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    Old 03-23-2007, 03:09 PM   #1
    datgrlstef
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    Need help- does this sound like diab.?

    Back in August, I went to the Dr to find out what the heck is wrong with me (There's a huge list of symptoms, listed below if you're interested/curious). The doctor said she was going to test for Diabetes, however in this office visit, she tested my blood sugar? and told me it was 108- and therefore I was fine. Somebody else said this is "pre-diabetic?" If you have the time, maybe you could look at my symptoms and tell me if any of these symptoms sound like I should be further tested?

    (Oh, I'm 32 yrs old, if this makes any difference LOL) :P

    (Thank you for your time!)

    ------------------


    approx 1998
    - odd sensations in arm, slight pain, tingling, pins & needles

    April 1999- chest pains (left side), heavy sensation on chest w/pains down left arm. typically w/ breathing in, sharp stabbing pains. (chest xray, EKG normal)

    Nov 2000- woke up w/ severe pain in left arm. weak, painful to lift/use arm. sensations lasting for weeks.

    Aug 2001- tested for carpal tunnel (none), normal EKG & chest xray.

    Aug- April '02
    (first pregnancy)- circular rash on back of left thigh. red, raised, dry in center. did not itch. OB/GYN thought ringworm, but had no known exposure. (happened 10 yrs prev.- same rash, same place.) other (preg?) rashes on chest and abdomen, cream to treat didn’t help.

    January-Sept '03
    (second preg., to now)- shooting pains down side of right leg, when laying on left side. sciatic nerve pains (?) down back of right leg,

    Sept '04- noticed big toe on right foot partially numb, pins & needles. has remained this way ever since.

    2006- leg cramps, mostly in left thigh. (extreme tightness, hard to relieve) pains in breasts. sono & mammogram showed questionable area, 6-mo. follow-up said “regular breast tissue”.

    (Aug-Dec '06), blood work: electrolytes, kidney function, blood count, ESR normal nerve conduction tests normal. tested for Lupus, MS, had MRI. All normal. (some bone deformity noted at base of spine. Neuro says probable birth defect).

    (rash on abdomen when sick with the flu. taking 50 mg topamax, & 500 mg tylenol for 103 degree fever. rash lasted several days. like spider web on stomach).

    2007- knee pain, warmth. tested for Celiac Disease (negative). now weird pains in right arm.


    Various other problems:

    sensitive scalp
    burning, pins & needles on left shoulder blade
    sensitive patches of skin on thighs, under buttock area. sometimes arms
    sensitivity to bright lights & sunlight, causing headaches, migraines
    over-active bladder, trouble completely emptying bladder
    frequent diarreah (with nausea) -(sometimes weekly)
    muscle cramps in feet and hands
    frequent dizziness
    hot flashes
    stabbing pains in lower back on either side of spine.
    left ear sensitive to loud noise
    jaw occasionally tender to touch
    bone pain in arms
    skin on hands extremely dry, cracked (bleeding) in winter time
    year-round allergies

     
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    Old 03-23-2007, 03:11 PM   #2
    Cora1003
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    Re: Need help- does this sound like diab.?

    I can't really comment on all the symptoms, but I can say that if the 108 was fasting then there might (stress might) be a problem. If it was not fasting, then that one test was normal. You can't say that you do or do not have diabetes with only one test. You need to see how your body handles food, so a test 2 hours after eating is also important.

    I wish you the best of luck in finding out what is wrong.

    Cora
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    Old 03-23-2007, 05:31 PM   #3
    datgrlstef
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    Re: Need help- does this sound like diab.?

    Quote:
    Originally Posted by Coravh View Post
    I can't really comment on all the symptoms, but I can say that if the 108 was fasting then there might (stress might) be a problem. If it was not fasting, then that one test was normal. You can't say that you do or do not have diabetes with only one test. You need to see how your body handles food, so a test 2 hours after eating is also important.

    I wish you the best of luck in finding out what is wrong.

    Cora
    Well, I appreciate your response. I was not fasting, although I don't remember if I happened to eat anything in the 2 hours before the test (I'm a mom of 2 little kids, and rarely find the time to eat). I didn't go there knowing I was going to have my blood sugar tested, though. (Often times, doctors don't feel like cluing patients in, in advance. LOL)

     
    Old 03-23-2007, 08:13 PM   #4
    blondy2061h
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    Re: Need help- does this sound like diab.?

