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Wishes4more24 02-11-2012 11:14 PM

sleeping my life away because of no energy. Can you help?
At the age of 24 you would think that I would be at the peak of my energy threshold instead, I find the most simply tasks very difficult. My life has gone from being a completely active kid with everything from dancing to sports to basically waking up and laying on the couch with absolutely no energy for anything. I was looking for ideas on what would make someone this tired so that I could go to the doctor and have a list of things my doctor could test for. Diet wise I havenít been eating too well. I live with my mom & grandmother.

My grandmother has been diagnosed with Alzheimerís disease and has been sick for the past 5 years so unfortunately we had to have all the knobs taken off our old stove because she has tried to cook and set fires. So, the microwave has become my new best friend. Yes, I know itís not good to eat like that but my living circumstances canít be changed until she passes since we are her only means of full time caretakers.

My diet is very poor, I used to eat meat but was never big on it so I stopped eating all types and also fish (never liked it much) about 3 years now. When I first started, my body was quite happy. I lost about 10 pounds within the first two months. I was doing well weight wise, I was about 20-30 pounds from my goal weight when I was rear ended at a red light and obtained some pretty bad injuries which would both require surgeries months later and unfortunately I gained all my weight back plus some. Now, I find myself eating a lot of the same things everyday and Iím really quite sick of it.

Since we canít cook at my house because of my grandma I tend to eat a lot of frozen dinners or prepared things that I can buy from the store. I also eat a lot of fast food but usually certain things since vegetarian fast food is hard to find. I know that diet can be a factor in my loss of energy so thatís why I wanted to give a little back story on my diet.

My days now basically consist of sleeping in till 5pm, lying on the couch watching TV, movies, playing video games, caring for my dogs and my grandmother. I have pretty bad insomnia for a few years now which basically I assumed from either my depression itself or the medication I have been put on for it. I was working full time up until about 6 months ago, so my sleeping schedule was more normal then but now that Iím not working, my sleep schedule has become really wacky. I was always a night owl but month by month my bedtime has become later and later to the point where even when I try to go to bed earlier I canít sleep at all, even when I take medications to help me sleep.

When I do find myself able to go to bed earlier, I sleep through my alarm or find myself unable to get out of bed. When I do get up, I end up falling asleep on the couch during a movie or have to force myself to stay awake by drinking tons of coffee or taking caffeine pills just too barely function. I have found that the longer I have been on any type of theses pills to help me sleep, whenever all natural like melatonin or prescribed sleeping pills from my doctor, my tolerance for them has become quite high and I find them not working anymore or barely working.

I know it seems silly that I am here on this forum trying to gather information about being tired all the time, yet I actually have trouble actually sleeping. If anyone could offer me any tips on changing my sleep schedule so I can get to bed and wake up at a more decent time I would be very grateful.

It has become harder and harder to do the little things like stand in the shower or take care of my dogs. At first I thought maybe I was just lazy but I found myself needing to sleep more and having trouble with such simple tasks. I have basically stopped trying to do anything that requires me to exert a decent amount of energy which is bad for someone of my age. I feel like Iím missing out on so much in life and I just want to have a normal life. I have lost a lot of friends since not a lot of people would put up with me always breaking plans since I could barely stay awake and most people just didnít understand.

Health wise I donít have anything majorly wrong with me or at least I havenít been diagnosed with anything yet. I do get sick very easily, even when I was younger I found myself missing a lot of school because even being near anyone with the slightest cold I would catch it and be sick for weeks. When I was a junior in high school, I lost a friend in a horrific car crash which started my depression and thatís why my doctor put me on antidepressants and anxiety medication.

I started to experience terrible nausea everyday to the point where I would gag nonstop but never vomit. This went on for years, but unfortunately I missed a lot of school because of it and my mom had me home schooled from there on. The doctors chalked up the nausea as stress related and years later it died down but I still experience it every once and awhile. Every since then, I have been on antidepressants and anxiety medications which may contribute to my lack of energy.

I am also in a lot of pain joint wise, my fingers and other joints tend to ache a lot but the doctors could never figure it out. Always came back with negative results for things like limes disease and such. Iím not sure if the pain contributes to my exhaustion or is simply another symptom.

I tend to have problems with my bladder as well. I always have to run to the bathroom and have constant Urinary tract infections. I have been to a specialist who checked my bladder out with a camera but the results from the test came back normal. I thought maybe I should be checked out for diabetes since it runs in my family and I have the exhaustion plus the bladder issues.

