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    Old 12-09-2015, 04:30 PM   #1
    skier122
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    any ideas?

    Hello

    Been dealing with some horrible days lately and haven't felt normal in months. I really am at a loss for what is happening to me.
    It started with some shortness of breath and heart palpitations. Generally just feeling horrible and tired all the time. I had pulmonary lung function tests, along with an echocardiogram and stress test. I also wore a heart monitor for 3 weeks. Everything seemed normal on the tests.
    A week later I woke up with both of my knees swollen. I tried rest and some alieve and it didn't work. A few days later it got worse and my swelling was so bad it made it hard to even walk. I went to the ER and they did some blood work and what not.
    They said they thought it was some type orly arthritis such as rheumatoid arthritis. But I have no other joints that hurt such as hands feet shoulders or anything. I have pretty bad back pain in my sacrum and have for years.
    My Sed rate was normal with a pretty high C reactive protein. I was given prednisone for the knee swelling and it took it away although there is still fluid in there that won't go. I can now walk aND it only causes pain when I bend my knees when squatting down.
    I have an appointment with a
    rheumatologist soon but I'm afraid that's not what's causing this.
    I have headaches everyday now and it's a pressure that's on my temples and behind my ears. It wouldn't go away for weeks so I got a brain MRI and it was normal. I can feel my pulse throughout my head and in my forehead and ears. It feels as though I can feel the blood pumping and it's pretty uncomfortable. I am getting pretty depressed. Everyday I feel so crappy and I want to know why and make these headaches stop.

    Anybody have any ideas? Any insight or other tests to try? I traveled to Peru and Argentina in the last 2 years and mentioned a parasite or mosquito disease but my doc brushed that off quickly.

    I am so thankful for any help/answers!

    Last edited by Administrator; 12-15-2015 at 11:17 PM.

     
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    Old 12-13-2015, 07:54 AM   #2
    zipq
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    re: any ideas?

    Just because that doctor brushed off the idea of a parasite or mosquito disease doesn't mean that you are not on the right track. With doctors you have to be assertive, so maybe another doctor would take your claims more seriously.

    But if that's not the answer, then it's possible that you might be gluten-intolerant.

    I read your symptoms and the ones you listed are associated with gluten-intolerance.... headaches, excessive tiredness, depression, shortness of breath, heart palpitations, sore muscles.

    Also gluten-intolerance has been known to make allergies worse, cause puking, diarrhea, constipation, headaches, bruising, excessive sweating, stinky sweat, sometimes persistent unexplained low grade fevers, high vitamin b12 but still excessive tiredness (which means the nutrients aren't getting absorbed into your system and it's just staying in the blood stream), fatigue, yeast infections, brain fog, dizziness, and soooo many other symptoms which you may not have known could be related. Just do a search of "symptoms of gluten-intolerance" to find out more.

    A gluten-free diet will let you see if gluten-intolerance is the cause of your symptoms. There are blood tests and other invasive procedures you can do to test for gluten-intolerance, BUT unless you are deathly sick you don't have to get those tests done. You can find out by simply going on a gluten-free diet for at least 2 weeks (the time it would take to get the gluten fully out of your system). Ideally I'd wait maybe a month to decide if the symptoms are subsiding, but at least give it 2 weeks before giving up.

    If this does end up being the cause of your symptoms you should stay on the gluten-free diet from here on out. Don't worry! It may seem daunting, but trust me, there are far worse things to deal with than being gluten-intolerant. Once you get the hang of what you can and can't eat, it becomes easy and just an everyday part of life. All that will change is that you'll just need to do a little more planning ahead of time and make sure to pack meals/snacks for yourself that are gluten-free.

    I am in my late 20's and just discovered a few months ago that I have become gluten-intolerant. I never had any problems with this as a child, but over the last few years I developed many symptoms and just had to suffer with it until I was able to find the answer. Gluten-intolerance isn't always something you are born with. It can develop at any time, any age.

    Gluten intolerance is a condition that causes a person to react after ingesting gluten, a protein found in wheat, barley and rye. Currently, the only treatment for gluten intolerance is following a gluten-free diet, which excludes all wheat, barley, rye and cross-contaminated oats.

