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  • What has helped your CFS?

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    Old 06-22-2009, 11:33 AM   #1
    Join Date: May 2007
    Location: on, Canada
    Posts: 5
    tina_88 HB User
    What has helped your CFS?

    I think it might by easier if we put what remedies have worked into one thread as it is difficult to sort through long lists of what has and hasn't helped.

    These are what has helped me so far:
    1. ribose
    2. b-supplements
    3. vitamin D
    4. epsom salt baths
    5. probiotics ( I am trying this one now, but it seems to be helping)
    6. of course SLEEP

    I hope this helps

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    Old 06-23-2009, 07:57 AM   #2
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    Join Date: May 2009
    Location: roy utah usa
    Posts: 27
    Angalicious316 HB User
    Re: What has helped your CFS?

    1. Good support system. I make sure that everyone in my life friends included knows what i have- what im going through- that theres always the chance that if we have plans that i might be sick that day- and if they dont like it then to bad lol it really has helped having everyone know every detail, that way i dont have to stress about what they might think if im sick that day.

    2. I keep a medical diary. I write in it every day all my activities (even little things like being on the computer) and i rate everything on a scale from 1-10, ex. my energy levels, how good i slept ext. that way i know ok i did this yesterday and i have this much energy today. it helps me kinda know what limit i have and what will be "to much" for me

    3. eating healthy. I try and eat protien, veggies and fruit and wheat breads. basically the low carb diet. i dont drink caffiene or soda other then sprite. that has helped because i dont get that false sense of energy which tricks me into over doing it. I occasionally eat a little sugar but i make sure its not on an empty stomach that way i dont have a sugar crash or a sugar rush. ( this has helped me SOO much!)

    4. i take vitamins - daily multi vit. and vitamin D

    5. When i first started being sick they thought i had lupus. I went to a lupus specialist and he put me on prozac 10mg. for fatigue. he said that even though its an antidepressant , it also helps with fatigue. it really does help me. and i dont have deppression just anxiety.

    6. not just laying on the couch... if noticed that the obvious when i do to much i pay for it the next day but also when i do to little i pay for it as well.

    7. i make small goals for myself like this week im going to make it a point to be up breakfast in, bathed, dressed and ready for the day by 10 am and then the next week ill add something else like im going to do the tree pose for 1 minute a day.

    8. Im going to talk to my doctor about getting on a low dose of cortisole. I had the ACTH stimulation test done, thats where they inject you with a dose of cortisole and see how your body reacts to it. I had it done to see if i had a pituitary tumor. anyways the test came back normal but i felt SOOO good that day! and i have read multiple times that cortisol helps with CFS.

    9. When they thought i had lupus everytime i would get sick they would put me on prednisone. and it has always made me feel good. come to find out steroids is a form of cortisol. but when im feeling REALLY bad i take some prednisone and it helps me.

    Last edited by Angalicious316; 06-23-2009 at 08:04 AM. Reason: forgot some.

    Old 11-02-2009, 05:35 PM   #3
    Join Date: Feb 2005
    Location: U.S.A.
    Posts: 4
    chikin HB User
    Re: What has helped your CFS?

    A pinch or two of salt in water

    Electrolytes (I buy at health food store)


    Old 03-22-2010, 08:10 PM   #4
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    Join Date: Mar 2010
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    sylviasix HB User
    Re: What has helped your CFS?

    2 things have helped me tremendously. The first is stress reduction and the second is Xyrem. Unfortunately my stress is due to resume because I was the primary bread winner in the home and my family and I can no longer stay with family because they are selling their home due to financial reasons. They are moving to a 1 bedroom condo. I don't know what my children and I are going to do. In any case, I am convinced that Dr. St. Amand's protocol works and I am going to begin that immediately. I know it won't work overnight but I am convinced that one day in the next few years that I will be relieved of nearly all of my symptoms if not all. I just wished I had done this years ago. At that time it just seemed to complicated for me.

    Old 03-24-2010, 10:50 AM   #5
    Join Date: Jan 2004
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    Dave56789 HB User
    Re: What has helped your CFS?

    Planning ahead to ensure I get at least 10 hours of sleep per night.

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    Old 03-28-2010, 09:34 AM   #6
    Join Date: May 2004
    Posts: 381
    microwave HB Usermicrowave HB User
    Re: What has helped your CFS?

