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Need to vent/I'm frustrated

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Old 06-10-2006, 02:29 PM   #1
Pebble Beach
Join Date: Feb 2005
Location: New Jersey
Posts: 381
Pebble Beach HB User
Need to vent/I'm frustrated

Hi all. I have posted to this website and other boards in this site for various problems. I need to vent. I am totally frustrated!!!!!

I'll try to keep things to the point of what has gone on in my life. My problems started when I was 35 and I will be 53 in about a weeks.

Here is a summary of what I have been thru:

- 1988 - IVP for kidney stones; determined that I was born with one kidney; I never knew before this
- 1988 - bulging discs of the lumbar spine; traction for 2 weeks
- 1994 - herniatons of the lumbar spine; surgery
- 1994 - diagnosed with Parkinson's disease; determined in 1997 that it was a misdiagnosis
- 1995 - stenosis in the cervical spine; surgery
- 1997 - surgery of the lumbar spine "flatback syndrome" required instrumentation in the lumbar spine
- 2000 - surgery of the cervical spine for "kyphosis" require instrumentation in the cervical and thoracic area with fusion
- 2003 - surgery of the left leg for blood clot; almost had leg amputated but leg was saved
- 2003 - diagnosed with Diabetes type II blood surgar was 1600!!!!
- 2005 - spinal cord stimulator implanted in spine for pain management


- 2006 - Kidney disease due to diabetes. Kidney functioning at about 25-30% and don't forget I have 1 kidney
- 2006 - had pancreatitis back in 2003; now appears I have symptoms and went thru CT scan/ultrasound. Found that I have pseudocysts on the pancreas

I am scheduled to see a gastroenterologist this coming Thursday. My primary doctor feels that an endoscopy should be done. But I will see what the doctor says on Thursday. I don't know what to expect any more.

I am so tired of running to doctors, not knowing what is going to show up next. What should I expect in the future about the kidney and what do I expect about the pseudoscysts on the pancreas.

Any support or suggestions? Thanks for listening all. I am just so worried about what to expect.


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Old 06-11-2006, 09:57 PM   #2
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Join Date: Nov 2000
Location: Charleston
Posts: 5,526
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Lightbulb Re: Need to vent/I'm frustrated

Sorry about all your problems!!

Diabetes is a terrible disease -- that affects every organ in your body. Circulation in the legs, kidneys, heart, lungs, eyes and brain.

Too much glucose in the blood stream causes irritation to all the arteries and veins in your body. This results is total kidney failure, heart problems, vision problems -- the list goes on and on.

The best way that I know to help is to become very proactive and educated yourself about diabetes -- go on a diet like those that are described in books like the Zone or Protein Power books. And, Eat your way to Health-- I know It's not easy but people do it!!

God Bless~~~Harry

Last edited by Harry; 06-12-2006 at 04:57 AM.

Old 06-12-2006, 04:36 AM   #3
Pebble Beach
Join Date: Feb 2005
Location: New Jersey
Posts: 381
Pebble Beach HB User
Re: Need to vent/I'm frustrated

Thank you for the response. It has been a long journey and hopefully I will have a long journey ahead of me too. Just tired at this point with so much on my plate to deal with. But I'll get thru it somehow.

Thanks again for listening.


Old 06-12-2006, 07:08 AM   #4
Join Date: May 2006
Location: Ohio
Posts: 70
agurl79 HB User
Re: Need to vent/I'm frustrated

I think I have responded to one of your previous posts regarding pancreatitis. The pancreas is a horrible little organ! I never realized just how many problems it can cause until I developed severe acute pancreatitis when I was 34 weeks pregnant with my daughter due to high triglycerides. They had to take my daughter by emergency C-Section, and put me in ICU and gave me a 5-10% chance of making it through the night. My kidneys failed that night, I went in to respiratory distress, and my heart was pausing. It was a miracle that things changed for the better in the next few days. That attack left me with numerous psuedocysts. (the CT scan report said there were too many to count) The docs said they were just going to watch the psuedocysts, but then I began having more pain, and a lot of nausea/vomiting b/c the cysts were getting bigger. They drained the biggest cysts by visualizing them on ultrasound and sucking out the fluid with a needle. It wasn't as unpleasant as it sounds though. My cysts kept refilling, so they had to surgically remove them. I now have chronic pancreatitis b/c there was so much damage to my pancreas. I have to take digestive enzymes, since my pancreas is not producing any. It causes a lot of pain/nausea but with a good doc like mine, they keep it under control with medication. Hopefully you won't have as many problems as i have with the pancreas/psuedocysts, as I've been told a case as severe as mine was is pretty rare. I'll keep you in my thoughts! and keep us posted as to how you are doing!

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