    If you interested in trying the gluten-free diet, here are a few things I learned along the way that might help you...

    There are many foods that are already naturally gluten-free. Just do a little research and you should be able to find them. You may not get a complete list of foods, but you should be able to determine yourself if something is gluten-free by reading the ingredients on the label. The product ISN'T gluten-free if any of the ingredients have these words attached to it: "wheat", "yeast", "barley", "malt" (made from barley), and "rye".

    Do not eat processed lunch meats or packaged shredded cheese. There are ingredients in those items, some kind of preservatives, that have gluten in them. You can, however, eat fresh deli meat or cheese that is fresh (in block form). So if you want to have shredded cheese you just have to shred it yourself.

    Even items like pizza sauce, gravy, and other dressings/sauces can be filled with gluten because they often use wheat to thicken up sauces. However, I've found that with a little searching you can always find good alternatives. There's a gluten-free pizza sauce and some bbq sauces are gluten-free and there are gravy packets that are gluten-free as well. You just have to read the label. Many of these will list "gluten-free" somewhere on the label, but regardless, just read the ingredients, because sometimes something is gluten-free but it just isn't said on the label.

    You need to avoid fast food places unless the food is something like fruit or a salad because fast food restaurants use "pre-cooked" foods so that the food will cook much faster and the preservatives that are in that food have gluten in them. Also don't eat things like fried chicken or anything fried unless the flour and breading that it was cooked in was gluten-free.

    You can't eat wheat items or things with gluten in it like bread, crackers, cookies, cereal, cake, oatmeal, spaghetti noodles, and cereal, but there are gluten free breads, crackers, cookies, cereal, cake, oatmeal, spaghetti noodles, and cereal that you can eat instead, so really you won't be as limited with your food as you might think. For example, you have to avoid cereals that have wheat in them, but there are cereals like Chex that are gluten free and there are spaghetti noodles that are made with either corn or brown rice that you can eat instead.

    Avoid items that are made with white rice and wheat. Look for items that are made with brown rice, corn, or something else besides the wheat. When shopping for gluten-free items at the grocery store I've found that some products will say “gluten free” somewhere on the front of the label and other times sometimes the back of the label will say “gluten free” in small letters.

    I hope this is the answer that you are looking for. I wish you well. God bless

    Last edited by Administrator; 12-15-2015 at 11:18 PM.

     
    Old 12-15-2015, 12:07 AM   #3
    skier122
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    re: any ideas?

    Wow thanks for the long response!! I truly appreciate it . I have never thought of a food allergy or something like that causing my symptoms!! Its definitely something to look into!!

    I am not sure if it could cause symptoms such as my knees swelling up badly or weight loss which I am dealing with also but I really have no idea!!! I definitely feel crappy after eating quite often. I am absolutely going to try a gluten free diet and see what happens. I don't have anything to lose at this point. Thanks so much for your time and thoughts . it really makes me smile there are people out there who will take the time to help others. God bless you!

    Last edited by Administrator; 12-15-2015 at 11:13 PM.

     
    Old 12-15-2015, 04:05 AM   #4
    zipq
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    re: any ideas?

    You're very welcome! I really struggled for a few years with my symptoms until I was finally able to figure it out, so I know just how tough it can be. If I can help even just one person with the same issue, it's worth it to take the time to post such a long reply.

    I want you to get better so that you can go out into the world and do great things! I need people like you at their best so that you can fully use the gifts God has given you to put more good into this world. I'll send some prayers your way. Stay positive. You'll get out of this nightmare soon!

    There's a chance the other symptoms you have, the weight loss & knee swelling, could also be gluten related. Weight loss and inflammation are also symptoms of gluten-intolerance.

    If you are eating gluten and are gluten-intolerant then your body isn't able to absorb all the necessary nutrients it needs to keep weight on and if your muscles are sore because of the gluten attacking it then your knees could be going into survival mode and swelling, but of course it's possible that they could be separate issues and not related.

    Once you try the gluten-free diet you can see which, if any, of your symptoms go away, and then tackle the rest of the other issues in a different way.

    Last edited by Administrator; 12-15-2015 at 11:18 PM.

     
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