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SweetieStarr 07-10-2012 06:58 PM

Vertigo - possibly hormonal - PLEASE HELP
Hi everyone,

I have had vertigo for about 4 years. It came on after I was rear-ended in a car accident and had physical therapy. At first they thought it was BPPV, but I have been tested for it several times over the last 4 years and every test indicates I do not have BPPV. They also thought I had Meniere's at first, but then determined I don't have that either.

The doctors have put me on a diet of low sodium, low sugar, no caffeine, no alcohol, no chocolate. I also eat very healthy otherwise. I enjoy walking and yoga for exercise, but am often not able to do these because of my symptoms. I especially cannot do poses like downward dog in yoga because of the slight inversion.

I have had vestibular testing and when my doctor read the results he didn't say there was anything alarming or unusual. I did go to vestibular therapy and have vestibular exercises I do regularly.

I have noticed that my vertigo often occurs either during PMS or during the first days of my cycle. I also sometimes (but not always) get bad cramps and I have vomited from them before. I usually don't vomit from the vertigo, but have a few times. Sometimes, I also get a motion sick feeling, but without the spinning of a normal vertigo attack. I generally don't get traditional migraines, but when I have I would consider them mild because I don't have to be in a dark room and am not that sensitive to noises, etc.

In addition to the vertigo, I also almost always feel tired/fatigued/lazy/lethargic, and sometimes have a general head fogginess. Sometimes this will clear after getting my period, but sometimes it doesn't. I also have acne on my chin area (despite a good diet and good skincare) and have developed dry skin patches on my hips.

I wear vision correction (up-to-date and my eye doctor doesn't think the vertigo has anything to do with my eyes). But often looking at the computer screen with bother me and make me feel nauseous.

No doctor has an answer for me about what is going on with my body. I saw a new gynecologist who immediately suggested "hormone manipulation" in the form of birth control pills. I'm willing to try them if they will help, but overall would prefer to treat the problem naturally without pumping myself full of synthetic hormones.

How do I know if my vertigo is truly hormonal? From what I have read, it seems the hormone tests are not accurate.

Has anyone else tried birth control pills for their vertigo and if so, has it worked? Has anyone been able to solve their problem with natural methods?

I'm so sick and tired of living like this as my work suffers and I cannot do many things that I used to do (like dancing). I also have to take extended periods of time off from work and my mother has to care for me when I have vertigo attacks. I want to be able to live an independent lifestyle.

Please help me!!!

SweetieStarr 07-11-2012 08:43 AM

Re: Vertigo - possibly hormonal - PLEASE HELP
I've been reading these boards a lot since yesterday and it seems like MAV could be a real possibility. Everything I have read so far seems to fit. My vestibular therapist is hesitant to diagnose it because she said it is a diagnosis of exclusion. However, I don't have BPPV or Meniere's and after talking with my mom found out migraines run in the family.

Do we think I have MAV?

I'd really appreciate some replies. I feel really hopefully that I could finally have something to work with here.


SweetieStarr 07-12-2012 12:10 PM

Re: Vertigo - possibly hormonal - PLEASE HELP
Can someone please help me?!

florida max 07-13-2012 01:55 PM

Re: Vertigo - possibly hormonal - PLEASE HELP
Were you tested for BPPV by an ENT who has an Epley Chair?
I am not a doctor, but was recently diagnosed with Benign Paroxysmal Positional Vertigo(BPPV). This is the most common cause of dizziness, the problem is caused when small debris in the inner ear is dislodged and floats into the semicircular canal. My vertigo symptoms started after I had dental work performed and my initial thought was that I had a bad infection from that work. I suffered for 2 months before being advised to see an ENT Specialist.
My symptoms were severe bed spins usually lasting 5-10 seconds when laying down for bed, rolling over, or rising from bed. I also feeling anxious, I had trouble focusing, headaches, tired eyes and complete fatigue. Some days were terrible and I never really felt stable.
I went to an ear & balance center located in central Florida. Was diagnosed, treated and cured in one visit. The treatment was performed using an Epley chair which basically is a chair that you get strapped into and slowly they spin you in many directions while they monitor your eye movement with special goggles. The goal is to reposition that debris into the correct area in your inner ear. I left the treatment that day dizzy so I would recommend a driver. The dizziness lasted another few hours and slowly cleared. I got a good night sleep (the first in months) and woke to a stable world. It has been three weeks since the treatment and I have had no reoccurring dizziness at all.
There are instructions on doing the Epley maneuver at home, but the ENT uses the Epley chair to confirm that you have BPPV before treatment and then a computer verifies that your condition is repaired by watching your eye movements. Many people who try to performe the Epley maneuver at home only make things worse.

SweetieStarr 07-13-2012 02:02 PM

Re: Vertigo - possibly hormonal - PLEASE HELP
I have heard about the chair, but have not been tested with it. I have been tested for BPPV about 3 times already, all tests saying I do not have BPPV.

florida max 07-13-2012 02:24 PM

Re: Vertigo - possibly hormonal - PLEASE HELP
I can only suggest you see an Ear, Nose & Throat physician who specializes in dizziness and imbalance dissorders. Good Luck!

SweetieStarr 07-13-2012 02:26 PM

Re: Vertigo - possibly hormonal - PLEASE HELP
I've already seen that type of doctor. As explained in my first post, I have had quite a bit of testing, am doing vestibular therapy, am on a special diet, and have ruled out BPPV and Meniere's.

Can someone with MAV please comment here?

SweetieStarr 07-13-2012 02:29 PM

Re: Vertigo - possibly hormonal - PLEASE HELP
I've already seen that type of doctor. As explained in my first post, I have had quite a bit of testing, am doing vestibular therapy, am on a special diet, and have ruled out BPPV and Meniere's.

Can someone with MAV please comment here?

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