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  • Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

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    Old 02-15-2010, 07:15 AM   #1
    lala52
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    Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    It all started four years ago after a bout with a virus. I never recovered. I could barely get out of bed and when i did i felt extremely week and tired. My whole body hurt as if I had a flu. Then a few months later I started with severe stomach problems. Went to the gasto doc, he took tests and said probably IBS. I was having chronic gas that has still four years later not stopped. It does go off and on though. then I went to a natural doc. and he said I had candida of the intestines which is an overgrowth of yeast. I stopped eating carbs and went on supplements. Helped only for a short time. In the meantime, I have still body aches and feelings of anxiety sometimes and I have days of feeling very lethargic. Every morning I am very stiff and very tired. It takes me hours to get out of the house. I was told by one doc. that I have fibromyalgia. I think they are all connected, Chronic fatigue, fibro, ibs, and I also I have hashimotos. I need to get better. I have been to doctor after doctor with no answers. I also have severe neck pain and numbness and tingling on the top of my head. Also sometimes chest pains. Went to the cardiologist and took tests and everything was good. I also have lower back pain and off and on constipation. Also I sometimes have a problem with balance. It is not dizzyness, it just feels like my balance is off. It feel like I am not standing on a flat surface sometimes. As if I am standing on something that is on a slant. Also, I have pain under my arms. Don't know if it is glands or lymph nodes. That is one of the symptoms of Eptein Barr, but I was tested for that and it was negative. Also I was tested for Lyme.
    that was negative. I am going out of my mind. I need to work, but I cant. I feel too sick and lethargic. The list of symptoms go on but I can't remember off the top everything I have been through. I don't know whether the whole thing is all Candida related or a combination of everthing. I have done detox, I have done colonics, all different supplements, and now accupuncture for the neck pain. I even buy a special water. It is a high PH which is suppose you make you more alkaline instead of acid which is suppose to help with all diseases. Still suffering. And almost out of money. Does anybody have any answers?

     
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    Old 02-15-2010, 02:08 PM   #2
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    I have no answers but i could have wrote your post myself.I have had m.e/cfs for the last 9yrs and just been told fibromyalgia.I have had every test going and everything comes back ok.I am currently trying the candida route and started cutting out sugar and yeast and taking supplements.Have you looked at dr jacob teitelbaums website? I have just started some of his supplements but its going to be expensive but i will give them a try for at least 3 months and see if they help as i am sick of being ill and doctors not being able to help.
    Take care x

     
    Old 02-16-2010, 06:23 AM   #3
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    zipster:

    I can't believe it. I just took the book out of the library by Jacob Teitelbaum. From Fatigues to Fantastic. I just started it. I did not start any of his supplements yet. I am afraid to take things that are not recommended by a specialist that I trust. I have seen many doctors and natural doctors but none of them suggested the first thing that this book suggested which was d-ribose. I just went to my local health food store questioning d-ribose. They are very knowledgeable at this store and they have very good products. The girl told me that that product has sugar in it. That alarmed me because of the candida. Do you think you have candida? Do you have very bad gas? Or any other stomach problems. Have you been told you have IBS. Yesterday I was so lethargic and tired. I pushed myself to go to the gym and go on the treadmill. I felt better. Can you exercise and do you feel better when you do? I would love to hear back from you. LaLa

     
    Old 02-16-2010, 07:33 AM   #4
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    Hi i have just ordered his book but most of the information is on his website.You fill out a symptom questionnaire for free and he gives you a list of what he recommends to take and for how long.I was worried about the d-ribose but it explains on his site that although its a sugar its one that your body produces naturally so it doesnt affect weight or candida.I have been taking the d-ribose since thursday 3x a day and some of his other supplements for a week and i feel i have more energy already.I am waiting for the rest of the supplements to come in the next week.You should be able to get them easier than me as your in the usa.It also says there are fatigue and fibromyalgia centres in america where you can get extensive tests and use his treatment protocol as he is the medical director but i think its expensive.
    I wish i had one near me because i would give it a go.
    I cant really do much exercise at the moment.I had to give up work 4yrs ago.I have just started having new symptoms,muscle pain,joint pain,tingling and burning in legs and i was told i now have fibromyalgia,great at 40 yrs old!
    I have always thought i had a candida problem as i always have blocked sinus' and rashes that no doctors could diagnose so i started illiminating sugar,yeast etc in the last week. Dr teitelbaum advises to take prescription diflucan as well as his supplements for candida but i know here in england my doctor wont just give me it if i go and ask as he will say i havent got a candida problem. He also believes thyroid and hormones need looked at even if blood tests are ok but i know my doctor will not just give me tablets if my bloods are normal thats why i wish i lived near one of the centres.
    Anyway good luck and hope we find something to help with these awful symptoms.