    1. GHT (glutathione) injections. It has to do with the Krebs cycle, the interaction between the immune system and the muscles, the decreased production of ATP (Adenosine Triphospate, which stores energy and is broken down for energy) lack of it causes physical fatigue), which ends up in a GHT depletion = Chronic Fatigue. I give myself an injection once a week (the doctor provides them) and I felt a lot better after 2 injections! I've been on them for about 6 months.

    2. Curing my sinus infection. I didn't realize what a difference it made on my fatigue levels. It had been going for months but I thought it was allergies. Finally I went to an allergist who did a CT scan and saw that my sinuses on one side were totally full of infection. I was on Prednisone for 2 weeks (LOVED it - made me feel so full of energy again!!) and was on Spectracef (an antibiotic) for a month. I've felt better in the last month than I have for a while. I highly recommend that you treat any infection you may have as it could have a huge effect on your fatigue!

    3. I'm also taking vitamin D-3 (1000 IU). I read that it helps with fatigue.

    Old 03-31-2010, 12:11 PM   #7
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    Posts: 142
    CFIDS HB User
    Re: What has helped your CFS?

    3-4 grams of Omega-3 fish oil
    5000-8000iu VitD3
    1-3 thousand mg VitC
    Royal Power
    Royal Oil
    Testosterone Replacement Therapy
    Ox Bile (no gall bladder)
    HCL w/ Pepsin
    Digestive bitters
    Men's multi
    100mg COQ10
    Trace Mineral drops
    Magnesium Malate
    Hawthorn Berry
    Pumpkin seed oil
    NOW Premium Whey powder
    Sovreign Silver
    Oreganol Juice
    Oregano P73
    Immunity Take Care
    Digest Gold

    Royal Jelly is about the best thing so far of the bunch but this is all what I am taking I think

    Anyone ever try Hydrogen Peroxide IV treatments?

    Last edited by CFIDS; 03-31-2010 at 12:11 PM.

    Old 04-01-2010, 09:15 AM   #8
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    sylviasix HB User
    Re: What has helped your CFS?

    Hi CFIDS can you tell me what symptoms of CFIDS the Royal Jelly helps?


    Last edited by hb-mod; 04-11-2010 at 12:34 AM. Reason: Removed Quote of immediately preceding post. Please use "Quick" Reply rather than "Quote" Reply. Thanks!

    Old 04-01-2010, 09:20 AM   #9
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    sylviasix HB User
    Re: What has helped your CFS?

    One more thing CFIDS. What brand of Royal Jelly do you take and where can I find it. Thank you so much for your response. I have never heard of Royal Jelly before but it sounds like you are on to something from what I have read about it so far. :-)

    Old 04-01-2010, 10:06 AM   #10
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    CFIDS HB User
    Re: What has helped your CFS?

    Originally Posted by sylviasix View Post
    One more thing CFIDS. What brand of Royal Jelly do you take and where can I find it. Thank you so much for your response. I have never heard of Royal Jelly before but it sounds like you are on to something from what I have read about it so far. :-)
    I tried cheaper brand several years ago and did not get a benefit that I recall but I was not af sick back then..but right now I am combining the Royal Power (2 pills twice a day) and the Royal Oil (1/2 tea spoon under tounge twice a day - then swallow after a minute or so). They are by North American Herb & Spice. The benefit I get is MUCH more energy and sense of well-being. Keep in mind though I have bouts of EXTREME fatigue. Also the Soverign Silver combined with it really helps over time it seems. I been on it a week or so.

    Old 05-08-2010, 05:29 PM   #11
    Join Date: May 2010
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    KrazyKitty HB User
    Re: What has helped your CFS?

    1) Vitamin D - your doctor can test you for deficiency. I took 10,000 IU a day until I got my level up to 60. (55 is optimal)
    2) D-ribose - I take 1 teaspoon once a day
    3) Lysine - 3 gm/day
    4) NO caffeine - you may get a short term boost but long term it saps your energy. Even decaf coffee has a fair amount. I switched to decaf black tea and green tea.
    5) Pacing - I have a kitchen timer. 15 minutes of activity followed by 1 hour of rest. By rest I mean sitting down feet up. Read, watch tv, surf, knit, something quiet.
    6) Good night's sleep and not waking up several times in the night. Right now I do 1 mg melatonin + 10 mg ambien + light therapy in the morning.
    7) Eat every few hours to keep your energy up, but eat a light meal so you don't get tired.

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