If anyone could help suggest things to improve my energy levels or suggest tests that I should tell my doctors about so I could start feeling better, Iíd appreciate it. If anyone else suffers from similar symptoms or is close to my age and finds themselves always exhausted, please let me know what you do to improve your all around health or what helps you increase your energy so you actually can participate more in your own life. I am up for suggestions and also just to talk to people who feel similar about just wanting to enjoy their life more than just basically watch it pass by.

sleepytee 02-13-2012 01:27 PM

Re: sleeping my life away because of no energy. Can you help?
24: Until you get the blood tests and some definite answers. Try getting outside; even if you just drag a chair outside and sit for 20 minutes a day; this will get your (probably low) Vitamin D up. Make sure you do this a couple times a day. Log this daily in a note book; plus log your water intake. Consistantly drink at least 3 quarts of water every day. Dehydration has the same symptoms as Chronic Fatigue; this will also flush out any toxins you may have. If you skip a day your body will retain the water the next day when you resume. So try to be real consistant; it's easy to forget. If you enjoy cokes or tea, give yourself a treat of some AFTER you've drank 2 quarts or so. If you don't have filtered water, consider getting reverse osmosis water or distilled water; it's worth the trouble. Low carb diets and eating often keep your blood sugar at an even keel, too. Figure out a way to cook and mostly vegetables. An Alzheimers family member is a Sad, sad situation. Call your local charities, county mental health, red cross; everyone until you find an agency that will at least have someone come in and help with her daily ADLs or cooking or cleaning or something. (While someone is with her; cook vegetables-and forget the microwave.) It will only get worse and it is TOO hard emotionally and physically; as you are seeing. Anything you can do with a routine is very good. Even going to the local library once a week to read about "low glycemic foods", or "super foods". Good Luck! Keep me posted.

BelleoftheSouth 02-14-2012 07:57 AM

Re: sleeping my life away because of no energy. Can you help?
(((Hugs Wishes))).

Has your doctor tested you for Lyme Disease? if not then he should and maybe a sleep test should be in order for sleep apnea?

I sure hope you feel better soon.


randomname1 02-14-2012 09:52 AM

Re: sleeping my life away because of no energy. Can you help?
I don't know what it could be but can sympathize with how you are feeling. I used to be constantly going out for sports when I was younger and only needed to sleep like 6 hours a night. Was always full of energy the next morning. Ever since a couple of years ago my energy has been draining and I find myself going to sleep earlier and earlier, now going to sleep at 8pm! to wake up at 6. I feel OK the next morning but my eyes look like I haven't slept in weeks. This makes me not want to go out and I want to go to sleep earlier, which means my social life has suffered as well unfortunately. Whats more is I get so stressed about it sometimes that I cant get to sleep and just lay in bed for 3 hours, even after taking warm milk and Valerian root tablets etc which makes everything worse for the next day. I myself am also in my early 20s.

I'd say follow up on that diabetes route next and let us know how it goes. Good luck x

AlwaysTired247 03-16-2012 01:27 PM

Re: sleeping my life away because of no energy. Can you help?
I feel your pain. My fatigue started when I was 23, and I'm now 29 going on 30. I can tell you that it's important to exhaust all resources that you can to find an answer, however starting with a healthy diet and better sleep schedule should be the first, followed by blood work and possibly anti-depressants.

I've been going through this for over 6 years now, and have yet to find the reason why my mornings feel like I haven't slept at all and my days are like walking through an ocean floor.

I use to live off 6-7 hours a night, workout for 2 hours a day, eat healthy as a horse. This came out of no where.

Nothing has worked for me, yet, and I'm nearing the end of my mental stability and will to live. Hopefully, you will have better luck!

sleepytee 03-16-2012 09:51 PM

Re: sleeping my life away because of no energy. Can you help?
We all have to keep trying. Despite the doctors who want to give us pills for the symptoms that cause more problems. Despite the fact that friends don't understand and eventually stop calling. I believe it is genetic. I watched my father die and my 29 year old son has soooo many similar symptoms as I have. I liken it to being already dead. Not living, just in a constant fog while the world keeps moving on...without me. Eating low glycemic foods, no gluten and drinking lots of water (especially in the mornings when my BP is extremely low). Min of 3 quarts a day. Good luck to you all....Don't let it beat you...We will stumble on the answer one day and share with the rest...I'm just sure of it!!!

waitingforhope 04-21-2012 03:52 PM

Re: sleeping my life away because of no energy. Can you help?
Hi Sleepytee, I have been battle this for 1 year, and have not seen Breakthrough either. I'm 34 years old, and I know you had asked about suggestions for tests. One test I would suggest would be a sleep test, my dr suggested it to me which I resisted, but not I've finally agreed to to see how much I'm actually sleeping. Also, as far as the bladder issue, I have the diagnosis of Interstital Cystitis/Painful Bladder syndrome since I was 19. I was misdiagnosed 5 times until they put a camera in my bladder and saw the inflammation. I don't know if you said you had a hydrodistention test with the camera or not? It could also be Overactive Bladder possibly?
There is medication Nuvigil, and Provigil out there that is used for CFS. I have taken both, I take the Nuvigil, but I don't see it working that great. The medications you are taking may definitely be having a big effect on your fatigue too. I know that the medications I have to to take in order to GET to sleep, make me exhausted. Just throwing out some suggestions, know that you aren't alone in this battle, there are other soldiers cheering you on. :)

chief12 06-27-2012 01:44 PM

Re: sleeping my life away because of no energy. Can you help?
i would get checked for ebv i had smae problem rforeight years once you know then write me back

