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KRProton 02-13-2010 10:34 AM

My Success Story: dizziness, hearing loss, vertigo, SSNHL
To help and encourage others I wanted to document my recent fight with a viral inner infection that caused severe dizziness, nausea and hearing loss in my right ear. Most of the internet posts I read about this talk about the problems and ask for advice, but few have told about their success or recovery. I wanted to document what I have been going through and tell about the improvements I have finally been experiencing. First though, a bit about my self; Iím a 46 year-old male. I donít smoke or drink alcohol. Iím active, athletic and exercise frequently. Through my life Iíve played all sorts of sports including swimming, college football and gymnastics, various types of motorcycle racing and I currently play in a hockey league. As one can imagine itís difficult for me be patient with injuries that keep me from doing the things I love! Well, hereís my story:

Five weeks ago I walked out of the gym and noticed my ears were ringing. Otherwise, I felt fine. When I went to bed that evening my ears were still ringing, but I didnít think much about it. About 1:30 a.m. I woke with an upset stomach and went to the toilet. I felt a little like vomiting, but nothing happened so I went back to bed. A while later I went back to sit on the toilet again, only this time I vomited. At the time I thought I must have had some kind of food poisoning. The rest of the night and into the next day I experienced severe dizziness and frequent vomiting. I remained in bed and couldnít even move my head one inch without sending my self into a spinning sensation and more dry heaves. My stomach wasnít upset and I didnít have a fever, but this was really scary and I had NO IDEA what the heck was going on.

Finally, the next afternoon my wife came home from work and I was able to crawl down the stairs and into the car (all the while pushing the vomit bowl on the floor in front of me). In the car I couldnít even look up. We got to the ER and they wheeled me in. I had a hood over my head and didnít even dare looking up.

Up on the bed in the ER I started vomiting again. They gave me a pill for motion sickness and something else for the upset stomach. That calmed me down a bit and I was able to get stabilized.

After an examination the doctor said I had an inner ear infection and said I had lost the hearing in my right ear. They gave me some more stuff through the I.V. and I went on my way. They also gave me a prescription for 25MG of Meclizine and ordered an MRI just as a precaution.

I rested at home for the next three days taking the Meclizine as needed. On the fourth day, Friday, I felt well enough to go back to work. I could get around and drive fine, but my balance was definitely still ďoffĒ and I had no hearing in my right hear. I also had what they call ďfullnessĒ and ringing in my ear.

Well, I had the MRI which showed nothing abnormal. After the MRI, exactly one week after this all first occurred, I called an ENT and made an appointment, but they didnít have an opening for another week (apparently, they would have seen me right away if I would have more accurately disclosed the severity of my symptoms). Still curious as to why this hadnít cleared up by now, I went to the walk-in clinic the next day. Again, I was diagnosed with an inner ear infection that they said would eventually go away. Still not satisfied, I went to my family doctor who told me the same thing; ďItíll clear up on its own, but keep your appointment with the ENT if you feel it necessary.Ē

Two Fridays after this first happened to me I drove about four hours up to my brotherís in Michigan where, the next day we went to Detroit to go to my auntís funeral. Nobody can really understand or comprehend the problems you are having. You can tell them you have dizziness and no hearing in one ear, but they see you up and walking around and to them it doesnít really seem like thereís anything wrong and they forget. At the funeral we were in a large room crammed with lots of people. I couldnít really understand anybody who was talking to me. Peripheral or background noise makes it just about impossible to hear with my good ear. Sometimes I feel like an ďold man,Ē but I need to get out on the ice and play hockey!!!

Exactly two weeks to the day after my first symptoms, I finally had my appointment with an ENT. A hearing test by an audiologist proved what I already knew; totally deaf in my right ear. I already knew I had no hearing in my right ear, but it hit me pretty hard when you see the test results on paper. Then, I see the doctor who is very concerned. He says we have to start treatments RIGHT AWAY if we have any chance of restoring any hearing in my right ear! All of a sudden I feel like a handicapped person, but I try to keep it in perspective because itís not as thought Iíve lost a limb (or my life!) fighting for my country or something.

