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  • Fellow patients taking Trikafta

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    Old 10-17-2021, 03:27 PM   #1
    daleelliott
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    Join Date: Oct 2021
    Location: Huntsville, TX USA
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    daleelliott HB User
    Fellow patients taking Trikafta

    I am interested in others' experiences so far with Trikafta. I have taken it since February, 2020. In the FDA trials, the results varied considerably, with the average patient seeing about a 13 point increase in their FEV1, along with significant reduction in mucus and cough.

    I am not seeing much difference in my FEV1 nor in mucus and cough. My clinic says patients' results vary from those like mine to those with very major improvements.

    I am considered a patient with RELATIVELY mild CF - not diagnosed genetically until after age 60. I'm wondering whether that may correlate. I have no digestive symptoms - just lots of mucus and cough.

    Also, I have ONE of the mutation most common, and ONE a rare one. Wondering about correlation.

    Any other comments?

    Thanks!

     
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