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Has anyone recovered completely from labyrinthitis/vertigo?

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Old 05-28-2003, 12:22 AM   #91
Join Date: May 2003
Location: Costa Rica
Posts: 1
alonsoac HB User

Hello, I had read all the messages on this thread and I must admit I'm quite scared, I expected this to be over in 3 days never imagined it could be a lifelong thing. Now I am not sure exactly what my problem is I woke up one day with the room spinning and then vomited all day (diarrhea too) but then I just got stuck with the vertigo since then. I have gotten a bit better and I was given some pills for Meniere sindrome which seem to work well but I centaintly didn't expect to have to take them for long.
I haven't had a physical checkup since I thought this was just a virus like a flu and would simply go away.

How long should I wait before going to the doctor and what kind of doctor am I looking for? I dont have any aches anywhere, apart from the dizziness I'm OK, hearing seems fine too. I don't think I have Tinnitus, certainly not a load ringing but I'm not sure as I do hear a high tone if I press my hands against ears.

I'm planning on a 2 week trip in one month which means long plane and train rides and crowds I guess, any tips?

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Old 05-28-2003, 03:38 AM   #92
Join Date: Jan 2003
Location: Australia
Posts: 381
Jen30 HB User

THE Vestibular Therapist in Australia is in Adelaide!! I flew from Melbourne to Adelaide to see her. Look up Doctor Margie Sharpe of the Dizziness and Balance Disorder Centre (or something like that) in the White Pages. Let me know if you can't find her number. She is definitely worth seeing.

Old 06-06-2003, 03:36 AM   #93
Join Date: May 2003
Location: Australia
Posts: 7
Cathb HB User

Jen and all,

Thanks very mmuch for that - will look up Dr Sharpe. Good to hear there was someone who could help you - this mild dizziness is really frustrating.

alonsoac - for what its worth, I've lived with this dizziness on and off for some years and while frustrating I never allow it to interfere with anything I want to do - I still socialise, walk, jog (sort of),play tennis, swim etc. I've got to the stage where I live with it as sort of a background to my life and a characteristic of me - bit like my hair colour. So I'm not diminishing the symptoms you are experiencing, rather reassuring you that I have learnt to live successfully with mine - I control it as much as possible rather than have it control me. I try and get in and out of cars, up and down off chairs or move my head just slightly more slowly and 'gracefully'! (Well thats my story anyway and I'm sticking to it!)

Mind you, having said that, I am going to ensure I get a correctt diagnosis if I can - so I'll be off to the Vestibular Specialist, thanks to Jen, now she has let me know there is one here in Australia. Is there someone who specialises in vestibular disorders in Costa Rica - that might be a good place to start.

So yes this stuff can hang around a long time, on and off, (hopefully more off than on) - but ifyour lucky enough for it to be fairly mild lke mine than you can live with it successfully. I'm SOOOO grateful I don't have this dizziness in a severe form and really feel for other people who do.

All the best.

Old 06-06-2003, 12:24 PM   #94
Join Date: Nov 2002
Location: UK
Posts: 1,400
Emsybobs HB User

Hi Cath, sorry if I've missed a post from you, but what have they diagnosed you with? Has your dizziness got better with time? Have you had periods with no dizziness at all? xxx

Old 10-13-2003, 05:00 AM   #95
Join Date: May 2003
Location: Australia
Posts: 7
Cathb HB User

Hi emsybobs,

Sorry I haven't been back in touch for a while.

The only diagnosis I have at the moment is a vague one from a GP of 'mild labyrinthitis' from many years ago -I still need to get to a vestibular therapist.

The trouble is that at the moment my dizziness has gone again, so it will be a bit difficult to demonstrate it to a vestibular therapist at this stage. About 2 or 3 months ago it suddenly disappeared - during or after a trip to the UK and Europe. So I like to think the long plane flight (or was it the Italian red wine?) had something to do with it - and so have a great excuse for more trips OS - but somehow I don't think thats it - suspect its a latent viral infection of some sort that flares up even now and then

So yes my dizziness is very mild and has got milder over time - and yes I have periods, sometimes years - when I am free from it - like I am now. So fingers crossed it doesn't come back at all this time. (But I will cope with it if it does).

