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Possible IBD but normal Colonoscopy, Gastroscopy??

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Old 01-31-2017, 11:09 AM   #1
Join Date: Jan 2017
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LBarakat1994 HB User
Possible IBD but normal Colonoscopy, Gastroscopy??

im a 22 year old female and have been having severe bowel problems for nearly 3 years! it started that id have around 13-16 BMs per day/night, always diarrhea, severe stomach cramps, extreme nausea right up until recently where id now have 4-8 BMs (around 12 on 'bad day') sometimes with a lot of blood and mucus upon wiping. often it wakes me during the night, I have also lost a lot of weight, sick a lot and in severe pain everyday. everyday is a struggle as I have to be at home due to having a phobia of using other peoples toilets! I still have constant diarrhea, and went to see my GP who did some bloodwork. My inflammation levels have steadily been rising and he referred me to a gastroenterologist (confident that I have crohns or colitis) the GI did a colonoscopy and a gastroscopy. they took biopsies and photos but said everything looked normal! im sick of them making me look like a fool. maybe I should just accept that I have ibs (although no ibs medications have worked) im just so frustrated, sore and tired of it all! is it still possible that I have crohns or colitis??

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Old 01-31-2017, 11:36 AM   #2
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Re: Possible IBD but normal Colonoscopy, Gastroscopy??

Are you taking a product like metamucil 2-3 times a day?

Does Imodium help?

I know how you feel. I've had IBS for several years now.

Best of luck to you.

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Old 01-31-2017, 12:17 PM   #3
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LBarakat1994 HB User
Re: Possible IBD but normal Colonoscopy, Gastroscopy??

I cant take Metamucil as im on lithium and they interact with each other.
Imodium makes me soil myself.. my doctor just told me theres nothing they can do, its so frustrating. but thanks, best of luck to you too.

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Old 02-22-2017, 06:08 PM   #4
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JustBreathe47 HB User
Re: Possible IBD but normal Colonoscopy, Gastroscopy??

You know your symptoms seem to be the exact same ones as my 17 yr old son. Do you also have a lot of Anxiety? That certainly can aggravate what's going on. My son had both the Endoscopy and the Colonoscopy and the results were Gastritis. We've tried a few different meds, added some, they made it worse, then changed them with another, then told us he needed to take one in the morning and one at night. He's STILL having problems. His pain wakes him up in the middle of the night too and yes he's also had blood in his stool and also has thrown blood up.
This has really started to scare me. Ok so anyway the next step was to swallow that pill that's a camera and we find out the results on the 27th. Only a few days to go. I changed his follow up appt because he was still in so much pain, but we have to still wait because the results haven't come back yet. Waiting is the worst!
She had originally tested him for everything under the sun. Celiac, Lactose, Fruitose, H Pylori, you name it, it came back negative. In the mean time they said write out a food diary so maybe we can also figure out about his diet.
The poor kid, he can get a stomach ache first thing in the morning and all he's had is some water. I don't buy crap like Soda, juice etc. He only drinks water or milk. He'll occasionally have a soda with friends, but that's really only once in a while when they go to Mc D's after school. He's already thin, and I'm worried he'll lose more weight. So trust me, I understand it. You must be feeling awful. If I were you I would get a second opinion. Your Doctor up there missed something. I'm gonna try and help my son with his anxiety because I know it makes it worse, but we might have to put him on meds for that too... Good luck! I hope you feel better.

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