Next thing I know theyíre sticking a needle in my right ear with a steroid injection to fight off the inflammation ASAP. Actually, this wasnít quite as bad as it soundsófirst he numbed my eardrum with something. That hurt the mostókind of like if you ever stick a Q-tip into your ear too far, times about two or three. The actual injection wasnít so badóand believe me Iím a baby when it comes to pain. (Sometimes I pass out when I donate blood!) What I was told is that the virus causes inflammation around the inner ear organs and nerves. This inflammation has to be treated right away before the nerves die or stop workingópreferably within two or three days of onset. But now Iím two weeks out! I make two more appointments for ear injections one week and two weeks out. Finally though, I feel like Iím getting somewhere. They also gave me prescriptions for Prednisone (another steroid to fight the inflammation), Famciclover (to fight the virus) and Prilosec (to sooth possible upset stomach from the other meds). After a few days I stopped taking the Prilosec because it wasnít necessary.

I continue to work out at the gym when I can. Usually I lift weights and run on the treadmill. My balance is good enough to drive and walk, but I just canít do the treadmill at reasonable speeds without getting too imbalanced. The stationary bike will have to suffice for now.

The following Sunday (two weeks from onset) I feel up to seeing if I can play hockey with my team. I get to the game, put on my gear and go out onto the ice for warm-ups. I can tell pretty much right away I just canít go, so I skate off the ice, go back into the locker room and take off my gear. I have to sit in the stands with the wives and watch my teammates play.

Next Tuesday, my second ear injection. This time he goes through the hole that was already there from the first injectionóno numbing medication required. What? ARE YOU KIDDING ME?!?! Actually, the idea of having a needle stuck into your eardrum is worse than the actual procedure and it was a breeze. After each shot I have to lay on my left side for 30 minutes while the steroid ďpercolatesĒ down in. But during the following week and over the weekend I start feeling pretty down because this darn thing just isnít going away! I also developed some mysteriously new symptoms including my hands were shaking a little, flushness and loss of taste. Somebody said my color didnít look good. Iím getting a little crabby at home because Iíve lost my hearing in one ear, I have ringing in my ear, I feel dizzy and I canít play hockey, but nobody can really tell thereís anything wrong. Damn!!!

The next weekend we go visit family up in Chicago and guess what they decide to do for funóletís go skating!!! Out on the ice I did a little better than the week before when I tired to play hockey, but Iím still upset because Iím not my usual self and I just donít have all my balance. The next day (Sunday), I get to my hockey game and give it another try. I usually play defense, but I would be too much of a liability back there, so I skate on offense. I make it through the game okay, but my vision is ďweirdĒ and it just takes me a fraction of a second longer to ďlock ontoĒ whatever Iím trying to see. In the closing minute of the game I get a breakaway and take a slap shot, but the puck goes about 6Ē wide of the net and I fall sliding into the boards. Yup, balance isnít very good, but at least Iím out there. Itís kind of embarrassing because I feel like someone who just learned to skate instead of someone whoís been skating for about forty years!

Well, between then and now (five weeks out) Iíve played some pickup hockey about three times and am feeling a little better on the ice. Iíd say Iím about 90% and can probably help my team instead of just being out there. My hearing has shown a little improvement and my doctor seems encouraged. I can hear it if I stick my finger in my ear or tap on my ear, but nothing really else. But the hearing tests show that I am getting some hearing back, so the doctor and I decided to accelerate the steroid shots (whoopee!) to twice a week. On my last hearing test (yesterday) I was able to get some voice recognition, so there is hope, but I donít think my hearing is going to get back to normal.

So today, my mood is great and everything around the house is pretty much back to normal. I got two good workouts in the gym this week including some miles on the treadmill. I played some pickup hockey yesterday and am looking forward to my league game tomorrow. My balance still isnít all the way back, but I donít think my teammates will be able to really detect any problems. My balance is still ďoff,Ē but right now Iíd say my largest problem is how my vision interacts with movements. When Iím walking (or skating) I just canít quite ďlock ontoĒ what Iím trying to see, but again this is still improving. I know of two NBA basketball players who have been afflicted with inner ear infections and I wonder how they have been treated and how they are recovering.

