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It seems way to wrong to be CFS. I think it could be Lyme DIsease and really need hel

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Old 06-01-2008, 04:43 AM   #1
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Red face It seems way to wrong to be CFS. I think it could be Lyme DIsease and really need hel

Is there anybody who can help me please?
I have been extremely ill since Sept. 2006 and it is now June of 2008. I have tested negative for everything including Lyme disease but have a strong feeling that It could be the culprit. I have literally been suffering in an unbelievable way mostly stuck in a bed for almost two years. I have been denied the IV treatment twice now and am determined to fight until I am at least given a fair trial. Does anybody know of a good Lyme doctor in or close to Wisconsin. I have no insurance, very little money and can hardly leave my house but I have many reasons to believe it could be Lyme. Does anybody know my rights as far as demanding a trial run of this treatment. I have documented cases of other people who have tested negative in the same state but were eventually given the treatment with success. I have been pushed around for almost two years and can barely find the strength to fight this thing any more and am not buying the whole Chronic Fatigue Syndrome deal in my case. Something is seriously wrong. Any advice would be greatly appretiated!!

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Old 06-01-2008, 06:48 AM   #2
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Re: It seems way to wrong to be CFS. I think it could be Lyme DIsease and really need

Hi Sockit2ya...I also was told I had "only" CFS and Fibro at the beginning of my adventure. I knew better. Beings back when they told me this I had been bitten by ticks. But of course was told it wasn't in my area. Long story short...It took about 15 years before I FINALLY found one doctor to listen to me and started me on treatment for lyme. I think you are headed in the right direction by looking into this. Testing is not accurate for lyme.

I see you have posted over on the lyme board. You'll get some answers there.

Once your body gets as sick as youi sound you most likely have many things going on. When the immune system breaks down virus's and other bacteria's like finding a sick body to live in.

I wound up over the years finding out I had Bartonella, Bebesia, Chlamydia Pnumonaiae, Epstein Barr, Cytomeglovirus, plus the lyme. ugh! Been a long road to where I am now.

Keep fighting in finding your answers.

Wishing you lots of Luck.

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