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newly diagnosed with CFS

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Old 04-01-2011, 05:50 PM   #1
Junior Member
Join Date: Mar 2011
Location: NY
Posts: 24
historie86 HB User
newly diagnosed with CFS

I went to the infectious disease specialist today and he diagnosed me with Chronic Fatigue Syndrome. I will be taking a regimen of vitamins for the next month to see if my condition improves. If it does not, my doctor said that there are other medications we would try. Iím curious as to what treatments other people have used and if they have been successful. Iím also curious to know how long other users have been living with CFS and how theyíve adjusted their lives.

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Old 04-07-2011, 03:31 AM   #2
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Join Date: Nov 2008
Location: Houston, TX, USA
Posts: 35
katyhilton HB User
Re: newly diagnosed with CFS

I was diagnosed 7 weeks ago. My doctor did an "immune challenge" test to see how my body responded... This was just some normal immunizations and then come back 5 weeks later to see if I produced antibodies appropriately. She tested my glutathione levels and my ATP levels - they are low so I get to give myself weekly glutathione ATP Shots. I should expect to have to do this for quite some time. She gave me a list of 5 VERY HARD to locate suppliments to take along with my daily vitamin. She told me no alcohol, no refined sugar and cut back on caffine. I'm prescribed an amphetamine so I can get out of bed (I was I'm it ten days before this doc saved me)... She did allergy testing. She said certain allergens can make it worse. She told me to move around but don't ever push myself. As far as coping - I HEAR many people get depression. But my diagnosis is new. I have been freaking for 16 months trying to get a diagnosis. I am so flippin happy to have a diagnosis and an aggressive doctor who seems so smart that I am NOT depressed. I think it might be a honeymoon stage though. I know this might be a long hard battle. I feel guilt - I am a mommy that is not much of a mommy anymore to 3 boys. I am scared the guilt will get me bad at some point. I fear my husband will tire of my uselessness. Looking ahead... It scares me. I am trying to just focus day by day... It's hard. They tell me to go apply for SSI. I don't know how and I can't think straight. I wish I had someone to help me with anything involving thought. I don't. I lost $3000 st disability insurance I was paying for because nobody would help me process it. Since my neuro problems are so severe... I have problems with that. I hope you have help. My "friends" scattered for the most part. My family is dead or over-seas. I hope you were diagnosed earlier than I was. I think I was near coma. Earlier the diagnosis better the prognosis.

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