Its a real relief to have these dizzy-free times as they provide some relief from it - and I really feel for those of you who are constantly dizzy.

So there is hope that you can go 'into remission' like I have - and I hope it happens for you too. All the best.

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Old 10-13-2003, 07:48 AM   #96
Join Date: Aug 2003
Location: Chillicothe, MO, USA
Posts: 352
dizzyinmissouri HB User

My first bout with the virus infection in my inner ear was 9 years ago. It took about a year before I didn't notice any "weird" feelings when I would go into a store like Walmart. Went nine years before it hit again. I am beginning my fourth month with the second bout but am beginning to feel more normal each day! There is hope!!!!

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fblvr (05-04-2011)
Old 10-14-2003, 05:37 AM   #97
Join Date: May 2003
Location: Australia
Posts: 7
Cathb HB User

Hi dizzyinmissouri,

It was good to read your post as I was wondering if I was a bit odd with this really mild labyrinthitis which comes and goes with often many years between attacks - I had my first severe attack in my early 20s when I was bedridden for three or four days and not able to move. I then had another very mild bout in the early 90's which lasted for a few months then disappeared. Then the bout this year which completely disappeared again a couple of months ago - hence my guestimate that this is viral. I just hope it eventually disappears for good. So yes there is hope -always hope that it will disappear for good - and good to know I'm not alone in this odd pattern of the mild dizzies. All the best to you and I hope your dizzies continue to get less as mine have - and maybe even depart for both of us for good.

And maybe if all else fails try a long plane trip - preferably to Italy with plenty of great Italian red wine! I like to think thats what did the trick for me! All the best.

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Old 10-15-2003, 06:15 AM   #98
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Join Date: Oct 2003
Location: Perth, WA Australia
Posts: 187
star803 HB User

Hi All

Well is both scary and refreshing to read all your experiences.

I have been suffering with dizzyness since June 2002 so whats that about 15 months. I have it 24/7 but it isn't spinning vertigo most of the time. The most frustating symptom I have found is the distorted vision. Everything looks wrong but it is so hard to discribe. I also have a balance problem - I feel as though I go up and down all the time. I have constant fullness/ noises in the right ear.

I have seen almost every doctor possible. I have seen GP's, ENT's (total of 3), Neurologists, Opthamologists, Vestibular Therapist. Had all the tests (MRI, ENG etc) I have had a diagnosis - in fact I've had many different ones depending on who you talk to! They include Labrynthitis, Vestibular Neuronitis, Menieres Disease, Otis Media AND THE LIST CONTINUES!!!!!!!!!

Basically all the doctors have been able to tell me that I probably have a balance disorder. Surprise surprise!! Have seen Margie Sharpe (Aussie girls) and I wasn't very impressed with her. I have become very anti-doctors - have been told by one doctor that i just over-exagerate because i'm a girl!

On the upside after suffering anxiety and depression as a result, I decided that I love life and try to get pleasure where I can find it. I used to always be in a hurry, now I don't work and don't have a huge social life but find happiness in other places. Now I have a pretty good mental outlook and although wish I was well everyday, still find happiness in my life.

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Old 10-15-2003, 06:55 AM   #99
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Join Date: Sep 2003
Location: Scotland
Posts: 186
littleone1972 HB User

IH Guys... some days I read the posts and think wow this is great I'm gonna get better and then I read of those of you who have had it for years and I begin to panic... (my heart goes out to all of you!) I know what's it like, I'm a really independant person, I've had to move back home just so I can get driven around as I haven't driven since June. I've never gone anywhere on my own, always with someone so I generally do ok, supermarkets and shops were a big no no at first, which is bad cos I love shopping! Getting better slowly but I tend to spend hours htinkin gI'm gonna be fine and drag myself around, suffer big time later. My therapist told me do one hour and one hour only! I guess I'm learning fast! I'm managing to work part time, really really hard as my job is all computer orientated, can't handle meetings visual stimuli overload!!!! thats really kind of tricky. I also need to fly overseas for my work and can't do that right now. It's all so frustrating... [email protected] due to start a job in the states in January, frustrates my boss cos I can't plan anything and can say if I'll be 100% well! I really hate this thing too! I'm only young and feel like I am 90!

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