     
    Old 02-17-2010, 06:08 AM   #5
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    Hi Zipster:

    I think I night try ti d-ribose especially because you are feeling a difference already. I understand that I might live in the US but going to his center will still cost a lot of money. My health insurance would not cover any of that. What other supplements did you order. I am not anywhere near done yet with the book so I am not sure what supplements I need yet. I called my drs. office yesterday and agreed to give me a perscription for diflucan but only 100mg a day. Dr. T recommends 200mg a day so I decided to make an appointment with my doctor and bring the book with me and see if he will give me the 200mg. My doctors here also don't bellieve in candida except if you have hiv or cancer. The natural drs. believe in it though. But I have been that route also and to no avail. From lots of information I read it does say you can't go by the blood work for the thryoid, but again, the drs. only go by blood. I have hashimotos and am on synthroid for my thyroid. My blood work is not normal. But my body temo. is below normal everyday. I have muscle pain and some joint pain also. One of my biggest problems is stomach issues and fatigue. But some days I am fine. What about you. Do you have some days that you are almost normal? Some times my glands or nodes under my arms hurt. Do you have that? You are so young to have these problems. It makes life so difficult and depressing. I will be 52 in April and although I don't feel as young as I was at 40 I still feel young enough to enjoy life but feel I can't. Everybody I know are still full of energy everyday. They work, take care of their families, go out. They have non-stop lives. So I guess we continue to talk and research and try different things until we feel better. What a life!!!! Hope to hear from you soon.
    LaLa

     
    Old 02-17-2010, 07:55 AM   #6
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    Hi lala,
    Yes i do have days when i feel almost normal i had a week at christmas and a week last week and i always think yey i think i am getting better and then it all comes back again.
    I might wait until i get the book and take it to my doctors and ask them about the diflucan and thyroid and hormone stuff but i doubt they will
    take any notice.Anything alternative or out of the normal tests they just snub.
    I wish i had loads of money and i could try every test and supplement but unfortunately it doesn happen like that does it in the real world.
    I have ordered the energy revitalisation powder,adrenal stress end,end pain formula,probiotic pearls,sleep formula and dhea.
    I also have started taking d-ribose,nac,3lac and coq enzyme. Phew and thats not them all he recommends but its to expensive.
    Do you have trouble sleeping? I never used to have this problem but the last 12 months i cant sleep and my legs pain and burn which is a symptom of fibromyalgia i have been told.
    My back pain started first its right in the middle of my spine and it seems to make my neck/shoulders and everything else hurt. I also feel off balance
    alot and a foggy head and headaches.
    I have had a neck mri,a spine x ray and they are all normal.
    I recently had bloods taken and my plasma viscosity was slightly high and eosinophils were low so i am having them repeated next week but i bet they are normal this time as its happened before.
    I know its depressing not being able to do the things we want to do isnt it and i have 2 small children as well and i cant do all the things i should be able to at 40.
    I wish they would hurry up and find a cure or cause or a tablet to make us feel a little better.
    Oh well at least your doctor seems to be willing to try the diflucan so good luck.
    Bye for now xx

     
    Old 02-17-2010, 11:39 AM   #7
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    HI yall, I was seeing a naturlist for my adrenal fatigue who recommended this route by Dr. T. I couldn't get around the taste of the ribose powder but which I had known about the pill form. I may try it again, I had just spent all this $ on other supplements at the time.

    Anyway, after reading yalls posts some of it sounds like gluten problems too, don't you think? I mean really, rash, balance? Read up on that too. I'm just saying ...I have fibro, hypothyroidism, adrenal fatigue and spine issues. I do a lot of reading too. We do have to manage our own health care but its hard when we're in such a foggy state all the time. I know there's a test for gluten (cannot think of it right now for the life of me) and I'd ask for that.

    Plz continue to posts w/ updates on the Dr. T supplements I'd like to know if they help ur energy levels cuz all I do is lay in bed all day. I'm currently being weened off of hydrocortisone cuz the naturalist had me on it too long and it is what put my glands to sleep so that's why I don't see him anymore. That's what the endo is telling me. we will see how this works.

    thanks,
    Cathy

     
    Old 02-18-2010, 06:14 AM   #8
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    Hi Zipster:

    Whow!!! That is a lot of supplements. Let me know if they are helping. Yes, I have insomnia. Last night I was up every hour. It go to sleep about 11:30 and if I am lucky I sleep for 2 to 3 hours and then I am twisting a turning the rest of the night. Sometimes I wake up and my legs hurt but I think that is restless leg syndrome. That only happens once in a while and I take advil and it goes away.My legs don't burn. For a while my chest was burning. I felt nervous and of course went to the cardiologist and had tests taken. Not just because of the burning but because I get chest pain, off and on. What about you? My tests, of course, were normal. I get myself so nervous. Many times I felt that I was having a heart attack. Yes, my back hurts also.
    which can make the chest hurt. I have gone to the chiro. It does not really help. When it all started I was going for physical therapy which was really in my case massage therapy. I felt great but did not help. I have bad neck pain and have also had all the mri's. I do have herniated disks but was told most people my age do. Last night I had nausea and gas all night. I have not slept all night in 4 years. Since you started the sleep supplement has it helped? I have tried taking the natural supplement, melatonin but it did nothing. I take a xanax every night. It helps me fall asleep but not stay asleep. Let me ask you, do you have any idea how this all started? Did something trigger it? Usually something triggers cfs/fm. I know exactly what triggered mine. Probably about 12 years ago I started a bad habit of eating candy. I started to crave it constantly. I was eating it all day. I was usually pretty health conscious but I was craving it once I started it. Like a drug. Then a few years later I was not happy in my marriage and started going out with girlfriends and drinking more then usual. I would not say I had a drinking problem, but it was part of going out. Then I started with severe depression and anxiety. Then I got divorced. So so far the botton line was that I was eating to much sugar. alchohol is a no no for candida. Then I developed a virus of some sort. I think an upper resp. infection. I was never the same again. Then it started with stomach problems then I got diagnosed with candida. Back then I could hardly get out of bed. I have been sick since. Not quite as bad as I was then, but still not good. Anyway, have to go for now. Somebody else responded to our thread. Her name was cathy. I think I will give her a quick response and then I have to go. I am looking forward to hearing from you soon. LaLa

     
    Old 02-18-2010, 06:16 AM   #9
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    Quote:
    Originally Posted by zipster View Post
    Hi lala,
    Yes i do have days when i feel almost normal i had a week at christmas and a week last week and i always think yey i think i am getting better and then it all comes back again.
    I might wait until i get the book and take it to my doctors and ask them about the diflucan and thyroid and hormone stuff but i doubt they will
    take any notice.Anything alternative or out of the normal tests they just snub.
    I wish i had loads of money and i could try every test and supplement but unfortunately it doesn happen like that does it in the real world.
    I have ordered the energy revitalisation powder,adrenal stress end,end pain formula,probiotic pearls,sleep formula and dhea.
    I also have started taking d-ribose,nac,3lac and coq enzyme. Phew and thats not them all he recommends but its to expensive.
    Do you have trouble sleeping? I never used to have this problem but the last 12 months i cant sleep and my legs pain and burn which is a symptom of fibromyalgia i have been told.
    My back pain started first its right in the middle of my spine and it seems to make my neck/shoulders and everything else hurt. I also feel off balance
    alot and a foggy head and headaches.
    I have had a neck mri,a spine x ray and they are all normal.
    I recently had bloods taken and my plasma viscosity was slightly high and eosinophils were low so i am having them repeated next week but i bet they are normal this time as its happened before.
    I know its depressing not being able to do the things we want to do isnt it and i have 2 small children as well and i cant do all the things i should be able to at 40.
    I wish they would hurry up and find a cure or cause or a tablet to make us feel a little better.
    Oh well at least your doctor seems to be willing to try the diflucan so good luck.
    Bye for now xx

     
    Old 02-18-2010, 06:19 AM   #10
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    Zipster:

    I forgot to mention in my response, that I also sometimes have a balance problem. I know I am on solid ground but something in my head makes me feel that I am not balanced. It is hard to explain. It is not a dizziness. I just feel off balance. Also this other girl Cathy who responded to us said she could not get past the taste of the ribose powder. Did you buy the powder form and what did you think? LaLa

     
    Old 02-18-2010, 06:29 AM   #11
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    Cathy:
    I was check for gluten. That is celeiac disease (I think I spelled it wrong). It was negative. I also have hypothroidism and hashimotos. I take synthroid. Why are you in bed all day. Do you have cfs. What are you doctors telling you. Your natural doctor mentioned Dr. T's protocol? What exactly? So I assume your natural dr. knows all about Dr. T and is an advocate of him? That is good to know. Let me know? LaLa

     
    Old 02-18-2010, 06:45 AM   #12
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    OH yeah, celiac disease, that's it! lol! I'm in bed all day because I am exhausted from adrenal fatigue. It also causes me to feel bad some days, like I feel shaky or sometimes I get nauseous, or just suddenly I'll start having pain a body part that doesn't normally hurt. Last night I started having terrible pain in my right lower back, it was about a 7. Just out of the blue. I have not been diagnosed w/ CFS but adrenal exhaustion/fatigue.