One final piece of advice; If you ever develop symptoms such as what I have described, GET YOURSELF TO AN ENT AS SOON AS POSSIBLE, and donít take ďnoĒ for an answer. Donít rely on ER doctors or family doctors who may not be aware of the severity and possible effects of your symptoms.

Iíll check back later when I have any significant progress to report. I am looking forward to when my balance/equilibrium/vision is 100%.

Mikea809 06-02-2010 05:35 PM

Re: My Success Story: dizziness, hearing loss, vertigo, SSNHL
My recent experience is very similar to yours. I would like to hear from you and/or tell you my story if you ever visit this site again. I am a 40 year old male than woke up suddenly at 3:00 a.m. with loss of hearing to my right ear. The story starts from there. It has been since May 23rd since it started and I have been through so much since that day. I would love to chat about it. Hope you find this.

KRProton 06-03-2010 08:11 PM

Re: Dizziness, hearing loss, vertigo, SSNHL
Hi Mike.

I haven't visited this site in a long time--nobody was posting any replies. First, you HAVE TO get to an ENT right away. They said they could have salvaged my hearing in my right ear if I would have gotten in faster.

I'm doing great now, but virtually no hearing in my right ear and still very slight dizziness. But it doesn't seem to affect my ice hockey so that's all that matters to me. I still have ringing in my ear too. I'm living with it just fine.

I have to get off line now, but let me know if you have any specific questions.


Mikea809 06-04-2010 04:07 AM

Re: Dizziness, hearing loss, vertigo, SSNHL
Thanks for replying to me. I wanted to write to you and tell you my story since yours helped me along the way. Thank you for that.

Sunday May 23rd 3:00 a.m. I woke up with a swishing sound in left ear (I think because I was half asleep) and no hearing at all in right ear.

Sunday May 23rd 10:30 a.m. Went to the Emergency room only to be QUICKLY told I most likely have a bacterial infection and gave me a prescription for an anti-biotic without testing me for anything. Told me there was no ENT on staff at the hospital but to make an appt. with one. (however, he failed to tell me that I could have been admitted and they have one on call to visit the hospital. I called ENT offices on Monday morning and told them specifically that I lost ALL my hearing in my left ear but they could not see me until Tuesday.

Monday May 24th 4:30 p.m. I started to get dizzy the next morning. Got very, very dizzy and extremely nauseous and my wife drove me BACK to ER. Another Doctor said "You should have been admitted yesterday with ďSudden Hearing Loss" and quickly admitted me. Why the ER Doctor that saw me on Sunday didn't realize that this is a MEDICAL EMERGENCY is beyond me.

Monday May 24th 11:00 p.m. ENT showed up at the hospital where I was admitted and said it was probably viral and prescribed steroids thru my iv along with other tests like CT scan, Blood tests, etc. to rule out other things. I feel he did the first right thing to this point.

Then, I went all night and half of Tuesday May 25th still with no steroids. The nurses blew me off saying that "when we get, youíll get it" Then after waiting 15 additional hours, I finally received my first steroid dose at around 4:00 p.m. Tuesday.......way past the "Golden Hours" that I have read about in needing to get the steroids going in my system. One of the heads of the nursing staff (David) told me that it shouldn't have happened and the reason was that they didn't have the correct dosage and had to get it somewhere, not sure where. I think he said at another hospital/pharmacy. There was absolutely NO sense of urgency.

My family has meanwhile been looking at this type of illness and told me about injections into the ear directly (My mom found YOUR POST). The ENT told me that he had never done it but knew of someone who did. So around 11:00 p.m. on Tuesday, he calls and says that doctor is on a 2 week vacation. I'm like thinking WOW! Is this how hard it is to get someone to help me?

He then calls me at the hospital at 7:00 a.m. on Wednesday morning May 26th. He tells me he is going to do the procedure himself. Now, this is the same ENT who told me less than 8 hours earlier that he had NEVER done this procedure before. He says he will do the procedure because it is ďrelatively simpleĒ and as soon as an operating room opens up he will get me in. They never told me that they were hoping for a cancellation which never happened.

