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Eosiniphilic Gastroenteritis was my diagnosis


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Old 05-01-2006, 10:14 AM   #1
sspoon
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Eosiniphilic Gastroenteritis was my diagnosis

Hi, new to this board. I have had cronic diarrhea for over 2 years with severe cramps. I was able to somewhat control the D with Imiodium or Pepto. Some days I could get it to stop and I could leave my house and somedays I couldn't even go outside. To far to make it to the bathroom. It got to the point that I was wearing depends 24/7. Then in January I ended up in the hospital. Put on IV's. I was so dehydrated that I took in 6 IV bags in 2 hours. They took a stool sample and I had Clostridium Difficle C-Diff. I was given Flagyl and the C-Diff went into remission. But I still had all the symptoms. I went back to ER and had a upper and lower GI. They confirmed C-Diff remission but saw something and took a sample that turned out to be Eosinophilic Gastroenteritis. EG is a condition in which one or more layer of the stomach and/or small intestine are infiltrated with a type of white blood cell called eosiniphils. Symptoms of EG include early satiety (feeling full before finishing a meal), swelling, reflux, diarrhea, abdominal cramping. I also have it in my esophagus EE. Symptioms of EE include choking, chest pain, nausea, reflux, strictures, polyps and swallowing problems. And it's in my large bowel; Eosinophilic Colitis or EC. EC is often misdiagnosed as Ulcerative Colitis because both can have diarrhea and constipation. There is no cure for EE,EG,EC. Prednisone has been proven to put it into remission. I cannot take it. So I have live the rest of my life with diarrhea, severe cramping, swelling, (I look like I'm 7 months pregnant). Plus all the meds I'm taking for depression and panic attacks and the meds for EE,EC, & EG effect me like I'm living in a confused state of mind. I was told I could not drive, use the stove when no one is with me, and to never use stairs without help. When I need to be clear headed to research or pay bills I skip my morning meds but that only makes things worse, diarrhea, pain etc. And then when I take them at noon I'm more confused and dopy in the afternoon then I would have been if I had taken them in the morning. Go figure.

Anyway, to make a long story short. Is there anyone else beside me who has this and has to live with it like I do?

 
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Old 05-03-2006, 06:57 AM   #2
sspoon
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Re: Eosiniphilic Gastroenteritis was my diagnosis

If anyone is suffering from EG, EC or EE please give me a post at
http:[url]www.123forum.com/88s[/url]

 
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