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    Old 02-23-2014, 09:10 PM   #1
    petmomful
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    Unhappy Chronic neck pain - no help - lousy treatment

    I am a newbie here, and I have been reading lots of posts on chronic pain. I have become even more discouraged as it seems I am not the only one who has had no luck getting relief from my pain. It seems I am not the only one whose dr. is rude and upsetting, calling me a, "fail." I am not the only who is looked at as a drug-seeker and practically forced into getting treatments I don't want anymore, or the dr. will threaten not to see me. People tell me to get off the meds, I will be better off in the long run, or stay on meds so you have some life quality. I am so confused and I do not know what to do. I take one kind of pain med, one anti-depressant, and one pill for sleep. My dr. is a jerk, and his staff sucks, but I am afraid to change dr.s again because each dr. wants to start you all over again, and thinks you are just dr. shopping or drug shopping, which I am not. I NEVER abuse my meds and only take the allotted amount daily, and very carefully. I do not know what my future holds but I know I cannot live another 20 years like this! The only thing I have going for me is some family support.

     
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    Old 02-24-2014, 09:30 AM   #2
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    Re: Chronic neck pain-no-help-lousy treatment

    Hi petmomful,
    sorry you have such a rude Dr. and bad staff, it stinks, as they are supposed to be compassionate, but so many are not.
    I once had a pain doc who although was nice enough, was an idiot. He misdiagnosed me. Either he couldn't read an x-ray or just didn't think it was important. And the fact was I had a large herniated disc and an ossificated ligament pressing on my spinal cord. So much the second doctor I went to was so upset by this he practically drove me to the hospital!

    Although it's a pain to start over, no one should have to feel like a drug seeker or not getting the treatment they deserve. I have to travel a good distance to my pain doctor, and although at times I think maybe I should go someplace closer, I know they are good and I always feel respected and like I matter to them and that counts the most. If I didn't I would go some place else.
    I also understand about hearing about getting off the meds, but what are we to do? If these people had one day of the pain we face the'd change their story quick enough. I don't take my meds to get high, I need them just to somewhat function and my doctor makes sure it's not too much, just enough to help with the pain.
    Hang in there and keep us posted. There are so many good people here who have gone thru a lot and give great advise and we are all here to listen. I know for me it helps just to get things off my chest and know someone understands.







    Quote:
    Originally Posted by petmomful View Post
    I am a newbie here, and I have been reading lots of posts on chronic pain. I have become even more discouraged as it seems I am not the only one who has had no luck getting relief from my pain. It seems I am not the only one whose dr. is rude and upsetting, calling me a, "fail." I am not the only who is looked at as a drug-seeker and practically forced into getting treatments I don't want anymore, or the dr. will threaten not to see me. People tell me to get off the meds, I will be better off in the long run, or stay on meds so you have some life quality. I am so confused and I do not know what to do. I take one kind of pain med, one anti-depressant, and one pill for sleep. My dr. is a jerk, and his staff sucks, but I am afraid to change dr.s again because each dr. wants to start you all over again, and thinks you are just dr. shopping or drug shopping, which I am not. I NEVER abuse my meds and only take the allotted amount daily, and very carefully. I do not know what my future holds but I know I cannot live another 20 years like this! The only thing I have going for me is some family support.

     
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    Old 02-24-2014, 09:44 AM   #3
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    Re: Chronic neck pain-no-help-lousy treatment

    Hello and WELCOME to the board...You've arrived at a place of support, understanding, information, and most of all...compassion. We all understand chronic pain and the frustration of not only "living" with it, but also finding doctors who provide adequate treatment. I will say, from my own experience, it has been more difficult than I felt it should be. However, it seems that once I made the decision to try PM again last September...I was in his office by late January. That sounds like forever...and it was, believe me. The good news is that thus far he is kind and understanding. He is willing to work with me, as I have SO MANY gastric obstacles to medications. It will be trial and error for a while, but his willingness to "TRY" gives me hope.

    Don't give up. Keep looking for the help you need until you find it. Keep your post bumped and be more specific about your condition, as there are resources available to you=)

     
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    Old 02-24-2014, 05:54 PM   #4
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    Re: Chronic neck pain-no-help-lousy treatment

    Hi petmomful....yes, support is here for you...many empathetic, knowledgeable folks.
    I think seeking out a new pain management doc (pm) would be the best in the long run. I know its scary....One thing I recommended to those going to a new doc (the regulars here may be getting tired hearing this!ha ha) is to write or type up a complete list of all meds, vitamins and supplements you take (name, dose, frequency, route) and a concise list of all relevant medical issues you have had. Also a list of all surgeries including date and outcome if relevant. The new office will probably have you fill out a bunch of paperwork, and in those sections you can write "see list". Good doctors will appreciate concise and relevant information so they can get a good sense of what is going on with you. Best wishes, God bless you, and keep us posted!