Well, I wait all day until 10:00 P.M. that night. He puts me under for this procedure which scared me a bit because other I read about did the procedure from numbing the ear/or eardrum and putting in the needle and then laid on good ear side for 30 minutes so steroid can filter to the correct area. For my procedure I was knocked out and woke up a little while later.

I don't know if both methods are used or if my ENT had read a "how to manual" since he claimed he never did it before. Nonetheless, at this point, I was desperate for help.

So after the procedure, I got one or two more iv steroid doses. I was discharged on Thursday night at around 11:00 p.m. I was told to see my ENT's audiologist on Friday May 28th and to tell his office to get me in on Friday no matter what. I called his office first thing on Friday morning and the office employee told me the Dr. must have been mistaken because she (Audiologist) would not be in that office for a week or two(another important person to me on vacation). So she referred me to Audiology Associates which gave me an appointment at 2:00 p.m. on Tuesday June 1st. But I found someone that contacted via email on Saturday. Told him my situation. He was glad they got steroids in quickly even though I rather have had them on Sunday rather than Tuesday afternoon. And to continue taking the oral steroids prescribed to me. I felt good about this Otologist/Audiologist professionalism and felt they wanted to help me.

However, with my luck it was Memorial Day weekend so I couldn't go until Tuesday, June 1st. I saw them and ran the test.....Profound hearing loss in my right ear. Which I already knew of course. They did the injection like YOU described yours on Wednesday the next day. No changes in my hearing. The spinning is just about gone, the balance is still off. I haven't drove in almost 2 weeks but today I am feeling better so hopefully I can drive soon.

My steroids are almost out and my next Injection is Tuesday, June 8th. I want to have hope but I have a feeling that I won't get me hearing back in the right ear. I hope and pray I do, but am not getting my hopes up because I don't hear anything at all.

Sorry this is so long. I just had to tell someone who has been through it. My dizziness is still there but getting better. The ringing/humming is absolutely annoying and seems like keeping busy with my work or playing with my daughter (she's 6 months old). I know I have read it is rare but I am scared to lose my left at some point. I want to hear my daughter speak and hear her grow up.

Thank you again for your part in my recovery. It was the start of getting things done as they should. Doctors/Nurses need to change the way SSHL is approached. THAT HAS GOT TO CHANGE. I hope you are well and look forward to reading your next reply if any.


KRProton 06-05-2010 07:11 AM

Re: Dizziness, hearing loss, vertigo, SSNHL
Hello Mike.

Your condition sounds precisely the same as mine. Yes, SSHNL (sudden sensoneural hearing loss). I guess loss due to neuroligical reasons (the nerves that transmit the sounds the middle ear picks up, transmits to the labyrinth then to your brain via nerves). I guess I sound like a doctor! Like your mother, I've read up on this on the internet.

Also, the treatment you received sounds similar to me, only yours is a little worse. I was so nauzious, sick and dizzy I didn't even realize I had hearing loss until the ER docor mentioned it. Even then, it was the least of my worries because I was so dizzy and nauzious. They never even mentioned seeing an ENT. They scheduled me for an MRI, but that was a week later. I was driving though about five days after the condition first struck me--I was still dizzy, but could drive okay as long as I didn't swing my head around too fast. After the MRI a week later, I was still feeling dizzy so THEN I called an ENT on my own. They scheduled me for an appointment a week after that!

When I got there the doctor was astonished that his assistant didn't schedule me immediately. She said that I didn't mention anything about hearing loss when I made the appointment. Well, I guess I don't have perfect memory recall and I don't recall exactly what I said, but I would have thought I would have mentioned that I had hearing loss. In any case, she should have inquired more.

The hearing specialist (who I saw before the doctor came in) didn't have great bedside manner. He told me I would problably never get my hearing back. Initially, I was quite depressed, but then I also remembered how veterans of war loose much more than just their hearing including their lives, and my hearing loss is just a minor inconvenience that I can live with.

Well, right then and there, he decided to do the ear injection. I didn't like the sound of that, but finally I had someone who knew about this and would take action.

