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Pancreatitis-Is there help?

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Old 10-25-2007, 03:32 PM   #1
Join Date: Sep 2007
Location: United States
Posts: 9
KathyP42 HB User
Pancreatitis-Is there help?

My daughter in law (41 yrs) has pancreatitis. Is there a cure for this or will the rest of her life be spent in pain? The past year and a half has been so hard on her and her family and on top of this she was denied disability, so along with her being hospitalized over 100 days the family is facing financial hardships. Is there a Dr/hospital/clinical trial along the East Coast that we could look into?
Thank You for your replies!

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Old 10-26-2007, 09:25 PM   #2
Join Date: Jun 2007
Location: Washington State
Posts: 396
sam78 HB User
Re: Pancreatitis-Is there help?

kathy, i feel for your daughter in law, as i have suffered from pancreatitis from sept of last year until january of this year. It was horrible. The worst pain I have ever felt in my life. I spent usually a week in the hospital every month getting IV fluids and wound up doing IV nutrition at home. It was what finally at least made me comfortable because i didnt have to eat, which meant my pancreas worked less. The best that you can do for pancreatitis is to avoid the things that make it worse, and typically that is food. I too didnt want to go on disability so I worked with this IV line in and gave myself iv nutrition at night so i didnt have to eat. And yes there was the narcotics that I had to endure. It is a rough time, and my heart goes out to your family and her. The best there is to offer is trying to find the root of the problem, whether it is some thing like sphincter of oddi dysfunction or just pure pancreatitis from unknown etiology. Pain control is the best that they can do for most pancreatitis sufferers. So what ever it takes to make her comfortable. GOod luck to you.

Old 11-01-2007, 05:51 PM   #3
Join Date: Jun 2007
Location: Washington State
Posts: 396
sam78 HB User
Re: Pancreatitis-Is there help?

Sisty.... my enzymes were slightly elevated which was how I was diagnosed. When i had a flare up of pancreatitis I would go in the hospital, not eat and my enzymes would return to normal. Then I would go home and slowly add foods back in. They did a boat load of tests on me to rule various things out that would be causing pancreatitis, which eventually lead to the ERCP with manometry which then for sure diagnosed the Sphincter of Oddi dysfunction. I ended having to not only get the sphincterotomy but also had to have a series of stents placed for a couple months to try and stent my duct and the sphincter open. After this I have been "cured" for 3 months now. Unfortunately it is common for SOD to return as the sphincter narrows back up. Hope that helps.

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