    I do have an issue w/ my back in the thorasic area and am under a Pain Mgt Specialist care. I'm getting ready to begin physical therapy for that. If I'm up moving around more than 30 min or so it starts hurting really bad, I apply either Lidoderm or Flector patches trying to keep the pain down. I also will use ice there. I've been doing some PT on my own too. ITs just awful. We think I have a T7 issue . I used to have tears in L4/5 disc and had them repaired and they are doing great! So that is great news!

    Yes the naturalist Dr. I USED to go to does a LOT of research on alternative medicine and Dr. T is one of them. He has also mentioned a Dr. Beck and probably some others but I cannot remember because I live in such a fog.

    I do have hypothyroidism and take synthroid 137 mg as well . I was diagnosed in 2000 w/ this, both my mom and sister have issues.

    I also have severe joint pain in my hands and ankles that my rheumy has written off to the fibromyalgia, all bloodwork is negative for RA and inflamatory diseases.

    Ok, rattling and writing a book!

    thanks for listening,

    Cathy





    Quote:
    Originally Posted by lala52 View Post
    Cathy:
    I was check for gluten. That is celeiac disease (I think I spelled it wrong). It was negative. I also have hypothroidism and hashimotos. I take synthroid. Why are you in bed all day. Do you have cfs. What are you doctors telling you. Your natural doctor mentioned Dr. T's protocol? What exactly? So I assume your natural dr. knows all about Dr. T and is an advocate of him? That is good to know. Let me know? LaLa

     
    Old 02-18-2010, 07:56 PM   #13
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    Cathy:

    How do you know you have adrenal fatigue? I have some of the same symptoms. Sometimes feel shaky and get pain out of nowhere. Today I had a sensation on the top of my right thigh. I don't feel it is muscle pain. I did not pull anything. It is not pain it is just a funny sensation. I don't know what it is. I have severe neck pain and tingling on the top of my head. I don't know if I told you that already. Are you going to start Dr. T's protocol or waiting to hear from zipster to see how she does with it. Do you have any stomach problems as well? Mine are severe. I don't know if we are allowed to do this but if you want to correspond via our own e-mail I would not mind. What do you think. We can even exchange phone numbers and talk on the phone. I don't know the rules on this board. Good night. Talk soon. LaLa

     
    Old 02-18-2010, 08:18 PM   #14
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    Lala, there's a test called the ACTH test my endocronologist did. IT tests your cortisol levels. That's how I know. Not going to do the Dr T thing right now, still giving this Dr. a chance to figure things out. If she doesn't then I will go back to the naturalist route. Been living with it for over a year . suxors, ya know? can't drive at all now cuz I'm just too sleepy, might fall asleep at the wheel. Yes I do have some tummy problems, nausea when I eat too heavy of meals, I get shaky or even feel like someone is pulling on the bottom of my tummy, werid. I'm not sure about the rules of the board either.

     
    Old 02-22-2010, 06:40 PM   #15
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    Re: Do I have Chronic Fatigue if I dont sleep all day? Sombody Help Me

    How much you sound like me! My started with a flu too. I thought I had found the answer after 18 months I went to a CFS specialist who was an allergist and I started candida shots. I was back to being my Type A personality for about 3 months and then all the CFS mess set in again and no matter how much he tried to bring back that wonderful "ME" feeling nothing would bring it back. Struggled for answers for two more years and then went to dermotologist because my shingels kept recurring. She said let's try a month of Valtrex! How wonderful to have my life back!!!! I could cry!! I almost forget that I ever had the chronic fatique. Of course I still have it. I know that when I forget a day of Valtrex. She put me on a daily dose of 500 mg but somedays I take 1000mg when I need to. I have had myself back since the beginning of October. I would say my energy back but of course the CFS or is it really HHV-6 is much more than just fatique. Brain fog, memory loss, IBS, Panic Attacks, a complete change of the way you look at the world. I am such a type A personality that my husband and kids knew something was wrong even when I was still trying to pretend that sleep would help.
    You can't imagine how wonderful it is to have your life back. I didn't sleep all day but I fought to stay awake until noon when I would take an hour nap and then was really groggy all afternoon until I had a nap at 4. I hiked an hour everyday with my hubby which really did help but we sure couldn't go as fast or far as we had before this happened. My hubby is a saint. Never once did he doult how much I struggled because I guess he could see how much I fought it. In fact it was seeing how much of my work he was taking on that made me realize I wasn't fooling anyone.
    Fortunately I work from home so I can nap. I could never have worked away from home or for someone else and I wouldn't have been able to hid it as long if I had worked for someone else. But my customers did have inklings that something was wrong because of my memory. To this day I haven't told them because they would say "we better not call with an order because she might be sleeping"
    Have you ever had shingles? or mono? The very best to you.

     
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