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  • cant control sugar...15 yrs old...i dont want to go blind

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    Old 07-14-2007, 10:09 PM   #1
    Zitful Delight
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    Unhappy cant control sugar...15 yrs old...i dont want to go blind

    i cant control my juvenile diabetes...been diabetic for about 3 years, the first year i managed my sugar well but the past 2 have been horrible. my A1C was 8.1 last time i went to the endo, i know this is very bad but it's coming down, i beleive last year they were around 9 and 10. i recently went to the eye doctor for an exam, thank god i havent had any damage to my organs or my eyes yet but i know i will soon if i continue to live like this. the doctor scared the hell out of me when he said he's seen 19 year olds go blind...thats when it hit me...here's why i cant control my sugar

    1. Im lazy as hell, i dont wake up when i should, dont wake up at consistent times (it's summer), i stay up too late, i dont count carbs most of the time, i dont excersize consistently

    2. I think i have a phobia of low blood sugar, because whenever my sugar is in the normal range i start to get really panicky about it dropping and me having a seizure, at school my sugars were uncontrollable because i feared passing out too much and i had panic attacks all the time until i checked my sugar and it was high they would go away. the only time i felt releif was when they are high, is this normal??

    3. My family is inconsiderate, they eat ice cream, buy chocolate, my brother doesnt give a crap he offers me gatorades when we watch sports...im not saying hold back on everything but i mean come on! i have no will power, i try to cut back but my mother doesnt stop bringing all this food in the house...she tried hiding it from me, calling all my siblings upstairs when im in the basement playing video games but that doesnt work...i dont know

    4. my father is a type 2 diabetic and he is not a good example, eats whatever , never checks his sugar..., yet his A1C is 6...

    here's my current dosage

    Morning

    30 NPH

    13-18 Humalog (30 sugar intervals starting from 100)

    Dinner, same as breakfast humalog wise

    Lunch, 3-7 humalog

    Bedtime, 32 Nph, 3-7 humalog...

    i just need any advice i can get, i dont want to get kidney failure or go blind, thinking about this makes me so scared...

     
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    Old 07-15-2007, 05:53 AM   #2
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    Oh my gosh. I don't even know where to start with this post.

    I think I'll go take a nap and respond later in more detail, however, my first thoughts are:

    1. Diabetes is hard to deal with, the first thing you need to work on is changing your attitude though and dealing with your anxiety. Diabetes camp and counseling could help with this.

    2. NPH is horrid insulin for a type 1, especially a high-schooler. Lantus and Levemir with your Humalog varying according to your carb intake is a much better option. This would let you sleep in and eat what the rest of the family is eating. A pump would be even better.

    3. 8.1 isn't good, but it's certainly not horrid either. You don't have that far to go. If you are that good on NPHell, I'm sure you'll do even better on Lantus or Levemir even more easily.
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    Old 07-16-2007, 08:54 PM   #3
    Karen W.
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    Hi,
    First of all you need to see a diatician and get on a strict diet and do allot of walking or exercise, my brother was on 6 shots a day when he was first diagnosed , now he is on pills-no shots at all. You cannot blame everyone for what you eat because it is you who puts it in your mouth. I know it's hard but look at you heath right now, it's not good at all. You need to focus on what is good for you, your young and have a big future ahead of you, you need good health and you eye sight. Trust me, if you start following the proper diet and get some exercise, you will feel so much better and in the long run, it will be worth it all.
    Karen W.

     
    Old 07-17-2007, 06:04 AM   #4
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    Quote:
    Originally Posted by Karen W. View Post
    Hi,
    First of all you need to see a diatician and get on a strict diet and do allot of walking or exercise, my brother was on 6 shots a day when he was first diagnosed , now he is on pills-no shots at all. You cannot blame everyone for what you eat because it is you who puts it in your mouth. I know it's hard but look at you heath right now, it's not good at all. You need to focus on what is good for you, your young and have a big future ahead of you, you need good health and you eye sight. Trust me, if you start following the proper diet and get some exercise, you will feel so much better and in the long run, it will be worth it all.
    Karen W.
    Your post shows that you don't understand type 1, and therefore probably shouldn't be commenting in it. I know your motives in saying this are genuine, but type 1s need insulin no matter what they eat, and there are a million other things messing with our blood sugars beside diet.
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    Last edited by blondy2061h; 07-17-2007 at 06:04 AM.

