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  • K2626 Answer about Pancreatitis

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    Old 04-06-2009, 01:57 PM   #1
    Lahayle
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    K2626 Answer about Pancreatitis

    I will answer your questions with this symbol>>>>> ok?




    I came across and old post of yours. I have had upper left ab pain and also burning in the center for a month. My lipase was mildly elevated and ca 19 (tumor marker ) double normal (drs said this can rise with pancreatitis). My pancreatitis was noted as mild, yet a month later I still have pain.

    Can mild pan last over a month? Yes, especially if you have chronic pancreatitis such as I have. Yes, the pain can worsen over foods you eat
    that trigger your inflammation. Begin a food journal. First, be aware of
    what your body is telling you. Signs of being bloated, with extreme pain
    in the middle of your stomach which radiates around to your back. You
    can also experience trouble breathing as the muscles to that area is connected with the muscles in your pancreas. I just had a celiac Block done
    that did not work. My pain is 24/7 and My Specialist found out I have a
    Fatty Pancreas. Yet, making a list of foods to stay away from is one good
    thing you can do for your pain. Eat very small portions of meals throughout
    the day.

    I worry its pancreatic cancer as my dad died of it, however, my ab US, CT and EUS were all clear, they did not even see the pancreatitis?>>>>>>

    Did they do a full blood workup? If not? Then, it would be hard to assess the
    problem. Malaise, and the enzymes that work in your pancreas could be elevated, causing pancreatitis. Have you had an ERCP?


    How was yours dx? Also, what do you recommend I eat? I have read scary stories about people dying fromt his?>>>>>>> Try not to worry, it makes
    it worse. Just know, that it is a disease. The Specialist? He asked me if I
    drank? I said, sure Coke. No I am not a drinker. He said a lot of people
    who don't drink, can be at risk of chronic pancreatitis. My grandmother died
    of colon cancer. I know how scary it is when it runs in your family. Just know I care, and try to get as many as 3 opinions. I have had Pancreatitis
    for over 9 yrs. because of the Gastro Docs I was seeing. Finally? I asked
    my internest about it. He sent me up north to a specialist who diagnosed
    me right then, and there. I know the pain and if you have family like I do?
    Well, mine just do not care, nor want to understand the severity of this
    condition. I did have a stent placement in my billary duct which was clogged.

    I hope you find at least 3 more doctors' to get you a real diagnosis.


    I appreciate your help, I am very scared and tired of these odd pains
    k2626 is offline

     
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    Old 05-20-2009, 06:57 PM   #2
    k2626
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    Re: K2626 Answer about Pancreatitis

    Hi there, I just came accross this. Thanks for takign the time to write.

    I had labs done, lipase and CA 19 (tumor marker for pancreas)-both remain slightly elevated since Feb though have not checked them in recent wks. My drs say the ca 19 can be elevated from inflammation too. I had a CT and an EUS (endoscopic guided ultra sound)-both were clear, that was 2 months ago. I sought another opinion at ucsf and the dr there is NOT taking thsi lightly. He wanted to do an ERCP but my other GI said its too risky as it could send me into an acute attack, he said the EUS and ERCP are comprable..and he thinks the EUS is better. So I am going in for an MRCP tomorrow and will repeat my EUS next month. I pray again that nothing is found. How can I not be terrified with these pains still bothering me? The pain hits on and off throughout the day and is an upper left stabbing pain (sometimes slightly right) and upper mid burning. I also have odd stabbing back pains that seem to float to different spots, but mainly in the center of my spine.

    Did your scans show inflammation? I am so scared for tomorrow.....Thanks again

     
    Old 01-06-2010, 11:22 AM   #3
    irene498
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    Re: K2626 Answer about Pancreatitis

    I had acute panreatitis due to large amounts of Alcohol over a long period. I stopped drinking and my pancreas healed. One year later I celebrated the holidays and had some drinks my pancreatitis is now chronic. after you have suffered an accute attack you should quit drinking smoking and eat a very low fat diet. I have pain everyday now. I have been perscribed enzymes to take before I eat and they are very expesive. My levels are normal but still have pain. My doctor is going to do an MRI first to see if anything else is going on. I can only hope I haven't damaged it even further because I wanted to have a good time. To big a price to pay. I wish you good health and watch your intake of your food.

     
    Old 01-06-2010, 07:06 PM   #4
    k2626
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    Re: K2626 Answer about Pancreatitis

    Hi Irene, I am sorry to hear this. Out of curiosity how much did you drink? I am not sure if drinking or perhaps an autoimmune (other stuff has been going on 6 months prior to the pancreas issues) disease. My pancreas has felt better over the past couple of months and my last EUS was clean, nothing had changed since my first...the EUS is supposed to be the best tool to view the pancreas so I feel settled with the results for now and will be having one done annually now due to the pancancer that my father passed of.

    Have you ever had a scan?

