It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Dizziness / Vertigo Message Board

  • vn - decompensation? recurrence?

  • Post New Thread   Reply Reply
    Thread Tools Search this Thread
    Old 10-28-2018, 04:46 PM   #1
    goingeast
    Junior Member
    (male)
     
    Join Date: Jan 2013
    Posts: 25
    goingeast HB User
    vn - decompensation? recurrence?

    Hi everyone. It has been awhile since I lasted posted here so I will start by saying a few things about my vn.

    I got my initial vertigo attack at the end of 2012. Mine was a very severe case. I was told by the doctor who did the testing that initially, at the time of the first attack, I suffered total vestibular loss on the left side.

    It took several years but by around the end of 2015 I felt I had reached a stage of noticeable improvement. Of course my balance is permanently impaired and there are situations where I will never do well (dark, low light) and even at that time I was still getting occasional attacks of severe dizziness. But those attacks did not last long. I felt I had made lot of progress.

    But about two months ago something happened, seemingly out of the blue. I suddenly became severely nauseous on the way to an exercise class. I don't know how I made it through the class. In the class itself, while exercising, my nausea continued to increase and I also became extremely dizzy - so dizzy I feared that my original vertigo experience from 2012 was going to repeat.

    It did not actually go that far. However, the very severe dizziness and nausea lasted a few days. I thought perhaps this was some kind of fluke - or that maybe I had ingested something responsible for these symptoms.

    But since then though the severity has reduced, I am still feeling generally dizzy and nauseous, every day, all day. Not only that but I have begun to have the severe fatigue and slightly "drunken" feelings I remember having in the past during the years closer to my original attack when i was still recovering.

    Has anyone else experienced anything like this? Does anyone have any idea what might be going on here?

    I have read about "decompensation" - and I am wondering if that is what is happening to me now - but it is not something I have a lot of knowledge about. I have read that "decompensation" takes place becuase the brain "forgets" what it has learned to compensate for the injured balance nerve - but I have to say that makes very little sense to me as an explanation. I cannot comprehend how the brain would simply "forget" overnight all it had learned to compensate.

    It is very discouraging because it is like all my progress was suddenly lost, and now I am going through the same thing I originally went through, just not as severe as the first time. But there is also the uncertainty, because I don't know exactly what all of this means - is it going to stay the same, improve over time? Or could this just be the beginning of something that gets worse?

    Thanks for listening, and I appreciate any feedback, or input into what might be going on and how long it could last, particularly from those who have experienced anything similar.

    Last edited by goingeast; 10-28-2018 at 04:49 PM.

     
    Reply With Quote
    Sponsors Lightbulb
       
    Old 10-29-2018, 06:07 AM   #2
    MSNik
    Senior Veteran
    (female)
     
    Join Date: Sep 2006
    Location: USA
    Posts: 12,808
    MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
    Re: vn - decompensation? recurrence?

    Hi there. This sounds scary! Have you ever seen a neurologist? Some of your symptoms sound neurological in nature. Certain autoimmune disorders such as Multiple Sclerosis also cause symptoms similar to what you are describing (although you are not describing some of the other symptoms of MS).

    A neurologist would put you through a series of neurological tests and maybe help you rule out or possibly diagnose your issue. Even if you saw a neuro in the past, since the symptoms are happening again, a follow up would be suggested.

    Unfortunately, none of us can dx you- I have had episodes of dizziness and vertigo related to my own disease; a neurologist was very helpful to me. A MRI of the brain and spine might also be warranted for you as it may show something which is causing the issue.

    I am sorry you are feeling like this. I can only imagine how frustrating and scary it is; but I highly suggest you follow up with a specialist who can perform the correct tests to help you get answers.
    __________________
    RRMS- dx 05

     
    Reply With Quote
    Old 10-30-2018, 05:13 PM   #3
    goingeast
    Junior Member
    (male)
     
    Join Date: Jan 2013
    Posts: 25
    goingeast HB User
    Re: vn - decompensation? recurrence?

    Thanks for your reply, MSNik.

    The doctor who did the original testing and diagnosed me with VN was a neuro-otologist.

    I guess that is a sort of neurologist? But I have never seen a neurologist proper, and at the moment would not be able to afford tests like an MRI because I do not have insurance that would cover them.