chief12 06-27-2012 02:05 PM

Re: sleeping my life away because of no energy. Can you help?
i would get checked for ebv i had same problem foreight years once you know then write me back

vince10 07-02-2012 11:50 PM

Re: sleeping my life away because of no energy. Can you help?
I had terrible chronic fatigue for ten years. I sat on the couch in a daze all the time. I would put off things that I had to do like filing my income taxes because I could not concentrate enough to do it. I was always late and paid late penalties. I got so bad that I lost out on a $250 rebate on something I bought because I could not get up the find the receipts I put away in my office. I was taking Provigil and it helped quite a bit despite insomnia and some muscle aches side effects. But when I had to change insurance companies, my new health insurance did not pay for Provigil. That was 2 years ago. Without insurance, Walgreens charged 8 dollars a pill for it. Then I went to get a refill one month and Walgreens raised the price to 38 dollars a pill. I called Walgreen's main office to complain. I also called the company that makes the drug and they blamed it on the distributor, which they would not tell me who they were. Nuvigil replaced Provigil but that was 475 dollars for 30 pills. I told my doctor I can no longer afford this. He suggested I try Ritalin, which can and is used in adults for the same conditions as Provigil. I always thought Ritalin was just for kids. Anyway, I can't believe the difference it has made in me. My concentration has been great and I actually look for things to do everyday instead of sitting on the couch in a fog. It has much less side effects that Provigil. I know Ritalin is suppose to be in the amphetamine family, but I have taken amphetamines a few time when I was a teen and Ritalin does not give me any of the side effects of nervousness or insomnia. As strange as this sounds, I actually sleep better on it. Maybe because I am a lot more active. Plus it cost me only 15 dollars for a three month supply. If your doctor will give it to you, start out with half the dose he recommends to see how it makes you feel.

celestialkel 07-03-2012 09:23 AM

Re: sleeping my life away because of no energy. Can you help?
have you had your Thyroid levels checked?... that can cause fatigue big time!

RikkiT 07-08-2012 08:01 AM

Re: sleeping my life away because of no energy. Can you help?
If you haven't eaten any meat and taken no supplements for 3 years, you probably have B12 deficiency, which can cause all the symptoms you have. Try getting your doctor to test for B12, and in the meantime, start taking vitamins with minerals and an extra B12 and Iron tablet.

sleepytee 07-24-2013 12:30 PM

Re: sleeping my life away because of no energy. Can you help?
Waiting for Hope, Vince & All,
Yes - Ritilin is the ONLY thing that gets me up and awake. My dosage is the same as they prescribe 3rd graders. I take the generic and it has trippled in price recently. Still better than Providual/Nuvidual that did not work near, as well AND without those side effects. Beware: Take it the same time every day and DON'T miss a dose. The sustained released don't work for me, it never quite kicks in. Thanks for the suggestion of the bladder test, I'll check that out; inflammation in general is a culprit for all of us. I have learned more from "fellow" sufferers than anywhere. I've learned a few things since my last post. Look up "NO/ONOO Cycle Biochemistry". Dr. Pall Protocol. I've taken vitamins at different times throughout the years. But this is the first understandable information I've found about the whole process of causes, stressors and "fixes". I've just ordered his book and vitamins. Pass it on guys!! Liquid vitamins or sublingual work well for us, because most of us have a problem absorbing our vitamins/minerals from foods/pills. At least break vitamins in 1/2. Dr. Pall's papers don't mention the link of Nitrous Oxide to other things like Alzheimers but I've read papers that do attribute it to that and MANY other debilitating things. I believe you all when you say: you "can't get up and/or hurt". Ignore all those people saying "you don't look sick" and realize WE WILL BEAT THIS....together!!! Keep the faith!!!

alyssabrooke 12-06-2013 05:51 PM

Re: sleeping my life away because of no energy. Can you help?
Hi, I read your post and I actually have the same issue. I also have extremely low energy levels. I normally wake up around 3PM, however I have insomnia and cannot go to sleep until around 4 or 5AM. I find myself staying up later and later every night. If I try to go to bed earlier, I will still sleep until the afternoon. I used to eat a lot of meat but stopped because it was getting expensive and I didn't always have access to a kitchen at meal time (I run a business which requires me to travel throughout the day and I can't always go home to cook). I have also stopped eating vegetables and eat mostly fruits, sugary foods, and fast food. Basically anything I can eat on the go. I have extremely low energy levels and when I am awake I can hardly do anything except get up to go to the bathroom and watch TV, movies. I also contract frequent UTI's and constantly have to go to the bathroom. I feel depressed and I know that I am missing out on so much because I'm so tired. My business is also suffering because I haven't been able to work. Did I mention that I'm only 25? I was just wondering if you found out what you have? Our symptoms seem to match and we are in the same age bracket. Any help would be greatly appreciated. :)

itburns2004 12-08-2013 09:49 PM

Re: sleeping my life away because of no energy. Can you help?
Have you inquired about getting a b12 shot. See if that helps. I dont think its a cure, but it will perk you up a little bit.

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