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CFS: How long are your good/bad cycles?

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Old 10-20-2011, 12:35 PM   #1
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CFS: How long are your good/bad cycles?

Hi, I'm new here. 34 y/o male. Previously active (surfing, jogging, weights, etc). I don't have a diagnosis yet, but in the last 5 months I have had 11 blood tests, 2 CT scans, 2 X-rays, and various other tests ruling out nearly everything other than CFS. My doctors seem reluctant to diagnose CFS, but for now I'm assuming it is CFS until proven otherwise.

My symptoms are: extreme fatigue (everyday), shortness of breath, unexplained loss of weight, sore throats, swollen glands in neck, pain in/near kidneys, loss of appetite, and many others. (No muscle or joint pain yet, thankfully.) I think this all started with a viral infection.

Having read this board for the last several days, one thing that makes me question whether I have CFS is the many people who describe long periods of feeling relatively normal between relapses. Granted, I've only had this for 5 months, but I have not experienced relief longer than a few days.

I have been charting how I feel, giving myself a percentage for each day, with 100% being how I felt before I got sick. Generally, I experience 2-4 day periods of feeling 70-80%, followed by 2-3 days of 40-50%, where I can barely drag myself out of bed. This is a little oversimplified, but you get the idea.

Does anyone else experience such frequent cycles? If not, what are your cycles?

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Old 10-22-2011, 06:53 AM   #2
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Re: CFS: How long are your good/bad cycles?

Hi Brodie,
I believe everyone with cfs goes through those cycles. I noticed you had loss of appetite as one of your symptoms. I believe eating is one of the most important things you can do with cfs. When I didn't eat I would get worse. I read that a person can workout and in 2 days be fully recovered. A person with cfs will be in worse shape after the 2 days. When you feel good you might be over doing it and catches up to you a couple of days later. It's smart to keep a daily log. I did that. It helped my doctor understand more what was going on with me. If you have any questions don't hesitate,

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Brodie179 (10-25-2011)
Old 10-25-2011, 04:48 PM   #3
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Re: CFS: How long are your good/bad cycles?

Thanks Joe. I have been doing more reading on CFS, and it sounds like this thing is truly different for everyone, including the length of good/bad cycles.

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