The worst part was when he numbed my eardrum. Then he gave me the injection and I had to lay on my side as you know. At the time I thought the needle was still in my ear and I laid there on my side freaked out for 30 minutes! They did this right in one of the rooms - not in a surgery room or anything. This guy had done lots of these and seemed like a pro at it. Subsequent injections were through the hole in my eardrum he made the first time and weren't that bad. We did two a week for about a month I think, then I said "why don't we do these more often?" He said "do you want to?" I'm thinking "you're the doctor, you tell me!!!" I lost a little confidence in him at that point.

Through this, I was still worried that my dizziness wasn't all gone. I could get around just fine, but I desperately wanted to get back to my ice hockey league. I had another MRI done and saw a neurologist with no real news.

Finally, I felt my dizziness was good enough and I could try to skate with my team. I went out on the ice and could tell pretty quickly I wasn't ready, so I went back into the locker room and removed my gear--a little angry!

I tried again two weeks later and skated pretty well, but definitely wasn't 100%. I got better with each game and now I guess I'm pretty much 100% on my skates, though I still can notice dizziness if I lift my head quickly and move it from side-to-side. But I can't tell if it's more dizziness than I had before, of if I'm just more sensative to it now.

We quit the ear injections and I have basically all hearing loss in my right ear. I saw the audiologist before each injection. At first there was a little improvement in the lower tones, but then no more improvement, so I'm basically deff in the right ear.

They tested this device on me where you wear a small microphone over my bad ear with a cord that trasmits the sound to a speaker in my good ear. This was amazing because I could pick up sounds from the right side and work amazingly well, but it's like five thousand dollars and isn't covered by my health care. Plus, I wouldn't want to wear that getup anyway, so I passed, thanks.

During this I was a little depressed and moody. My mother or father would call on the telephone and say "hey, it'll get better" and crap like that because they wanted the call to end positively, but it wasn't going to get better because my hearing was gone, period. Not going to get better.

But I know they were just trying to help and now I've come to grips with this (and it's just not that bad as I said before). I'm no good to anybody in a bad mood. I'm back to hockey 100% and most of the time I don't think about the hearing loss. It's a pain in the a#* sometimes because I can't pick up on conversations others (including my wife and step-daughter) are having. When I'm driving, if the windows are closed I can here what's going on pretty well, but if the window is down I can't hear much at all what is going on inside the car because of the perriphial noise from outside. Same thing in a crowded room or noisy restaurant--can't hear crap unless the person is talking directly to me. I just have to tune out sometimes.

My ear is still ringing too. I'm used to it and it doesn't bother me. I still have hope at least THAT will go away, but maybe not.

I don't worry about loosing hearing in my good ear because I figure the chances of that are so slim. This is a freak thing I guess due to a viral infection from whatever. And now I know what to do and to get in for treatments right away.

I enjoy sharing the experience with someone.

I'll look for a reply and let me know if you have any more questions.


P.S. What do you do for a living? I build and develop prototype model airplanes and write instruction manuals. Also enjoy riding my motorcycle.

Giovanni Miceli 06-21-2010 08:35 PM

Re: Dizziness, hearing loss, vertigo, SSNHL

I have been dealing with the off balance for about 6 months, now. The worst is this "bouncy vision" whenever I move. What did your doctor say that bouncy vision was caused from? and will it eventually, fully go away?


KRProton 06-22-2010 04:13 AM

Re: Dizziness, hearing loss, vertigo, SSNHL
Hello Giovanni.

I'm sorry you too have been afflicted with this problem. Yes, I have experienced the "bouncy" vision. I don't know what my doctor said about it. I think it's just one of the side-effects of this whole problem. The "bouncy vision" seemed to be one of the longest-lasting problems. It seemed to subside along with all the other problems of balance, etc. Now I remember he said vision is one of the cues we use for our balance. If our balance is affected, so is our vision. Today, my balance is not 100%, but it is very good and as I have said before, I am playing well in my ice hockey league and it doesn't seem to bother me at all - I don't even think about it when I'm out on the ice. But even today, when I go running, for the first few minutes I still detect "bouncy vision," but it goes away (or I get used to it) after a few minutes. Other than when I first start out running, I don't notice any bouncy vision.