    It honestly doesn't sound like diabetes to me.
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    Old 03-24-2007, 05:52 PM   #5
    Mark1e
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    Re: Need help- does this sound like diab.?

    It doesnt sound like diabetes to me either. Are you taking any medications? in particular, are you taking a statin for high cholesterol?

    Mark
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    Old 03-27-2007, 07:59 AM   #6
    sarah92202
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    Smile Re: Need help- does this sound like diab.?

    I am not a doctor, but your symptoms sound similar to Lyme disease, with the strange rashes and pains, I have had Lyme disease for 10 years, but was not properly diag. until last Oct. I went through years of not knowing what was wrong with me and going to every specialist there was, had what sounds to be the same type of chest pain you had, so went to Cardio, heavy pain like elephant sitting on chest, plus shooting pains all over body, sometimes stabbing, sometimes like a hot poker, neck pains and then in Oct. I started having terrible shoulder pain and it shot down my arm, it would move around my shoulder to different areas, front, back side, and it would tingle in my hand, I can't hod things or carry things or make a fist. Folding clothes is the hardest thing to do. I've had extreme fatigue, back pains, neck pains, strange swellings of joints, but all tests came up normal, MRI's EKG's CAT's bloodwork for Lupus, RA you name it, I was tested for Lyme in 1998, but the test Elisa is an innaccurate test and comes up negative at least 65% of the time. You have to find a Lyme Literate doctor who will test with Igenex Lab, in Palo Alto and who knows how to read the western Blot Bands, because the CDC protocol on the western Blot may say you are negative, but a diag. needs to be made by the bands and a thorough history of the patient. I don't know where you are in the US, but most regular doc's are illiterate when it comes to Lyme, and they don't want to deal with it. I can help you find a Lyme Literate doc. if you would like to persue this avenue. There is a website that you can go to that lists all the symptoms of Lyme it is [url]www.canlyme.com[/url], it is canadian, but an excellent source for symptoms. If you know nothing about Lyme, beware there are alot of different things written on the internet about LD, make sure that they are current, less than a year old, alot of things have changed. I've had to learna all this on my own, and hate to think of soemone else being lost in the mess of it. You can go on the lyme board and read symptoms and ask ?'s too! Oh, have your children had any health problems, or learning problems? Lyme can be passed on from the mother to unborn child. Good luck I hope you find a diag. soon, sincerely Sarah!

     
    Old 03-27-2007, 01:36 PM   #7
    nataliejo
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    Re: Need help- does this sound like diab.?

    You know what it sounds like exactly to the tee ..
    Arthritis ..
    I have JRA ..which as turned into Rhematoid Arthritis ...
    I have been good so far .. I was on the gold treatments ... injection of gold through the hip ...

    but it sounds just like Rhematoid arthritis ..

    the rash ...
    the pain ...
    the problems you have all coincide with this problem of joint pain ..
    sometimes joint pain can see like muscle pain ..
    have you thought of going to a Rhematologist ..
    the version I have can go to the heart ...

    but the gold treatment keeps it under control for twenty years .. I dont think they use it anymore ...but when I get older I am going to see if I can take gold orally ... it may just stave of pain for the years before I die ..old and grey .. I go through a little pain now ...but I excersize alot now ...and excersize is very important in treating Arthritis .. you have to keep the joints and muscles moving ...

    good luck

    the numbing and swelling is could also be apart of Arthritis
    there are many forms of Arthritis ... I dont know which one you would have
    but it sounds like JRA

    ttylater
    best wishes
    natalie jo

     
    Old 03-28-2007, 07:44 AM   #8
    datgrlstef
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    Re: Need help- does this sound like diab.?

    Mark1e- the only med I'm currently on is Topamax for pain.

    sarah92202- thank you for your post. Actually, in the last week or two, I've had a lot of people suggest they also thought it was Lyme... or sounded like it. I have since scheduled an appointment with a doctor out of state (who is the closest "LLMD" to me, who uses the IGeneX lab). My appointment isn't until May, though. I guess we'll see what happens. As for my kids, if it turns out I have Lyme, I'll probably have them tested. Both are very sensitive to sound and light (and have digestive issues), and my son was diagnosed with Autism in September.

    nataliejo- I wonder about the arthritis, too. I didn't realize rashes were a symptom, though? That's interesting. Thank you for posting!

     
    Old 03-28-2007, 10:54 AM   #9
    sarah92202
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    Re: Need help- does this sound like diab.?

