It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Crohn's Disease / Ulcerative Colitis Message Board

Ulcerative Colitis I need Help!!!!!

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 07-13-2010, 03:12 PM   #1
ixielh's Avatar
Join Date: Jul 2010
Posts: 3
ixielh HB User
Ulcerative Colitis I need Help!!!!!

I got diagnosed with Ulcerative Colitis in April 2008 ever since that i been on meds i was healing feeling better for while but once my gastro got me off prednisone which is a steriod i felt my symptoms started to come back ever since that i feel like i havent gotten better even with medication im taking im even watching my diet and trying not stress anyways i beginning to think i might need surgery and have my colon remove since my syptoms had gotten worse constanly going to the washroom alot and the cramps and pain at times and not getting enought sleep because i go use the washroom at night I wanted to know if anyone how had UC had their colon remove if so did you have to walk around with pouch bag outside and for long time or forever ? Did the surgery work out find for you ? I need answers and i want to hear other people opinions i want to know if there is hope for me thanks have a wondeful day

Sponsors Lightbulb
Old 07-14-2010, 10:58 AM   #2
Join Date: Apr 2010
Location: London, UK
Posts: 7
Blackip HB User
Re: Ulcerative Colitis I need Help!!!!!

Hi ixielh

I had my colon removed in 1991 (aged 22) following a severe bout of UC. My op's were spread over about 6 months if I remember correctly. The first was to remove the colon and I had a stoma created at that time and had to wear a bag. The second was after 3-4 months when I had the internal pouch created, still with stoma and bag. The last op was to remove bag and activate the internal pouch. So I guess I had the bag for about 6 months although I was very poorly at the time of the first op and took quite a long time to heal/recover for the second one.

This was all a long time ago for me and I know from browsing the above sites that bag technology and aftercare has improved drastically since my op's.

Best wishes for the future.

Last edited by moderator2; 07-14-2010 at 11:26 AM. Reason: please do not post websites except as described in the Posting Policy

Old 07-17-2010, 08:47 AM   #3
Join Date: Jul 2010
Location: Jackson, MI, USA
Posts: 2
waytm HB User
Re: Ulcerative Colitis I need Help!!!!!

I had my colon removed in 1996 after battling UC for 12 years. The surgery included J-pouch reconstruction so I had a bag for a short time. Have been pain free. Depending what I eat, I have frequent bm's but no pain.

Old 07-28-2010, 02:56 PM   #4
Join Date: Jul 2010
Location: ireland
Posts: 5
number7god HB User
Re: Ulcerative Colitis I need Help!!!!!

ive been the same as you for last 3 years.all i can say is keep your chin up and hope for better times ahead as i do

Old 07-29-2010, 07:02 PM   #5
Join Date: Jul 2010
Posts: 2
jrp127 HB User
Re: Ulcerative Colitis I need Help!!!!!

I am also a UC sufferer just as you are so I understand what you are going through. UC can be a very pernicious disease. Is prednisone all you have tried?? There are also ASA-5 drugs such as Lialda and Asacol that can be prescribed, as well as a syntheitc steroid called Enticort. If that does not help there is always Imuran and Remicade as well as a few others that I have had little exposure to. As for myself, I have tried almost all of these and have been having mostly good luck with Remicade and have been in remission for at least a year.
I went through a phase of worry about losing my colon, as I am only 41. My doctor told me that if they could keep me healthy and in remision, colon removal would not be necessary until pre-cancerous cells are detected. With a little luck I just may be able to keep it another 20 years or so.

The main thing for you to focus on is getting healthy and maintaining remission. Try all the different drugs at your disposal, and only worry about colon removal after you have depleted the arsenal of medications that are at your Dr.'s disposal.

Best of luck to you in your fight against this terrible disease.

Closed Thread

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 06:50 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!