It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Crohn's Disease / Ulcerative Colitis Message Board

My Story With Ulcerative Colitis

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 12-12-2010, 08:45 PM   #1
Join Date: Dec 2010
Location: Austin, Texas
Posts: 3
marie12995 HB User
My Story With Ulcerative Colitis

Hi everyone. I just decided to share my story with you, hoping to show some people you are not alone. I know I felt embaressed and alone when I was going through some bad flare ups, but I know now that was never the case.

My story begins when I was 6 years old, in the middle of the school year I came down with pnuemonia. I have asthma, so I was prone to it. I was put on an antibiotic (i wish i remembered the name) and soon after I recovered from the pnuemonia I came down with horrible diarrhea. My mother was alarmed and took me to the doctors, who said it was from the antibiotics and the diarrhea would pass. It didnt. My mom brought me to the doctors multiple times, and got the same answer of "the antibiotics caused it" even months after I was off the antibiotics.

The summer came, and my family took many vacations. I could not do anything with them. I was terrified of being away from a bathroom for more that a few minutes at a time. The next year and a half of my life mainly consisted of accidents, being absent from school, and severe malnourishment. I didnt want to eat anymore because it would always make me have to use the bathroom nearly instantaneously.

Finally I started having blood in my stool. I never told my mom, but through a long story which I will not get into she found out. After that, my mom took me to the doctors, and today we saw a different doctor than usual. He could see there was something wrong. He promptly sent me into the hospital for a colonoscopy. I was diagnosed with Ulcerative Colitis and put on steriods on and off for the next six months.

I was placed into the care of a gastro-intestinal specialist. She wanted me to get my colon removed, but my parents refused to jump to that conclusion. It was only a last resort to them, and there were too many things to try before making that drastic decision. (BLESS YOU MOM AND DAD!)

I was put onto some medication (i wished remembered the name, again.) At this point I am about 8 I think. I was now seeing a GI specialist and a shrink (I have anxiety related to having accidents in public) and I am on medication. My parents also put me on an unbelievable strict diet. But it helped alot.

Through a long story, I came off the medicine and diet. Today I am actually almost symptom free! Some foods irritate me more than other kids, but I have learned to stay away from them. Now I am healthy and strong, and growing fine. I'm 15 now. I know a girl today who had her colon removed. She cannot put on any wieght, and cannot even get through a day of school without feeling exhausted and nearly fainting.

If you have kids with ulcerative colitis, or if even you have it, I beg you not to jump to removing your or your childs colon! It may seem like a fix, but there are other more healthy ways to try before you do this.

Thank you for listening!

The following 2 users give hugs of support to: marie12995
alabamarose46 (01-26-2011),nancyco14 (01-03-2011)
Sponsors Lightbulb
Old 01-03-2011, 06:43 AM   #2
Junior Member
Join Date: Feb 2009
Location: Shrewsbury MA USA
Posts: 49
nancyco14 HB User
Re: My Story With Ulcerative Colitis

Your story is interesting and uplifting, Marie. It's wonderful to hear that someone has achieved a positive result by herself and is feeling so good.
I've had UC for 24 years now and no medication has worked; I've thought seriously about having a colectomy and ileostomy, but your comments have really encouraged me to seek some other treatment. What foods have to found that help you and what foods cause the problem? I hope you have a moment to respond to me as my life is barely worth living.


Old 01-19-2011, 05:30 PM   #3
Join Date: Jan 2011
Location: Liberty Lake, WA
Posts: 5
TCable HB User
Re: My Story With Ulcerative Colitis

Hi Nancy,

This is my very first entry but felt I could relate to your feeling! I had severe UC and no medication would help and I continued to set sicker until I could no longer keep any food down at all and started loosing my hair as well as my mind many days! I had my colon removed two years ago now and while I am sooo much better, I still continue to struggle with what to eat. I can leave the house now for hours at a time and have returned to work. I no longer worry about accidents but have many nights of severe pain in my stomach area from gas build-up I think?! I am hoping to get support in the diet area. It is so hard when you don't have anyone to talk to to know if your symtoms are normal or if you are crazy. I think I am on the road to recovery, just didn't realize the road would be so long

Old 10-13-2011, 05:00 AM   #4
Junior Member
Join Date: Jun 2011
Location: Adelaide, SA, Australia
Posts: 21
Gucci HB User
Re: My Story With Ulcerative Colitis

Hi there,

Thanks for sharing.

What are you on these days?


Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Ulcerative Colitis? Chrohns? JESSIECOLA Crohn's Disease / Ulcerative Colitis 1 03-15-2011 09:48 PM
How can I treat my ulcerative colitis? lifeisg00d Crohn's Disease / Ulcerative Colitis 1 12-04-2009 09:05 PM
Ulcerative Colitis vs Chron's Disease JMYHNY Crohn's Disease / Ulcerative Colitis 3 05-02-2009 11:50 PM
Ulcerative Colitis/Proctitis, autoimmunity, and surgery MachOneMustang Crohn's Disease / Ulcerative Colitis 8 09-08-2008 08:45 PM
Colitis, but not ulcerative colitis? debbiebee Crohn's Disease / Ulcerative Colitis 29 07-31-2008 05:20 AM
Ulcerative colitis and crohn's disease marypar Crohn's Disease / Ulcerative Colitis 12 04-16-2008 06:59 PM
Ulcerative Colitis + Colon Cancer... Steven94598 Crohn's Disease / Ulcerative Colitis 40 11-02-2007 04:39 AM
Ulcerative Colitis---recent diagnosis MaryG1959 Crohn's Disease / Ulcerative Colitis 9 06-04-2007 10:46 AM
Diarrhea from Ulcerative Colitis brucen32 Crohn's Disease / Ulcerative Colitis 6 05-19-2006 06:36 PM
ulcerative colitis? ImASadGirl22 Crohn's Disease / Ulcerative Colitis 9 01-25-2005 09:02 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 06:51 PM.

Site owned and operated by™
© 1998-2018™ All rights reserved.
Do not copy or redistribute in any form!