I would say I have been at this point or near it for about three, four or more months now - a month or so after I was first afflicted with all this. I expect it to continue to get better and I think it has, but in such small increments I cannot notice.


Giovanni Miceli 06-22-2010 06:37 PM

Re: Dizziness, hearing loss, vertigo, SSNHL

Thanks so much for the reply and your post. Yes, it's like we all get better, but it's so slow.

Great job dealing with your balance issues and still being on the ice. One thing I figured out early on is, you really have to stay active to beat it.

The bouncy vision is the worst part of it for me, but it has gotten better, but it is such a slow process.

Glad to hear your doing so well. Best of luck on the ice.

wsa 04-04-2011 01:33 AM

Re: Dizziness, hearing loss, vertigo, SSNHL
Hey guys I have a few questions you might be able to help me with. I have very good friend who had similar sudden hearing loss to yours but not as severe. She did not go throgh all the steroid treatments (I think) that you guys did (I didn't know her then). This thread is about the first to describe the fullness or stuffiness in the ears. The question is did any of you take accutane in the past? She did, about 26yrs ago and hearing loss does seem to be a problem with the drug even if only a sall number of patients. Her age is about 48. Also is your hearing loss bilateral and is it more sensoneural or conductive loss? She has had the mri's and it was determined that there are no EVA problems.

Any info could prove usefull.


KRProton 04-20-2011 04:48 PM

Re: Dizziness, hearing loss, vertigo, SSNHL
I never took accutane (though I don't know what it is--doesn't sound like anything I've ever used). My hearing loss is due to dead nerves--so my doctor tells me--due to the inflammation from my virus.

Sethwoman 06-06-2011 10:05 AM

Re: Dizziness, hearing loss, vertigo, SSNHL
I'm so glad this thread is not closed. I have sudden hearing loss in my left ear. Because it was misdiagnosed as middle ear fluid by ER doctor, it was 14 days since I started my Prednisone. I had no balance issues just hearing loss and tinnitus. Now I feel unsteady but it may be because of anxiety.

I was wondering if you guys ever had fluctuation hearing loss. Yesterday I felt almost 85% and today it's back down to 50%. This is driving me crazy. It's good to hear that you guys manage to get back to your life and I look forward to getting rid of this scary feeling. I feel fullness in my ear and sometimes in my sinus.

Forgot to mention I am a 37 year old female in good health.

I hope you are all dealing with this fine and look forward to hearing (no pun intended) from any of you.

Mikea809 06-07-2011 04:42 AM

Re: Dizziness, hearing loss, vertigo, SSNHL
Mine also was misdiagnosed by the ER doctor which i still have a hard to believing that he could tell me a possible middle ear infection and give me an antibiotic and send me home. I had lost all my hearing in my right ear. My steroids were done around the third day but that was just over a year ago. My case was severe to where even after the steroids, I could only hear sounds at 90 db but couldn't understand the words for the most part on my audiologists hearing test. I just had a hearing aid made for me last week to see if it helps. I can hear sounds but still sound like they are in a tunnel and sounds like an out of tune radio station. I am going back to see if they can adjust it any. I am not sure if it benefits me but they told me to try for 2 weeks. I would love to hear at 50% to 85%. Then this hearing aid would be great and the one I have is so tiny, that nobody even notices I have it in. It shocks people when I pull it out because I am only 41.

At times, I can get a little somber when I think of just a year ago, my ear was just fine. I just still don't understand how this happened but only thing the doctors say is "must have been a virus". That frustrates me because we all get sick from time to time. Myself, I only get sick once a year or so but all of a sudden I go deaf in my right ear????? I just can't believe it sometimes. But then I get back to reality and realize that many many people in this world are a lot worse off than me health wise and I should be grateful for the hearing I do have in my left ear. I just worry sometimes that as big of a fluke it was to lose my hearing in my right ear, what if I lose it in my left at some point and that the doctors missed something. Then I won't hear my little girls voices ever again. That is the main thing I worry about if that did happen.

