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Please post your stories here about your CFS.

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Old 06-11-2008, 07:15 AM   #1
Senior Member
Join Date: Mar 2004
Posts: 189
georgi HB User
Please post your stories here about your CFS.

I would love to hear some stories about what symptoms made your doctor think that you had CFS. I am at my wits end with extreme Fatique. It is sometimes an effort to make a sandwhich. I am have weight loss and general aches and pains, just feel like crap. Seems to me that if the doctor cant figure out what is the matter with you, they slap on a diagnosis of CFS or Fibro. I am not saying that Fibro and CFS are not real. I know I have something really wrong, just not sure what it is. I finally am seeing a doctor at the Mayo Clinic. We might lose our home over this because we are using out of network services to go to Mayo. I feel like I am slowly dying. Help. Tell me your stories please.
Thanks everyone

BTW my symptoms

Extreme Fatigue
Flu like aches at times
Weakness through my body
horseness [sp?] just in last few days
Weight loss
bone pain [ had a parathyroid tumor removed in November]
fast heart rate about 110
sometimes feel short of breath.
age 58

Last edited by georgi; 06-11-2008 at 07:23 AM.

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Old 06-13-2008, 06:44 AM   #2
Junior Member
Join Date: Aug 2007
Location: West Chester, Ohio, USA
Posts: 30
lojo222 HB User
Re: Please post your stories here about your CFS.

I have not been diagnosed with CFS, but with Chronic Epstein Barr. I have had the following symptoms daily for the past 18 months.

bad tremors,
muscles aches
chest pain
brain fog
extreme fatigue
slurred speech and stuttering
neck pain, back pain
hot flashes
night sweats
epsisodes of near fainting
blurred vision
pounding heart

sounds like i'm a real mess doesn't it?

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