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Vertigo ~ Questions.... maybe someone can help answer?

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Old 08-01-2011, 02:27 PM   #1
Join Date: Aug 2011
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jean001 HB User
Questions.... maybe someone can help answer?

This is a little long but here is my story:

A little over 3 months ago I got up sometime in the night to go to the bathroom and (we aren't sure if I fainted or fell and knocked myself out) but I hit the dresser and was unconscious for a while. I remember feeling funny when I got out of bed and walked to the bathroom door. My husband had left for work already and only my kids were home. I actually woke up back in in bed without knowing how I got back in bed and the room was spinning wildly. I was sweating, sick, nauseous, throwing up and couldn't walk. I finally made it to the bathroom and could see I had dried blood under my nose. The back right side of my head was so sore I couldn't touch it (hurt for months). I blew my nose and it was full of blood clots. My husband rushed home and took me to the Urgent Care doctor (it was on a Saturday). I had a MRI and saw several specialist that week. The MRI came back with partially empty sella and a 5 mm pineal gland cyst. They said both were somewhat common and not the cause of my Vertigo.

I went and saw a Hearing and Balance doctor and at first he said it was BPPV then he said it might be MAV. He's treated me for that a couple of times with the Epley Maneuver. He did a VEMP test and some others. The VEMP showed no response in the right ear at around one month. My hearing test was normal. The Epley did help so I know I knocked some crystals loose and they are floating around in my ears. At a little over a month I went in and I was having vertical nystagmus. He seemed concerned about that and ordered more test. He did a caloric test, VNG and some others. I also have had problems with my memory and feeling like I don't understand what someone is asking me. I had trouble thinking of names or words when trying to talk to someone. When I first when back to work everything looked like it was bouncing when I walked down the hall and I was seeing double vision when I looked at the computer (one dark line and one lighter above it). That started getting a little better at about 2 months or so. He did the check to see if I had nystagmus at that time and I had it again in the right ear. I've had crystals in both each at different times.

So this last time he put me down as having a concussion, labyrinth concussion and BPPV. He also said I have "Meniere like symptoms" but not necessarily Meniere’s. My question is do you think it is Meniere's since I have no hearing loss? I also have pulsating tinnitus (not ringing) with a very distinct heart beat which I have read is not related to Meniere's. I really do not want it to be Meniere’s and he knows that.

Now I am having some dizziness still. Yesterday my head was killing me when I woke up from laying on it exactly where I had hit it when I fell and the pulse was extra loud in that ear. I have pulsating tinnitus when I get up in the morning if I have laid on my right ear all night. It last for a couple of hours and it is very loud at first and slowly fades to almost not being able to hear it during the day. I usually don't notice it too much any other time of the day unless I do something strenuous.

The other night I was riding a stationary bike and looking at my laptop at the same time. I was fine while on the bike riding but when I got finished and got off I suddenly couldn't walk straight like the floor was rolling under my feet. Something similar happened when I rode a bike outside. I know I didn't tilt so I don't think it had anything to do with BPPV on that occasion. It made me sick to my stomach. It was nothing like the normal Vertigo I've been experiencing. It was like my balance system was over stimulated or something. It worried me that something else is going on. The pulse in my ear is worrisome to me too. Do you think this is related to my concussion or something more?

Thank you so much for taking the time to read this.

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wolfcafe (08-09-2011)
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Old 08-08-2011, 09:30 PM   #2
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Re: Vertigo ~ Questions.... maybe someone can help answer?


Well, I am not a doctor with medical answers to your valid concerns, but I wanted to offer words of empathy and compassion for your recent health issues.
May you find a good doctor who can work with you and listen to your own input, and give you the right answers to assist you.

Life can be full of log's, big and small, thrown across our trail. Many of these
"log's" will eventually disappear, and never return again.

Good Health Wishes to you!

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