The fullness of the ear I totally got used to. The tinnitus is constant but don't really notice it until night time or when things are quiet. Mine is 24/7, it doesn't stop but is more like a hum than a ringing. I would say that the tinnitus is the worst part to deal with. It's like annoying to think about hearing the tinnitus for the rest of my life. The hearing loss I can deal with and doesn't effect me much at all except when I have to say "what?" to friends and family a bit.

One thing my hearing aid does do for me is that I can tell better where sound are coming from than I can without it. I hope that the hearing aid can do more for me after my adjustment but i feel that my hearing is just too bad to truly get the benefit from it.

Even though I wrote some negative feelings from my situation, just know that for the most part, my life is really great despite my hearing loss. I hope that some day that the medical field will study this more and be able to do more for people with SSHL. Also, educate the doctors in the ER to not waste precious time by misdiagnosing these types of cases. The second ER doctor that saw me once I returned with major vertigo symptoms said that I should have been admitted the first day and that Sudden Hearing Loss should be considered a medical emergency.

But little girl just woke up so I better be going.

All the best,

Sethwoman 06-07-2011 05:24 PM

Re: Dizziness, hearing loss, vertigo, SSNHL
Thanks for sharing. I think I can also handle the fact that my hearing will forever be different now, and I also mirror your thoughts that there are lots of people out there dealing with worse health issues. I try to be optimistic that there will be advances in research for people suffering with hearing loss and that maybe someday I'll get some of my hearing restored. Today I went for my MRI and as I was lying there I thought to myself that there are millioins of people in this world who do not have access to this type of technology. I do appreciate the fact that I have health insurance and have access to good doctors. My boyfriend has also been wonderful to me throughout this ordeal and I have been reminded of how great he is.

My worst fear also is that I may loose my hearing in my other ear. This experience had made me appreciate my right ear hearing so much. I think because my tinnitus hasn't stabalized everytime I feel it getting worse, I panic, which is probably the worst reaction to have. I just want to know what this is, deal with it, and move on.

Since this issue is rare perhaps we can now rest assured that our worst hearing issues are behind us and the rest is uphill from here. At least that's what I'm going with today.

Take care,

KRProton 06-08-2011 03:29 PM

Re: Dizziness, hearing loss, vertigo, SSNHL
My hearing loss in my right ear is virtually 100% loss--I guess I can hear it if I stick my finger in my ear, but that's it and not very useful in the real world.

Anymore now, it's mostly just an inconvenience. In rooms with people or in the car with the windows down it's difficult to hear those speaking to me, but most of the time it's really not a problem. I don't have to have the volume unnecessarily high when watching TV or anything. I do have great difficulty detecting which direction sounds are coming from. At work (I work in a shop environment), when somebody calls my name I don't know where the heck they are standing.

I still have ringing in my ears all the time, but I notice it only when it's quiet and have gotten used to it. The fullness is still there, but not so much that it bothers me anymore and it still seems to be improving.

I expect never to get my hearing back in my right ear. Apparently its nerve damage that will never heal.

Again it's just more of a minor inconvenience and isn't a big deal. Sometimes it does get frustrating at parties or gatherings or whatever, so sometimes I just tune out.

The best thing though is that my balance is at about 98% to 99% which means I still play in my ice hockey league and am still very effective and am as aggressive as I like to be--doesn't seem to bother me anymore on skates which is one of the things I love doing most.

I wish you the best of luck with your situation.


dreamnormal 09-12-2011 02:05 PM

Re: Dizziness, hearing loss, vertigo, SSNHL
I have just read these two stories of SSHL and Labyrhinthitis from you both and as frustrating as it is for you I feel blessed to not feel alone.
I also have Sudden Sensorineural Hearing Loss and Labyrhinthitis. The similarities are so striking to me including the necessity to go to a family funeral and have most people "see" me as "upright and normal" yet not be able to understand what is going on in my head,ear,eyes and stomach.
My children do the same thing to me and see me as being able to do almost anything like before. I do the best I can and the days are certainly never the same as to how I'm feeling. I thank you both for taking the time and I know the effort to stare at a computer screen and tell your stories.

I will tell mine at some point and hope to get more feedback also. But the kids are calling and I must sign off.

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