    It is interesting that you bring up autoimmune conditions though, because they run in my family. I actually have autoimmune conditions myself (allergies, eczema, chronic pain) and I do have a relative who has MS. My understanding is that all auto-immune conditions are related and that once you have one you are susceptible to others.


    I am obviously genetically predisposed to autoimmune conditions. So this makes me wonder: has any research been done to determine if vestibular neuritis itself has an auto-immune related cause?

    I never had any dizziness/nausea symptoms like what I am experiencing now until my original vertigo attack back in 2012 and I never entirely "recovered" from that, so I am pretty sure this is another phase of the VN.

    But it is very unexpected because I felt I had improved over time -- then out of the blue that sudden dizziness and nausea struck me about two months ago.

    Last edited by goingeast; 10-30-2018 at 05:26 PM.

     
    Reply With Quote
    Old 10-31-2018, 03:13 AM   #4
    MSNik
    Senior Veteran
    (female)
     
    Join Date: Sep 2006
    Location: USA
    Posts: 12,808
    MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
    Re: vn - decompensation? recurrence?

    Hi again. Autoimmune diseases are not hereditary nor does one predispose you to getting another; HOWEVER, they are doing tests right now studying a genetic link which may predispose you to getting an autoimmune disease.

    This study has been going on for years and as of now is not yet published. What it basically is studying is whether or not we carry a gene which MAY be hereditary (all genes are passed through our chromosomes from our parents) ...having the gene does not mean you have a disease- but it MIGHT mean that if you have the gene you have a higher chance of getting ANY autoimmune disease.

    I have an autoimmune disease (MS) my mom has a autoimmune disease (RA) and my father has a neurological disorder. They keep telling me since none of us have the same disease NONE of it is hereditary. The only disease I know allot about is Multiple Sclerosis, and I can assure you that it does not run in families... the odds of a parent passing it on to a child is absolutely nil and the fact that your cousin has it means nothing in relation to you getting it. No worries there.

    You need to go back and see your Neurologist. That's the only way you are going to get answers on this. Their is help in all states if you do not have insurance with healthcare- you can talk to any hospital or doctors office about learning how to apply in your state or do your own research. Help is out there if you look for it.

    I hope you feel better soon.
    __________________
    RRMS- dx 05

     
    Reply With Quote
    Old 10-31-2018, 07:04 AM   #5
    ladybud
    Senior Veteran
    (female)
     
    ladybud's Avatar
     
    Join Date: Jun 2012
    Location: Colorado
    Posts: 6,085
    ladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB User
    Re: vn - decompensation? recurrence?

    Quote:
    Originally Posted by goingeast View Post
    Thanks for your reply, MSNik.

    The doctor who did the original testing and diagnosed me with VN was a neuro-otologist.

    I guess that is a sort of neurologist? But I have never seen a neurologist proper, and at the moment would not be able to afford tests like an MRI because I do not have insurance that would cover them.

    It is interesting that you bring up autoimmune conditions though, because they run in my family. I actually have autoimmune conditions myself (allergies, eczema, chronic pain) and I do have a relative who has MS. My understanding is that all auto-immune conditions are related and that once you have one you are susceptible to others.


    I am obviously genetically predisposed to autoimmune conditions. So this makes me wonder: has any research been done to determine if vestibular neuritis itself has an auto-immune related cause?

    I never had any dizziness/nausea symptoms like what I am experiencing now until my original vertigo attack back in 2012 and I never entirely "recovered" from that, so I am pretty sure this is another phase of the VN.

    But it is very unexpected because I felt I had improved over time -- then out of the blue that sudden dizziness and nausea struck me about two months ago.
    VN can have an autoimmune cause, and autoimmune diseases notoriously have periods of exaccerbation, often occurring out of the blue, and remission. I would wonder what you are being treated with. There are a few drugs that quiet the vestibular nerve, the ones like meclizine that are are used for motion sickness. A scopalomine patch is a good choice as well. Steroids for a short period, like prednisone, can be used to reduce the autoimmune process and inflammation of the nerve. These help the symptoms tremendously. I would focus on getting this treated to put it in remission and help you feel better and be functional. Perhaps later on, if you get insurance, you can explore with a rheumatologist and neurologist if this is isolated VN or part of a bigger disease process, depending on what other symptoms you might have.

    Last edited by ladybud; 10-31-2018 at 07:11 AM.

     
    Reply With Quote
    Reply Reply




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 11:07 AM.





    2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!