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  • 26 years old, unexplained symptoms for over a year despite testing

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    Old 12-25-2014, 02:51 PM   #1
    gatorgirl1214's Avatar
    Join Date: Dec 2014
    Location: South Florida
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    gatorgirl1214 HB User
    26 years old, unexplained symptoms for over a year despite testing

    I just turned 26.

    Medical history:
    Gastric Bypass March 2012
    ADHD diagnosis with stimulant medications September 2012
    Anaphylactic reaction in May 2013, epinephrine used and Prednisone taken for ~12 weeks.

    My symptoms started around September 2013.
    - Poor short-term memory and recall
    - Hypotension (normal for me has been consistently 100/60)
    - Hypoglycemia (has gone done to the 50's)
    - Worsened vision (had glasses before, but RX has gotten stronger in two years)
    - Extreme fatigue, to the point that I cannot get out of bed and get moving in the morning
    - Lethargy at rest and with activity
    - Consistently swollen lymph nodes for at least 6 months
    - Frequent scratchy/sore throat
    - Increased perspiration
    - Freezing cold hands and feet
    - Weight loss (I had stabilized after bypass, but I have lost about 8-10lbs in the last 6 months without trying)
    - I sleep 7-12 hours a night, but wake up exhausted
    - Usually more awake at night if I was active during the day
    - Increased emotionality and irritability (usually only at work)
    - Inability to focus on anything, even with ADHD medications
    - Frequent urination
    - Occasional rapid heartbeat while at rest at night
    - Decreased appetite
    - ZERO libido, which was not always the case

    My ferritin was low, so I got iron infusions, and my levels are normal.
    Protein levels are normal.
    Thyroid levels are normal
    I have a Mirena IUD (only for 5 months), but previously used Nuvaring and the pill (for 6 years)
    Cortisol AM/PM test was normal
    B1, B6, B12 all normal (vitamins and injection of B12 monthly)
    Only caffeine I drink is tea, but it doesn't help at all
    Doctors have screened for depression, anxiety, bipolar, etc. - only found ADHD

    My primary says all of my symptoms are in my head, and my psychiatrist won't prescribe Nuvigil or Provigil. I have been to a hematologist, neurologist, endocrinologist, and psychiatrist.

    Nothing has come back abnormal in testing.

    I'm a grad student, but I had to quit my job because I was constantly tired and couldn't handle the stress of both at the same time.

    I feel so defeated all the time. My boyfriend seems unhappy because we are never intimate, and I never have energy to do anything fun. I get home from school and sleep.

    Does anyone have any ideas about if CFS sounds possible, and if there is a different specialist I could benefit from seeing?

    Thank you so much!

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    Old 01-05-2015, 07:01 PM   #2
    Wildcat859's Avatar
    Join Date: Jan 2015
    Location: Kansas
    Posts: 1
    Wildcat859 HB User
    Re: 26 years old, unexplained symptoms for over a year despite testing

    Hi GatorGirl,

    I understand much of your pain. I am a 25 year old recent college graduate that has been struggling in the working world for about a year and a half now I don't have the health history you have but I incur many of the same symptoms. Sometimes just getting out of bed and starting the day seems like an impossible task. I disagree with your physician that it is all in your head, as many people on these boards would agree with me this is a real thing.

    I have tried many treatments including Nuvigal and other stimulants, which actually made me seems worse. Even the slightest stumulant makes me super twitchy and feel even more out of it than I do on somedays. They seemed to make me feel even less cognitive than I even was. The one thing that I have tried I feel that has helped me is taking a small dose of anti depressant ( I use Lexapro) Its not that I am depressed at all, I am actually a very upbeat happy person but it helps me to deal with the challenges that I face everyday. I have noticed that since I have been on it for around 6 months now I don't have the "awful" days as much. Not saying this is a cure all or anything I still have all my symptoms but it seems to help keep me in a positive place.

    Another thing I have been attempting to do is eat 6 small meals a day instead of 2-3 big meals. I noticed a lot of times my fatigue sets in worse after I eat a large meal. I'll keep you in touch on how this goes.

    CFS sounds like it could be very likely or a post viral fatigue syndrome/auto immune disease (Which I think I have)

    Its hard for me to recommend any specialist when I haven't had the best of luck with any of mine I have gone too

    Best of Luck

    -Fatigued in Kansas

    Last edited by Wildcat859; 01-05-2015 at 07:06 PM.

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    Old 01-06-2015, 07:34 AM   #3
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    Tenajuk's Avatar
    Join Date: Jan 2014
    Location: UK
    Posts: 38
    Tenajuk HB User
    Re: 26 years old, unexplained symptoms for over a year despite testing

    Sounds like it could be cfs/ME - so could be neurobiological. If so you need to self regulate your system... so stick to a routine with regular healthy meals, rest between activity, find a level of activity ( exercise, mental, stress ec.. ) that you can maintain without causing your symptoms to be too bad. Live a healthy well balanced lifestyle. Which is good even for ADHD.

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