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    Old 01-12-2014, 04:03 PM   #1
    cueva
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    Chronic neuropathic and back pain

    I have idiopathic small fiber polyneuropathy mostly on lower extremities and feet. Although I also have high skin sensitive and wearing clothes and taking a shower hurts me. I have failed back surgery (2 on L2 and one fusion on L2/L3). The pain is unbearable. I am taking Morphine ER 15 mg, Neurontin 600 mg, Topamax 125 mg. I tried to increased Neurontin, but the side effects (stomach pain and increased constipation). I am also on Clonazepam 1.5 mg to sleep. And Benicar 20 with Thiazide 12.5 every other day. the two most troublesome pain are the neuropathy and back pain. please help with meds. BE AN ANGEL

    Last edited by cueva; 01-12-2014 at 04:07 PM.

     
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    Old 01-13-2014, 01:14 AM   #2
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    Re: Chronic neuropathic and back pain

    cueva-

    I deal with similar pain issues, including the neuro pain. Neuro pain is the beast. Does the ms contin set well with you-it should help somewhat with your back pain-you are on a very low dose of ms contin-you have much room to increase dose.

    You should discuss this wit your doc-you may already know that oral narcotics don't really help the neuro pain much-but if you get your other pain managed a little better-you can deal with the neuro pain better.

    Being hit with these two very different but nasty crippling pain is pretty bad I know all too well.

    At one time I was on 100mg ms contin 3 times a day.

    Then my doctor(pain specialist) suggest fentanyl patch may be better for me and may lessen the neuro pain, because of the way it is delivered via skin as opposed to having to pass metabolism.

    It has helped me-I share this with you, in hopes of letting you see there are other options to try-see what works for you-aand what does not.

    Managing chronic pain is hard work. Don't give up. Talk to your doc about a dose increase if appropriate for your pain. you must tell your doctor when something is not effective after giving it a fair chance.

    I get hit with some intense breakthrough pain a lot-interferes with sleep-thus the time of this post!! I do have short acting narcotic medication for this but I still have to wait it out.

    Do you have a short acting medicine to use with the ms contin?

    good luck
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    Last edited by BB07; 01-13-2014 at 01:37 AM.

     
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    cueva (01-14-2014)
    Old 01-13-2014, 01:18 AM   #3
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    Re: Chronic neuropathic and back pain

    cueva-

    I know how you feel as I with similar pain issues, including nerve pain, which is indeed very difficult to treat/get adequate relief. If you are tolerating the ms contin well-but miserable-you have plenty of room to increase dose=tell your doc-ask if an increase could be done-if you can at least manage the back pain better,, it will hel you tolerate the neuro pain a little more.

    To me neuropathic pain is the worst-but I find the meds I am on help me a lot with my back injury pain-so I am not fighting that pain as hard as the neuro-if that makes any sense.

    I at a point was on 100mg ms contin 3 times a day as my main source of relief-then I chose to switch to the fentanyl patch because it is delivered(the medication)via the skin-it has significate source of relief all around.

    Just be willing to try ANYTHING your specialist suggests-the only way to get to what may help YOU the most.

    My experience is mine-and may not be right for you. But you have the option to see what works for you.

    good luck
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    Old 01-14-2014, 02:19 PM   #4
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    Re: Chronic neuropathic and back pain

    Hi cueva, I have read your posts & am curious is there a specific test to diagnose idiopathic small fiber neuropathy or is it a generalized diagnosis based on symptoms alone? I had/have severe back pain & nerve symptoms for 20+ years & my diagnosis was failed back surgery syndrome, had 4 lumbar surgs. My MRI report stated "peripheral nerve clumping" of the spinal nerves & tethered spinal cord scarred to dura or thecal sac & my diagnosis remained fbss. I saw a new spine NS who told me that this clumping & my neurological exam definitively showed i had a condition called adhesive arachnoiditis. The main symptoms i had are severe back pain & nerve symptoms like burning, water trickling down legs sensation, numbness, tingling, balance problems & sometimes difficulty emptying bladder because the nerves are scarred down in my back.. It can be caused by myelograms, multiple back surgeries, meningitis & other invasive spine procedures & i had all of these except infection but had csf leaks with grafting & the NS said i can no longer have any invasive spine procedures or tests because it could make me worse.It first showed on MRI in 1988 & i was told in 2012, i learned to get a copy of my MRI's instead of just letting the dr tell me the results & i wondered if you had ever heard of arachnoiditis because until i was diagnosed i had never heard of it & some of symptoms you described seem kind of similar to mine. I had back pain first & then nerve "weirdness" on my feet & legs, numb toes started later & are progressing but lyrica helps control it well for me. I am sorry for your pain & suffering & hope that your dr finds a working treatment plan for you soon!
    relief soon!

    Last edited by gmak; 01-14-2014 at 02:27 PM.

     
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    Old 01-14-2014, 04:34 PM   #5
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    Re: Chronic neuropathic and back pain

    I have the same thing, I do not have short term relief narcotics. I was rx Neurontin, which I am afraid of. my mind is not functioning well due to pain, stress, depression and age 73. I thank you very much for your reply and recommendation. I will follow with my dr.
    be well.
    cueva

     
    Old 01-14-2014, 09:28 PM   #6
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    Re: Chronic neuropathic and back pain

    Hi cueva, Do you mean we have similar symptoms or that you have been diagnosed with arachnoiditis? Do you also have "clumping of nerve roots" on your MRI, do you have a copy that you could check for clumpng of nerve roots? Some drs are hesitant to make a diagnosis of arach & other drs dont know about it. Spine NS's & spine orthopedics have the most experience & training in disorders of the spine. Is your dr a spine specialist? Im sorry that you are hurting so much & there are other medicines that are prescribed for neuropathy symptoms such as cymbalta, lyrica, topomax etc that may not affect the thought process as much as neurontin. Neurontin works very well for some people & other meds better for others, im glad you are asking the dr because he could possibly adjust dosage or change medicines.

     
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