     
    Old 07-17-2007, 06:29 AM   #5
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    Hi there. I have to agree with Blondie on all counts. First off, the 8.1 isn't great, but it's not hugely horrible either. There are so many factors involved in maintaining your blood sugars. Among other things, your mood can also affect things. At your age you have hormones and tremendous social pressures to interfere with you trying to take care of yourself. I have to say that I'm not too impressed with your doctor threatening you with blindness. That sort of thing never motivates anyone. Was this an endo or a family doc? If you aren't, you should think about seeing an endocrinologist who specializes in people your age with type 1 diabetes. I was 2 when I was diagnosed and my teens were difficult (I'm in my mid 40s now). Talk to a specialist and see what can be done to help you feel better. I know that I was depressed at your age, but they didn't have the good meds that they do now. You may need some sort of anti-depressant to get you going for a bit. Depression occurs a great deal in people with diabetes. It is due to a chemical imbalance, not an inability to cope.

    I used to have the same phobia about lows too. Part of the problem comes when you are running high consistantly. Then normal feels low. Try to work through it and stay at a more normal range without eating. It's kind of like working out. It hurts, but you know you'll feel better when you are done.

    While I have had some problems, I won't go into details, I can tell you that now that I've had diabetes for over 40 years I am still happy, driving, vacationing, and doing all kinds of things. Don't think that your life is over or will be cut short. There is no reason you won't be able to do anything you want with your life. Your diabetes doesn't have to stop you. As I said, talk to someone who specializes in diabetics your age. I would also recommend summer camp. I had a blast and it was like a vacation away from diabetes. Talk to your folks about it. From what I have seen, T1s who went to summer camp lead much more active lives when they get older.

    Finally, to Karen W, I want to say that while I understand you are trying to encourage this young person, suggesting that a T1 can get off insulin is just plain cruel. And there is no need for a T1 to go on a strict diet. Blood sugar levels are controlled by balancing carb intake and insulin. It is a different case when dealing with someone with type 2 - and that is the example you are giving.

    So don't give up, 15 yr old in LA, and please let us know how you are doing. We're here to listen and help.

    Cora
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    Old 07-17-2007, 11:12 AM   #6
    Karen W.
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    Hi,
    I was not trying to be cruel, I was trying to motivate him, he said he was eating the wrong foods and being lazy and that he could loose his eye sight by the time he was 19 years old, that would be a shame. When my brother diagnosed about 5 years ago, he was very over weight and exercise was some thing he never did. The first year he had a hard time, so we as a family made it more of a group effert, we would walk with him for his 3 mile walk, we cooked differently and gave him allot of support. As time went on, his shots slowly decreased, he has lost 95 pounds and for the last year, he was just on the shot he would do before bed time, we just started the pills, weather it will work or not, time will tell. Yes he breaks the rules now and then, who wouldn't , he would always give himself something naughty on Sundays-just a little something and he would enjoy to the fullest, then he would walk to ware it off. I do apologise if I sounded insesitive, that was not my intent.
    Karen W.

     
    Old 07-17-2007, 11:29 AM   #7
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    Thanks Karen.

    Unfortunately, it is often very difficult for people with type 1 diabetes. Not because of the disease itself, so much, but because many people either forget, or don't know that there are different types. The fundamental (and very blunt) difference between T1 and T2 (which your brother seems to have) is that if all medication is with held (insulin or oral meds) the type 1 diabetic will be dead in about 3 days. Also, because no insulin is produced by the body, things like emotions and hormones have a much larger effect than they would on a person who still produces insulin. While lifestyle often has a significant role in the development of type 2 - sometimes it's the largest factor - it has nothing to do with type 1 (formerly known as juvenile diabetes). T1 is an autoimmune disorder where the body's immune system attacks the insulin producing cells and destroys them. The person becomes completely dependent on insulin. And no amount of walking or dieting will help if the insulin is not properly administered. Which is not always easy.

    Take care.

    Cora
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    Old 07-17-2007, 02:45 PM   #8
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    well done, cora, that's a great explanation of the difference between t1 and t2.
    i suppose diabetes is like many other conditions, in that a little knowledge is dangerous, and there are so many completely ridiculous ideas of what it's all about, even in this supposedly enlightened era.
    the thing about emotions and hormones having a much greater effect is often swept under the carpet, but anyone who lives with someone with t1 will know all about that one!

