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anyone suffer with liver problems due to chronic fatigue.. please help

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Old 07-11-2007, 11:52 AM   #1
Join Date: Jul 2007
Location: ny,ny,usa
Posts: 3
megcait HB User
anyone suffer with liver problems due to chronic fatigue.. please help

I have had cfs for 20 years. I have had ups and downs. I recently became ill with a terrible stomach "bug" it was 3 weeks of extreme diaherra. Just horrible. I developed a mild case of colitis due to it. After sought of recovering my hair started to fall out. I had a rountine bloodwork and found my alt and ast liver enzymes raised and my thyroid as well. Never had these problems before. I also went for a u/s which detected some hemangiomas on the liver as well as a few lesions. I am going for an MRI today to follow up to get a closer look into these things. I have no history of liver problems. I do not drink,drugs, etc. Thin and realitivly in good shape. I am terrified about this. Please any advice or opinions. Thanks

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Old 07-13-2007, 01:40 PM   #2
Join Date: Jun 2007
Location: Wakeman, Ohio
Posts: 2
pattif59 HB User
Re: anyone suffer with liver problems due to chronic fatigue.. please help

I was diagnosed with Lupus 13 years ago. Over the last year the neurologist tested me for EBV. She said it was positive. She was the only one willing to even look into my extreme fatigue. I recently had another dr test for it as well although i didnt know it until it was already done, along with some liver function tests. They came back high so i had a CT scan that showed steatohepatitis. A non-alchoholic/inflammed liver disease. Also known as fatty liver. My dr said THIS was what was making me so sick. Stomach problems, nausea/vomiting. My friend who is a nurse isnt so sure this is the only cause. My family dr. poo, poo's the whole chronic fatigue idea, but i think everything is related being from CFS, or some other autoimmune response.

Old 07-19-2007, 12:58 PM   #3
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Join Date: Dec 2006
Location: England Lancashire
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HowieMel HB User
Re: anyone suffer with liver problems due to chronic fatigue.. please help

I wrote a post on the liver forum about this very topic, though didnt get any decent replies! So fogive me for copying, pasting then updating it - I hope it reads reasonably well!

For the past year or so I have been suffering from terrible fatigue, flu like symptoms, and weakness, to the point where my GP told me it was probably Chronic Fatigue Syndrome and referred me to a specialist. However, in each of the around 8 blood tests I have had in the past year have turned up with very poor liver function. my GP kept sending me for tests saying he was monitoring this, though my liver function was he believed a statistical anomaly. Now after six months off work with "Chronic Fatigue" I have eventually seen a specialist, and was surprised by his concern about my liver. In fact he said my liver function was "three times the norm" (I dont know what this means!) and that he was so concerned about my liver that I am now facing an ultrasound, and biposy. He also asked me a lot of questions re; exposure to one of the hepatitis virus's.

The strange thing is I now know so much about the horrors of a long-term diagnosis of Chronic Fatigue Syndrome that a different diagnosis may actually be more preferential with a more specific prognosis and treatment. Though, looking at the causes online there is also almost no way in which I can concieve I may have been exposed to such a virus.

Anyhow the update on this was that an ultrasound showed a "bright" liver, and my ALT or AST I dont know which has been as high as 140. As I dont drink much, and didnt test positive for Hep ABCDEFG...etc.. I was told it was probably NAFLD or non-alcholic fatty liver disease. I am waiting to see the liver specialists and maybe have a biopsy. Though in the meantime the diagnosis of CFS still stands. Even though I feel awful all the time I can jsut about tolerate moderate exercise. Though that is massivley contrased I used to be an endurance athelete thinking nothing of cycling 140 miles -A year on I can now do about 10 with unpleasant post exercise symptoms.

I would be very interested in more details of liver problems, or in how you get on.

Oh and in an edit I must add that one of the thing I recently learnt was I tested positive for EBV last year (even though no one told me) Though it is no longer present

Last edited by HowieMel; 07-19-2007 at 12:59 PM. Reason: Add the EBV bit on the end

Old 07-22-2007, 01:30 PM   #4
Join Date: Nov 2003
Posts: 152
Phlox HB User
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I have had similar experiences. I have recently been having problem with bouts of extreme fatigue--as if I have to lay down and take a nap or I am going to fall out. I have had some discomfort in my RUQ for awhile now, and am getting another Ultrasound next week. I had one that showed normal awhile back but was referred to a surgeon after a CT showed something on my diaphragm. The surgeon didnt say why but said he didnt like the Ultrasound and wanted another one done, which I am getting next week.

At one point about 2 years ago I was diagnosed with Fatty Liver, but this last one showed normal despite having elevated Bilirubin, which I found strange. Add to that, recently I have been experiencing an "aching" feeling in my left side of the back between my shoulder blades, around the left shoulder and left chest. I have also had problems with Gout episodes, despite the bloodwork always showing Uric Acid levels as normal (which is a problem with Uric Acid testing I have learned). I showed positive for the Epstien-Barr virus as well, but was told it was from a "prior infection but still something to consider."

Ive been left wondering because of these fatigue episodes, whether I have a problem with my Liver, Heart, or just out of control Uric Acid levels, so I can identify with the confusion. It really is the worst when you just dont KNOW what is causing problems, so you can do something about it!

Last edited by Phlox; 07-22-2007 at 01:31 PM.

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