     
    Old 01-07-2010, 05:25 AM   #5
    irene498
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    Re: K2626 Answer about Pancreatitis

    Thanks for your reply
    To answer the drinking, I drank just about everyday for years. Not full blown drunk I was a chef. I have decided to change careers. Funny how you say autoimmune because I am being treated for that. the arthritis started after having two major abdominal surgeries. I think it woke a sleeping giant. First was partial hysterectomy. The doctor butchered me. I went to another doctor 4 mos later and he found cysts on my ovaries. While doing the second surgery he noticed internal bleeding and large scar tissue around colon and bladder they were both perforated during the surgery. I think this should be considered. Because I told the doctor that I used large amounts of alcohol in the past he seems to be stuck on that is the only reason. I am scehduled for a MRI he claims for right now that is the best. I never heard of EUC. I just want to know for peace of mind. I dont care for drinking these days I do have to quit smoking I started that a few months ago and it is affecting my pancreas. Thanks again for your info.
    Irene

     
    Old 01-07-2010, 08:16 PM   #6
    k2626
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    Re: K2626 Answer about Pancreatitis

    How much a day would you drink? I drank heavily on the weekends for at least 10 years and over the past 2 yrs have had my share of wine each week. My drs didnt think it was pancreatitis as my lipase remained slightly elevated for months. I literally lived with stabbing pain in my pancreas for 6 months and also my CA 19 was elevated so I thought for sure it was pancreatic cancer due to losing my dad to it. However I had the following-CT, MRI, MRCP, ultrasound, and two EUS'. I have read that the pancreas is VERY hard to view and that lesions have often been missed with CT and MRI's-even repeated ones. I am very proactive with my health and have great drs, so I was lucky to have been ordered two EUS' within 6 months of each other-and no changes, nothing unusual. The EUS is an endscope that goes into your stomach with a camera and basically takes pictures and ultrasounds from your stomach of your pancreas-it is from what I have been told the best at picking up small lesions vs a CT and MRI. However, none of these tools are perfect which is why I pushed for ALL of them. Not all drs due EUS', they have to be specially skilled to do so in order to get good pictures and to be able to view well real time while doing the procedure.

    I have had GERD for a couple yrs that came out of nowhere and it took me over a yr to control--I now think it could have been my pancreas the whole time as signs of pancreas issues also include acid reflux and gerd. However, maybe not.

    My health other health issues started 6 months before the pancreas pains which are-muscle twitching all over (it was thousands per day), extreme joint cracking (hundreds per day), stabbing searing pains in my joints that would migrate throughout my body to short stabs to pulsating, numbness on and off in my right pointer finger, and on and off tingling in my foot. I had so many tests for this and nothing came back odd-labs, MRI's, EMG etc...At one point they thought possible lyme, but I live in the city. I also developed constant horizontal lines and ridges in all of my finger and toe nails.

    At anyrate, I got a livedo reticularous rash a few months back after being in the sun, took a picture of it and sent it to two of my drs-both said that the rash is typical of lupus. However, my lupus labs came back clear but I now understand they often do and it can take yrs to show in the blood.

    I was pretty much healthy before all of this-I am in great shape, work out daily for 2 hrs, eat pretty healthy though I do enjoy wine.

    So I just keep thinking this is autoimmune and my drs agree that all of these items must be related and somethign is attacking my body, they just dont have the evidence to make a dx on any of this. The only odd things that came back lab wise was my pancreas levels and ca 19.

     
    Old 01-08-2010, 05:48 AM   #7
    irene498
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    Re: K2626 Answer about Pancreatitis

    OH MY GOODNESS! I have been seeing a Rheumatologist for a year now. after a Hysterectomy I developed wide spread pain in all my joints. Numbness and tingling. He thinks the surgery might have sparked the autoimmune. I had all the tests for lymes lupus and so on. everyone came back negative. But when my doctor perscribed Prednisone it worked. He took me off that because he claims it is a nasty drug. Because it worked he said I have autoimmune.I think that my pancreatitis may
    be linked to that. Because I told the Gastro Doc I used to drink heavy he is stuck on that being the reason. My last visit to the emergency room my levels were all normal. So I think there is a possibility that something else is going on. I am scheduled for an MRI. the doctor claims there is no reason to be so invasive. I might look into another doctor. I have stopped drinking. I did have some cocktails on the holidays and paid a big price. Like I said I was a chef and I drank everyday between 2-4 a day. I haven't drank like that for at least a year now. Like you I enjoy a nice glass of wine. as of right now just thinking about it gives me pain.
    I feel some doctors treat you as a bum when you tell them you drink or used to drink.
    I am not an alcoholic just a little party girl when I was younger. They need to be concerned with what is happening today. I am going to the Rhuematologist today wish me luck. Let me know how your doc is treating you. It is a big puzzle.
    thanks irene

     
    Old 01-10-2010, 11:19 AM   #8
    k2626
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    Re: K2626 Answer about Pancreatitis

    Interesting...what were your widespread pains like-ie shooting, stabbing or just long and painful

    I agree you should look at other causes of this-if anything get a 2nd opinion, I have always done that in fact have sought out several.

    What did your Rhum. say?

    Have you looked up if prednisone affects the pancreas? I knwo some meds do...

     
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