    Stef, I'm glad that you have made an appt. with an LLMD. Also, did you know, and I'm not trying to scare you, but autism one of the major symptoms a child that was infected with LD by thier mother. I'm not telling you this to make you feel bad in anyway, you are not at fault. But the more you mention, the more I suspect LD. I have done so much reading and research the past 6 months. My son has LD and we go to a pediatric LLMD so I get to talk to alot of parents who passed it on to their children accidentally and autism and learning diabilitties are the major symptoms, but these things can be reversed once the lyme is killed off. Make sure you mention everything about your health and the children, to your LLMD when you see him I spent 10 years trying to find out what was wrong with me and have had every test imaginable, Lupus, Rheum. arthritis, was diag. with CSF, Fibro. Have you been tested for RA and Lupus yet. These are the first things doc's test for. I saw a Ruem. for 8 years who kept telling me that eventually one of these tests would come up pos. because he had no other explanation for my symptoms, the tests never did come up pos. because I never had these autoimmune diseases, just similar symptoms. My son was diag. with LD first, and when I asked my Reum. to test me for LD, he yelled at me"I've been telling you for 8 years, you don't have Lyme disease, and he walked out of the room. His nurse came in and handed me a lab request for a drug tox screen. I went to another doc who was a friends doc, talked him into signing the IGenex form for testing, I went to the lab, took the LD tests and the drug tox test(which of course was neg) and never saw that Reum. again. I wish that I had been more diligent about insisting that I be tested for LD again ( had equivicol Elisa in 1998) but i just beleived my doc's and didn't have this board of great people to ask questions too. I wish you the best keep in touch and let me know how everything goes, Sincerely, Sarah

     
    Old 03-31-2007, 11:38 AM   #10
    datgrlstef
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    Re: Need help- does this sound like diab.?

    Hi Sarah

    I have read some of the stuff from the L.I.A. Foundation, and it's really somewhat scary. My husband and I have discussed getting our son (and our daughter) tested for Lyme, if it turns out that is what I have. If he has it, I don't know that treatment will get rid of his Autistic behaviors (he's high functioning, but still- he does have delays in social development, motor skills, etc), but maybe it will help with some of his other issues.

    Unfortunately, there are no LLMD's in the state of OH that I could find.. I'm traveling to PA to meet with one, and I'm not sure if he treats children. Somebody else mentioned a Dr in the state of CT, that is highly recommended, but I doubt I could afford flying there with my son for treatment. Besides which, I've taken my son on a plane once, and it was a nightmare.

    I was tested for Lupus, MS, Celiac, and even had my son's Geneticist suggest I be tested for something rare called Fabry Disease (but that hasn't happened yet). I don't believe I was tested for RA? Although I have suspected with all my joint issues that I might have arthritis.. but who knows. All of these are immune issues, which run rampant in my family.

    Ugh.. I can't believe your doctor actually gave you a test for drugs!!
    I'm so sorry that happened to you.

    Thank you for your kind posts.

     
    Old 03-31-2007, 12:33 PM   #11
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    Re: Need help- does this sound like diab.?

    Stef. The Ped LLMD in New Haven CT is Dr. Charles Ray Jones, he is the most wonderful man in the world! He is also the only ped. LLMD in the country. But he knows Lyme inside and out. He is 77 years old and has dedicated his life to his lyme children. He spends 1 1/2 to 2 hours with you during the appt. And you can honestly tell in your heart that this man truly cares, which you don't find very often with doc's anymore. If your child is being treated by him there is a way, ( it was mentioned to me by another parent, but not in full detail yet) that you can get your flight paid for and a shuttle bus will pick you up at LaGuardia take you to New Haven, and you stay at the Ronald McDonald house for about $10.00 a night, it is about 2 blocks from Dr. Jones' office. I am going to get more info on it next week, and can let you know. I am so sorry that you are going through all this, it is so hard, I am here to help you anyway I can. I had no help over the years finding out what was wrong with my son and myself. I wish I would have known this board was here. So I want to make sure that I help other people to not go through all the years of not knowing and all the damage that untrated chronic LD can cause. I leave the lyme board open on my comp. most of the time if you want to post me there you can, just put message to sarah92202. And there are so many other people on that board that can help you also. If no one else knows the answers Ticker probably does, she is alot of help. Good luck and let me know how things are going. Sincerely Sarah

     
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