     
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    Old 02-25-2014, 07:40 AM   #5
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    Re: Chronic neck pain-no-help-lousy treatment

    Just to add to this....many years ago I was dealing with chronic pracreantitus, and my current GI doctor wasn't doing much. My primary sent me to another doctor and he advised to write everything down that I have been thru with this, my hospital stays, all the pain I was going through, any mediations, family histories, ect. Well the new doctor was not only impressed, but very appreciated of this. He could easily look and see in my words what was going thru, and by doing this prior to the appointment I was very less likely to forget anything.
    I learned from this and now always do this for not only doctors but now lawyers. They have really detailed accounts of my entire medical history, and again are happy and amazed by them.
    So LadyBassPlayer, this is great advise and something I totally agree with.





    Quote:
    Originally Posted by LadyBassPlayer View Post
    Hi petmomful....yes, support is here for you...many empathetic, knowledgeable folks.
    I think seeking out a new pain management doc (pm) would be the best in the long run. I know its scary....One thing I recommended to those going to a new doc (the regulars here may be getting tired hearing this!ha ha) is to write or type up a complete list of all meds, vitamins and supplements you take (name, dose, frequency, route) and a concise list of all relevant medical issues you have had. Also a list of all surgeries including date and outcome if relevant. The new office will probably have you fill out a bunch of paperwork, and in those sections you can write "see list". Good doctors will appreciate concise and relevant information so they can get a good sense of what is going on with you. Best wishes, God bless you, and keep us posted!

     
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    Old 02-28-2014, 09:19 PM   #6
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    Re: Chronic neck pain-no-help-lousy treatment

    Thanks. The med I am on causes me to itch, especially my head. When I called the dr.'s office, they told me the dr. said I should go to my primary care dr. cause I may have a parasite on my head. I am 59 years old and I am SURE I do not have head lice. It started with the meds. They have NO interest in helping me or working with me at all. I tried to cut back on my meds to help alleviate this but it has been hell. I changed to a different recliner, so I could improve my posture, and now my upper body is screaming. I have tried other meds, on the insistence of the dr. but they made me vomit. I just don't know what to do anymore. I tried VERY gentle exercising, but it just makes all my muscles spasm. It really wasn't even exercising, just moving my head a bit. I am just desperate now. I guess I will have to stay on the meds I am on now.

     
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    Old 03-01-2014, 06:20 AM   #7
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    Re: Chronic neck pain-no-help-lousy treatment

    Do you have a good relationship with your primary care Dr.? I ask this, as if yo do and he/she listens to you, then I would suggest seeing them and explaining all that is going on and ask for help with meds and getting a better pain management doctor.
    When I had problems year ago, and I felt the specialist wasn't helping me, I went to my primary and he referred me to another doctor. In a few months the new doctor had everything under control.

    It is just so sad when doctors/nurses don't seem to really care. I was very lucky this week, as had my monthly appointment. The NP I see was very concerned that my pain has been worse the last few visits and set up appointments with one of the doctors and Physical Therapy. It really made me feel good that he showed concern.

    Hope things get better for you soon!




    Quote:
    Originally Posted by petmomful View Post
    Thanks. The med I am on causes me to itch, especially my head. When I called the dr.'s office, they told me the dr. said I should go to my primary care dr. cause I may have a parasite on my head. I am 59 years old and I am SURE I do not have head lice. It started with the meds. They have NO interest in helping me or working with me at all. I tried to cut back on my meds to help alleviate this but it has been hell. I changed to a different recliner, so I could improve my posture, and now my upper body is screaming. I have tried other meds, on the insistence of the dr. but they made me vomit. I just don't know what to do anymore. I tried VERY gentle exercising, but it just makes all my muscles spasm. It really wasn't even exercising, just moving my head a bit. I am just desperate now. I guess I will have to stay on the meds I am on now.

     
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    Old 03-01-2014, 01:53 PM   #8
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    Re: Chronic neck pain - no help - lousy treatment

    A suggestion for the itching, Benadryl if you can handle an antiistimine that is sedating, or zyrtec if that's a problem for you. Many people get the itching when they start taking opiates, but for many it gets better over time. You can also try pepcid or zantac for the itching, either along with or instead of the antihistimines.

    Tigg.

     
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    Old 03-01-2014, 04:11 PM   #9
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    Re: Chronic neck pain - no help - lousy treatment

    Indeed. The suggestions on this board have been beyond helpful. I, too, am new to PM and still in the trial and error period with meds.

    I had HORRIFIC ITCHING with the Methadone. A poster suggested Benadryl, but it added to the unbearable sedation. Then Zyrtec was suggested. It helped me tremendously. After 3+ weeks of trial, I had to switch meds because I was @ the same pain level with unbearable side effects on top of it. I switched to Morphine almost 2 weeks ago. I am experiencing the ITCHING with this med also, but I've stuck with the Zyrtec, which makes it less severe, without adding sedation. I am hopeful that this, too shall pass with time and that an adjustment of dosing with my next appt. will bring some sustained pain relief with the Morphine. I just have to give it time.

