel so guilty & depressed even more bcuz i just don't want to do anything & if i can push myself to get up & go to store w/him or something small like that, i am only good for about 2hrs and then i want to go home. And bcuz i have chronic h/a's, i usually end up rushing home bcuz my head is pounding so badly that i can't see straight. It's like all i have to do is be out of the house for more than an hr. and a headache comes on full force.
I have had my thyroid tested, blood work done, tested for anemia, etc... & the drs. can't find anything so they say its the depression & the anti-depressent med. i take adding to it.
But even if i am not feeling depressed at all i have no energy. If anyone can relate or has any advice i would greatly appreciate it! It is so hard for my husband to understand & he has been so patient w/me but i can sense his disappointment & that makes me feel "less than" & i end up hating myself even more.

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Old 05-11-2007, 08:31 AM   #2
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Re: Sounds like CFS

Go to an ABSM (American Board of Sleep Medicine) certifeid sleep specialist (Normally a cardiologist/pulmonologist, but there are neurologist and pediatricians that do it too). You are suffering from sleep deprivation and they are the most knowledgable in treating and diagnosing your problem.

If we learn by our mistakes, I am working on one hell of an education.

Old 05-11-2007, 12:40 PM   #3
Join Date: Apr 2007
Location: FL USA
Posts: 419
maggie0704 HB User
Re: Sounds like CFS

I will look into that. It does make a lot of sense that it could all be related to unrestful sleep.
I have dealt with bad dreams/nightmares for yrs. and they have gotten worse over the past year. I wake up exhausted from the dreams bcuz they are always negative & seem to follow me all day in my thoughts.
I appreciate your response.

Old 05-12-2007, 09:42 AM   #4
Join Date: May 2007
Location: PA
Posts: 53
JasonFMX HB User
Re: Sounds like CFS

sounds like some symptoms of mine.

I have the fatigue problem but with the interupted sleep, bad dreams, and pounding headache. After I was diagnosed as having bipolar i was prescribed depakote to get rid of the mania and it smoothed my mind out. its all gone but the fatigue now, then i got adderall and thats gone too.

Old 05-12-2007, 12:59 PM   #5
Join Date: Apr 2007
Location: FL USA
Posts: 419
maggie0704 HB User
Re: Sounds like CFS

Please let me tell you to be very careful w/the Adderall. I was put on that also 2yrs ago due to fatigue i had when on Methadone (for migraines).
I wasn't diagnosed w/ADD which is what the Adderrall is for. So yeah, it gave me energy. But since i didn't have ADD i noticed after taking it a while, that i actually slowed down my functions dramatically. It made me insane after a bit. I suffer from depression and have since i was a teenager, but this med. made me sooooo much more depressed. Almost suicidal in the end. I would scream at my family (which is not like me) and was paranoid & not sleeping at night. I would stay up till 4am on worknights and not know why it took me so long to get to bed. I would plan on going to bed early, then next thing i knew it was 3-4am. Everything took me sooo long to do.
Like i would say to my Mom "i can't understand why it takes me so long to get myself in bed at night-what the hell have i been doing all that time?"
Anyways, after a few months on it and a serious drop in weight (which i loved of course) i was at the lowest point in my life.
I hated my family bcuz they were always on my back. I lost a few friends & my roomate due to me being irritable & overreacting about everything.
My family put me in rehab.
After i got out i saw the hell that the med. had caused. I had many amends to make and thankfully everyone forgave me. But still, when i think back to that time i am sicked by my behavior. I slept for 2days straight when in rehab bcuz i was running on 4-5hrs sleep every night for months. Of course i would sleep ALL day on the weekends which i figured was just depression. But it was my body being exhausted from not sleeping all week. I would literally go to bed at like 3am on Friday night/sat. morning & sleep until 6pm sat night. Then go to bed at 3am and sleep all day again.
IT was pure insanity.
I am sorry to go on like this. But when i saw that mentioned as something you take for fatigue i freaked out. If you have ADD , then it is not harmful bcuz your chemicals need that med and it actually slows things down and helps you concentrate if your using it for the right reasons. But if u are using for fatigue (which ADD sufferers do not have ) than it does the opposite of what it is supposed to and speeds u up but slows down your brain process.
Please be careful & make sure that u are being prescribed it for the right reasons.
My dr. just wanted to make me feel better and in turn i ended in rehab & did a lot of damage in my life.

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