     
    Old 07-17-2007, 03:10 PM   #9
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    thanks so much to everyone

    cora to answer your question, i was at the optomologist a couple days ago and i was having a diabetic eye exam, the doctor told me that even if the sugar is only a tad bit high over 20-30 years T1's go blind more than T'2s. i really want to thank him though, because that woke me up. i was being so careless with my health and the past week my sugars have been getting better ever since that appointment so i dont think he was trying to scare me i thank him for that. my mom tried to motivate me by telling me that my diabetes would go away if i managed it well in my 1st year and thats why i think i managed it pretty well, finally when i realized it was here forever (after about 1 1/2 years) thats when i think i just gave up and stopped trying.

    but anyway i currently see an endocronologist and have been for 3 years, i see the nurse around every 3 weeks because the primary endo has a buissy schedule...so basically i go to the endo a lot of times either with the nurse or with the main. i personally prefer the nurse because she's so nice and good spirited and she actually cares about me, while the endo is all business and has pretty much given up on me...

    anyway going back to what cora said about depression i think i have been depressed for a year now and im currently scheduled for an appointment with a therapist, hopefully i can get the proper therapy/med's and i'll be alright.

    thanks again to everyone who posted

     
    Old 07-17-2007, 03:12 PM   #10
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    Glad to hear that you are seeing good docs. Please keep us posted as to how you are doing.

    Cora

     
    Old 07-18-2007, 05:40 AM   #11
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    I've heard that type 2s get more complications and I've heard type 1s get more complications. I don't know what the truth is.

    Type 2s may get more because they usually go longer w/o diagnosis (hopefully this is changing with more routine testing and stricter standards for early intervention) and because denial has no immediate consequences so they may be more likely to linger in it than a type 1 who goes into DKA if they deny diabetes.

    On the other hand, type 1s seem more at risk to me since while 50 is a common age to get type 2, leaving you 40 years to have diabetes if you live till 90, if you were diagnosed with type 1 at 5 and live to 90 that leaves you 85 years for diabetes to beat up your body.

    I guess it goes back to glass half empty/full.
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    Old 07-18-2007, 07:25 AM   #12
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    my son, who is now 25, was diagnosed with t1 at 10 years old.
    when he reached is teens, he refused to do any blood tests, and started to have panic attacks. he never stopped injecting though. because the panic attacks were interfering with his school work (he would hide in the toilets if there was a chance he would be asked to speak or read out loud during a lesson) he agreed to have some counselling. he initially saw a lady counsellor, but felt uncomfortable, so a youngish man took over. my son saw him once a week for about 2 years and i don't know to this day what they talked about, and never asked. i was just glad that during a time when my son was struggling there was someone there for him to talk to, and maybe advise him.
    he went on to live away from home at university for 4 years, and now lives and works about 300 miles away, holding down a responsible job and has just bought his first house.
    there is light at the end of the sometimes very dark tunnel. good luck.

     
    Old 07-20-2007, 03:42 PM   #13
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    well speaking of panic attacks i think i had a major one yesterday...it was about 7:30 pm and i had just finished eating dinner, my blood sugar was 120 before, i took 12 units of humalog, i ate some rice and meat (i figure about 2 or 3 carbs worth, i was stuffed, and i heated up a mug of milk and put 3 tablespoons of instant vanilla coffee in there so my total for dinner was about 4 or 5 carbs. about 30 minutes after dinner my mom decides to take us to the mall, at first i diddnt want to go because my blood sugar was 140 and i would feel to anxious of it dropping while we were at the mall but i did go anyway, on our way there i brought a small bowl of cereal just to make sure it diddnt drop and i felt fine all the way until we got there. as soon as i stepped in the mall my head just felt soo light and my face felt numb and i couldnt breathe, i figured it was just some anxiety, i hadnt been out in a while and i always had felt like that, it usuallly went away after a couple of minutes, and it did as i started playing with a ball with my little brother.

    heres where it started, my mom told me that she wanted to take me to the clothing store to get me some clothes so i went with her, i also have a phobia of heights, so bad that i cant even walk on the top floor of the mall, well my mom made me come with her...on the top floor of the mall, i felt so freaking anxious and started panicking and felt like i was going to pass out when i came near the view of the lower floors, i was so dizzy and my mom was walking around looking for the store for like 15 minutes and i followed her trying to hide my anxiety, until we found an elevator and we went downstairs, i felt some relief but i figured i just might check my sugar to make me feel better, i did so and it was 80! i started to panick some more, i dont know why , i know 80 is excellent but for me its too low to be at the mall, so i start panicking and i tell my mom i need a snack. she says alright and we go BACK upstars, so my panick about the height and the sugar fuse, and by the time we got to the store i had such a bad attack. i started sweating like crazy and i couldnt breathe and it felt like my hands and face were numb, on top of that utter confusion, (i couldnt tell where i was or what i was doing for a couple minutes), until i pulled out a juice box from my pocket and drank it, i sat down for a while at the store, and a couple minutes later i was fine.