    Pain management is not a one size fits all program. I am learning more every day through those who have endured the trials and are now reaping the "rewards"---through a more manageable pain level. No, I'm not "there" yet, but thank GOD I'm finally on my way. I am so thankful for the supportive folks who know from which they speak and are willing to share their survival tips=)

     
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    Old 03-02-2014, 11:45 AM   #10
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    Re: Chronic neck pain - no help - lousy treatment

    Being a new user here I saw your post and I know what you are going through. I did find a solution to help with the pain and not use the medications that label you a drug addict. Not that that will ever end.. sorry to say. If you find my first and only other post you will see that I went down the rabbit hole and am now on the other side a better person. ask your doctor to read about SUBUTEX the generic is BUPRENORPHINE they come in 4 and 8mg pills. I can cut the 8mg pills into 4's and it totally fixed my pain with no side effects. Now this medication is commonly used to get people off of addictive medication. So it may cause the more ignorant medical staff to think you are on it to keep you from abusing pills. There is also the added bonus of your insurance company not wanting to pay for 30 to 60 pills per month because the FDA says that you need 15 pills every 3 months to keep you from opioid withdraws. SO they make you pay cash for the pills, they are not cheap I pay almost $400.00 to keep out of pain and not go though the addiction problems.

    Sorry to say its not the best solution for your wallet but its better then everyone calling you a drug addict.. even before they know the story.

    I hope this helps. Subutex saved me. Its not a perfect solution but for now its the best I could find..

    Good Luck..
    SubutexUser...

     
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    Old 03-02-2014, 08:13 PM   #11
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    Re: Chronic neck pain - no help - lousy treatment

    Hi everyone,
    Just a second to Subutex's post about buphenorphine....it is a partial agonist at the mu receptor and binds tight so other opiates don't have an effect ( that's the addiction use part) BUT it is also a good med for neuropathic pain, used in Europe and Canada a lot under the name Temegesic. Hopefully in the next few years this med will be used more for pain in the USA and won't have such a stigma attached.

     
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    Old 03-05-2014, 06:34 PM   #12
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    Smile Re: Chronic neck pain - no help - lousy treatment

    Hi there. I am very encouraged by all the people here trying to help. That's all we can all do really, do our best to help and do our best to find what works best for ourselves. (maybe in a different order tho. Lol) I try to have a sense of humor each day, and I don't, but I try. Humor helps lower our blood pressure, and it sure feels better than being stressed, doesn't it? I've been getting my pain management a little over a year, and still, STILL, (lol) each month, there's a new situation or problem......usually with my insurance saying "NO!" They always yell it, even in a letter. Lol. My Dr. increased my Fentanyl patch last month because I was starting to feel some withdrawal. My insurance won't pay it. To pay cash for it today, it was $138. So today I did. Next month?? I have no clue........ You see, I relate to your frustrations, alot. I could name some more, but I'm starting to depress myself. I'm proud of you for coming right out and asking questions, and then, asking more even. You'll do fine. I feel it. Keep up just what you're doing now. One month at a time.....Karlee.

     
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    Old 03-09-2014, 07:41 PM   #13
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    Re: Chronic neck pain - no help - lousy treatment

    I'm so sorry that your doctor and his staff make you feel like a drug seeker. In 20 years of chronic pain, I feel like I've been through the mill! I've encountered more than my share of rude and uncaring doctors.

    For years, I saw a neurologist who wasn't rude, but he made me suffer needlessly by NOT prescribing adequate pain meds and REFUSING to send me to a pain doctor! Even though my pain was becoming chronic, I was forced to ration out 2 months' worth of pills to last for at least 6 months. NOT a good way to live!

    I too felt trapped with my neurologist. I thought that maybe another doctor wouldn't believe me or give me any opiates at all. SO I stayed with the neuro for 16 long years!

    Finally, something very dramatic happened. I was essentially forced to find a new doctor, because my neuro wanted to drop me. I thought I'd NEVER get ANY relief from my suffering ever again, which would be HELL on Earth.

    But I got lucky. The very first pain doctor that I saw turned out to be extremely compassionate and understanding of my pain. And he was NOT afraid to prescribe adequate quantities of narcotics. I never knew that doctors like him truly existed! His staff is wonderful, too. His receptionist is handling the whole office, and she's one of the nicest people I've ever met. (I've had a LOT of bad luck in life, so I was so grateful to finally get lucky in finding my pain doctor).

    You shouldn't be treated like a drug seeker or an addict by your doctor or his staff. Difficult as it is to go to a new doctor, I'd advise you to break away from your current doctor and find a compassionate pain doc. Just arrange to have your records sent over and make an appointment. If your current doctor is a jerk, you really don't have much to lose. It took me far too long to take this advice, so maybe I can help you be telling you this straight out.

    If a doc is rude or opiophobic, it NEVER gets better, only worse. You'll never be able to change their minds about pain meds. Most docs are so scared of the DEA that they don't want to prescribe anything. A pain management doctor should be different. You can always make appointments with a few different PM docs, just make sure to be completely open about what you're doing. And obviously, DO NOT get any medications from a doctor until you've decided to become his or her patient. Good luck and I hope you find a better doctor!

    Last edited by Administrator; 03-09-2014 at 09:11 PM.

     
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