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A Hello and My story (questions about Fatigue/Abdominal Symptoms)

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Old 03-21-2008, 12:44 PM   #1
Join Date: Mar 2008
Location: New York, NY, USA
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ladyolivia HB User
Post A Hello and My story (questions about Fatigue/Abdominal Symptoms)

Hello all...

I'm posting here because even though I'm not diagnosed with Chronic Fatigue *Syndrome*, I certainly have Chronic Fatigue *symptoms!* (ah, doctors...)

Essentially, I'll try to keep my tale brief, and hope that somewhere out there one of you can relate or offer some thoughts...

I have felt 'off' since August 2006 when I had tonsillitis. The doc gave me Amoxicillin which cleared up the infection but seemingly knocked me sideways for weeks. Even after the 10 day course of meds, I was feeling lightheaded, exhausted, nauseous and having blackouts. Cut to October: I moved to the UK to go to grad school, got a congested cough. Prescribed Amox again, and same symptoms. I do not know if there is any correlation, but after this, my stomach began acting up, with much pain, spasms, and bathroom irregularities. I also still had dizzy spells from time to time.

I'm explaining all this because I became very sick in Summer 2007, and assumed it was just a worsening of the ongoing, earlier symptoms.The stomach stuff got incredibly bad, and I became barely functional due to exhaustion, dizziness, and pain. In July/August I was able to just about make it through a workday but had to come home and get to bed immediately, and then by Sept I was sleeping through most of the week, about 18-20 hrs a day, unable to get out of bed; my stomach was so bad, I could barely eat. I also had severe back pain.

My UK gp diagnosed 'school stress' and a holistic doc said curing the stomach would cure the fatigue. Blood tests didn't seem to reveal anything. Finally returned to the US, saw numerous docs. The breakdown:

Oct/Nov: Gastro ran many tests, said IBS causing fatigue.
Dec: Holistic and GP said Epstein Barr indicated I must've had mono. Also revealed Vit D deficiency. No thyroid issues (sensitive tests done). Modified diet helped but did not fix completely (a gluten free vegan now!)
Jan/Feb: New Gastro said possible Crohn's AND EBV, but can't tell if it was mono.

Now I've just had an endoscopy and seem to have a hiatal hernia, which *might* explain tummy issues.

I just don't know what I've got. At this point, if I did have mono in the summer, shouldn't I be feeling better (if it's not CFS)? While I am no longer sleeping through my days, I still cannot function normally. If I work (sub teacher) a few days in a row, I have to take a day or two to rest. I'm always achey and weak, if not in real pain, and my brain/memory is very cloudy, and the dizziness is often severe, triggering more fatigue. At this point, almost 10 months after the beginning of the severe symptoms, I can't understand why there's no specific diag, or at least agreement by the doctors. It's so frustrating. I went from enjoying my London life to having none whatsoever...and having no idea if I'll be well anytime soon!

So I guess my questions are: Who can relate/help, and do any of you with CFS have abdominal symptoms or a separate ab-related illness?

Sorry for the (long) venting!

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Old 06-20-2008, 02:38 PM   #2
Join Date: Oct 2004
Posts: 50
krlsgrl HB User
Re: A Hello and My story (questions about Fatigue/Abdominal Symptoms)

Some of your symptoms sound like Lyme disease. I think Lyme can have digestive symptoms with it. Lyme is passed by a bite of an insect, often a tick. But the tick may be a nymph, which is as small as a pencil point. Lyme symptoms include foggy mindedness and severe fatigue. you might want to check out the Lyme board and see if you might have it????

Best wishes for good health.

Old 08-11-2008, 03:17 PM   #3
Join Date: Aug 2008
Location: UK
Posts: 5
panther2 HB User
Re: A Hello and My story (questions about Fatigue/Abdominal Symptoms)

Everything you said sounds exactly the same as me. I have had CFS for several years now and it all started after a bad bout of tonsillitis. It took me 4 yrs to get diagnosed. In the meantime i have been treated for IBS although my consultant thinks it is ulcerative collitis, i am in the process of seeing a bowel specialist. The only advice is to pace yourself, know your limits. I know its very frustrating but hey, thats life. I find that drinking cup a soups throuhout the day give me a little boost.

hope this helps a bit

keep smiling

Old 08-12-2008, 07:37 AM   #4
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Re: A Hello and My story (questions about Fatigue/Abdominal Symptoms)

Hi LadyOlivia, Welcome to the board. Sorry you are going through this mess....

From what I have learned from own personal experience and reading here on the boards and reading up on virus's and bacteria's. and some of the other critters that love our warm bodies...I would spend the money and get to a Lyme Literate Medical Doctor. I see you are in the N.Y. area and there is an awesome Lyme docotor there. You may want to read over on the lyme board, there is a doctor and clinics thread at the top. "IF" you don't find him by reading there then post a new thread asking for this doctors name. This is where I would start if I were you from learning what I have learned over the past 20 years....

Now keep in mind that possibly you don't have lyme, maybe you have a bacteria such as "Chlamydia Pnumoniae" which is the bacteria that is what doctors claim is the walking pnumoniae bacteria. BUT it causes alot of the conditions that lyme does.and it can lie dormanat in your system and cause things such as intestinal problems, M.S., dementia, alshiemers, ect ect.....

You may also need to be tested for Mycoplasma Pnumonaie...OR

Epstein Barr, Cytomeglovirus any of the herpe family....

I do think that most Lyme doctors test for these conditions....

In the long run it would keep you from spending unecessary money jumping from one doctor to another....and unecessary test...ugh!

I feel it would do you good to read about these virus's and bacteria's, and the symtpoms and conditions they cause....

Remember knowledge is power!

Hope you find your answers soon!

good luck!

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