    BUT MAN WAS I SCARED, i felt like calling 911, it was such a bad attack...i dont know if i can ever have steady blood sugar if i panick everytime its normal!! i know i need help with this, im still waiting on a psychiatrist appointment, its near the end of the month though...what im really concerned about is school that is inching closer and closer away...i really hope i can be cured by that time...

    Last edited by Zitful Delight; 07-20-2007 at 03:43 PM.

     
    Old 07-21-2007, 02:21 PM   #14
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    nobody has to answer...i just feel better when i type things out...thanks anyway

     
    Old 07-22-2007, 04:04 PM   #15
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    Re: cant control sugar...15 yrs old...i dont want to go blind

    Hi Zitful Delight,
    I don't pop onto this board very often. I'm usually over on the back board, but I have a son who was diagnosed with type 1 a year and a half ago at age 16, so I stop over and read every now and then so I can better understand what he's going through. (And can I say that who but a 15 year old guy would come up with Zitful Delight for a user id? As a mom of two teenage guys, I'm just sitting here shaking my head, rolling my eyes, and laughing!)

    My son recently gave his testimony to his youth group and I got to sit in and listen. He talked about a bunch of good spiritual stuff, but then he answered whatever questions the kids had. They had a ton of questions about his diabetes. It was really good for them to finally understand things like he can eat anything he wants, unlike type 2's, but he always needs to take insulin and that will never change. There are a number of type 2 diabetics at our church, but not a single other type 1. That was really hard for him in the beginning, as some of the type 2's had lots of well-meaning but incorrect advice for him. For him, he feels fortunate that if he's going to have to have diabetes, at least he's a type 1. Even though he's got a lifetime ahead of him to deal with it, he just has to take the proper amount of insulin and then eat what he wants. No sugar free stuff for him! Only the good stuff! He tried the pump and didn't like it. It's easier to him to just inject.

    Of course, the big thing is to be consistent. He slacked off for a little while, feeling over confident because he had been so well controlled. And his A1C went up! We got him into a couple of classes one on one with a diabetic educator. She got him to the next level, and he's heading in the right direction again. But you know, at your age, like my son, you're going to have times when you need to be re-evaluated and adjusted pretty regularly. You're still growing and that changes your insulin needs over time. It sounds like you're seeing the nurse pretty often. Are you keeping a chart or some kind of record of what you eat (that is, the carb count, not the menu), what time you ate it, how much insulin you took, what your blood glucose was before the meal, and what it was two hours later? That might help the nurse figure out how to best adjust what you're doing. It's a pain in the neck to keep that record, but if you like to play around on the computer, you can probably make yourself a nice chart to just print out and keep in a handy spot to fill in every time you test. (The nurse will be very impressed, too!) It is definitely worth it to keep a record for a while.

    As far as the panic attacks, does your mom understand about your fear of heights? You were walking behind her, I think, right? Was she aware that you were having such problems? Can you talk to her? Does she listen? I'm glad you're going to be able to see someone to talk about all this. It's a lot for a young man to deal with. If you don't feel like you connect well with this psychiatrist, don't be afraid to speak up and ask if there's someone else you can talk to. I hope you find just the right person who can help you.

    I know you already know this, but the mom in me needs to say it: diabetes is not something you can take a vacation from. It's an everyday for the rest of your life thing. But you can master it instead of letting it master you. You can still live a full, productive, and happy life. You'll be able to go to college and work toward a career of your choosing, you'll be able to hold a job, get married, and do all the things your friends are doing. The only difference is, you'll do it while controlling your diabetes. It's real easy to feel like life is unfair and you shouldn't have to go through this. But whether it's fair or not, this is how it is. You have to make it a part of your regular lifestyle all the time. You have the ability to decide you're going to exercise, eat right, test right, and all the rest of it. You can decide that YOU'RE in control, not your disease! You can do it! You can decide to not just live with this, but to embrace it -- which doesn't mean to love it, but rather to fully accept it and learn how to make the very most of your life with it. Your posts sound very intelligent. I think you have a great future ahead of you. You keep looking forward and be your own hero! You can do this!

    You take care, and come back and let us all know how you're doing.

    I wish you the best,
    Emily

     
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